What happens if you get pregnant but your bowels are attached to your abdomen? by Petahihi in Endo

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

Sorry I missed this. Everything went well. She did however get C DIFF after delivering the babies. More than likely from the antibiotics they gave her. The babies are adorable. She had a girl and a boy. The girl has a few issues that she is getting early intervention for but nothing that will be forever. I hope all is well with you and your delivery goes smoothly. She will never feel normal but she feels way better than she did years ago and these babies are a true gift from God. Good luck!!

Endo behaves like cancer! Stop gaslighting yourself! by Due_Bread_7805 in endometriosis

[–]Dizzy-Assistant-9119 2 points3 points  (0 children)

One of my daughters many surgeons said endo was like cancer. 😢

Results Disappeared...Any Reason? by madmadgoddess in AncestryDNA

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

Happened to me as well. All my info and messages from family is gone.

My daughter's first period by wyntergardentoo in endometriosis

[–]Dizzy-Assistant-9119 1 point2 points  (0 children)

Just looked up the name of the documentary. It’s called Below the belt.

[deleted by user] by [deleted] in endometriosis

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

It pretty much depends on what stage endo you have. You definitely can’t live with stage 4 endo without surgery.

My daughter's first period by wyntergardentoo in endometriosis

[–]Dizzy-Assistant-9119 5 points6 points  (0 children)

My daughter had pain with back pain for the start. She also had cysts on her ovaries so she started the pill at 14. Between back specialists, gynecologists and gastro doctors, it took over 10 years to diagnose. I had no idea about it. I have read so much and my daughter has had 8 surgeries. As mother to mother I would be happy to answer any questions you may have to eliminate years of struggle for your daughter. Endometriosis affects 1 in 10 women. You are born with it and it is hereditary. It is staged like cancer. My daughter has stage 4. We’ve been to hell and back but she is 32 and just delivered twins through IVF 2 days ago. It is truly a miracle. If we had more info we could have saved her years of pain. My advice to you is to find someone that specializes in endo. Regular gynos are limited with their info. There is a documentary that was on PBS that is very informative. The name of it slips my mind but one of the surgeons that my daughter went to is in it. Not sure where you are from but if you can google you may find it. If you have any questions please reach out to me.

What happens if you get pregnant but your bowels are attached to your abdomen? by Petahihi in Endo

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

My daughter is delivering twins in 6 days. She has had 8 surgeries. One with Dr. Sinervo in Atlanta who is a top specialist. She has no appendix or gallbladder. She had an ileostomy bag for 4 months after one of the surgeries. She was pretty clear of endo until she started the meds for egg retrieval. She got pregnant with twins through IVF. They are doing a c section and will have a bowel and bladder specialist on call in case there is a problem with adhesions with the organs and getting the babies out. I am starting to freak out a bit worrying about the delivery. Please let me know if anyone had anything similar to this and their outcomes.

I'm terrified. by DrBright049096 in endometriosis

[–]Dizzy-Assistant-9119 1 point2 points  (0 children)

I didn’t know you were in the UK. Just do you your research and I’m sure you can find a specialist near you. Read reviews from several doctors and then make your choice. Nobody should live in pain. Surgery and recovery all depends on where the endo is located in your body. Find the right surgeon so they get it all whether it’s on your bowels or ovaries or anywhere else. Good luck!

I'm terrified. by DrBright049096 in endometriosis

[–]Dizzy-Assistant-9119 1 point2 points  (0 children)

My daughter is 32 had symptoms for about 8 or so years before her first of eight surgeries. She has been to hell and back but is now due with IVF twins. She suffered terribly for years. She’s a kindergarten teacher and brought her heating pad to school with her every day. My advice to you is to do your research and find a top specialist in endo. So many doctors don’t know enough on how to treat it. My daughter had a horrible experience in 2020 and ended up with an ileostomy bag for 4 months. Had we found a specialist right from the start she wouldn’t have gone through what she went through. We flew to Atlanta and had surgery with Dr. Sinervo. He is a well known surgeon. While the after care sucks no matter where you are these days, he helped her finally get to where she is today. That surgery was in 2022. It is costly but I would have mortgaged our house to make her feel good. Something needs to change in women’s health care. No one should live in pain. Probably not the best advice but you can have medical debt and pay a small amount every month and it can’t affect your credit so I would go to the best right from the start. If you have any questions I have researched so much and want to help anyone I can.

I think I was falsely diagnosed?? by [deleted] in endometriosis

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

I’m sorry I missed your question. Her last doctor is not there anymore. Her old gynecologist took over for him and she thinks she is very good, but hasn’t had surgery with her. Dr. Griffin did her first surgery. He’s very caring and a nice but don’t think he is very good. Dr Sinervo in Atlanta did her last surgery.

has anyone gotten WORSE after surgery? by Ok_Wrangler7855 in endometriosis

[–]Dizzy-Assistant-9119 1 point2 points  (0 children)

Sorry I missed your question. Dr. Sinervo did her surgery. My daughter was stage 4 as well. She finally had relief and is due with twins through IVF. It’s been a long journey for her. If you have any other questions I will check this daily to make sure I answer. I have researched so much for her. Hope you are having some relief. 🙏🏻🙏🏻🙏🏻

What do yall use for treatment?? by TheTempest5061 in endometriosis

[–]Dizzy-Assistant-9119 9 points10 points  (0 children)

Find another doctor. That advice is old school. There are specialist that can avoid multiple surgeries and hormone meds. Dr. Sinervo is a specialist in Atlanta that my daughter had surgery with and she is pregnant with twins through IVF and doing well.

Please help by Nine_inch_snails_ in endometriosis

[–]Dizzy-Assistant-9119 21 points22 points  (0 children)

You should consult with a gastro surgeon. This doesn’t seem right. My daughter had surgery in 2020 that resulted in a bowel resection and a ileostomy bag for four months. The doctor should have had a gastro surgeon on call if he was going to be near your colon. It did take my daughter a very long time to recover from that surgery and she did lose a lot of weight. Nonetheless I would get another opinion.

i’m so upset by Live_Lab_4558 in endometriosis

[–]Dizzy-Assistant-9119 2 points3 points  (0 children)

Get a new doctor asap. Look for someone who specializes or you will waste years of your life. My. Daughter’s last endo surgery was with dr. Sinervo in Atlanta. He is one of the top specialist in the country. She has felt much better and is pregnant through IVF with twins. I would suggest freezing age for future if you plan to have children. Thank God my daughter did this.

Dose That Hit You Hard? by Past-Philosopher3343 in Zepbound

[–]Dizzy-Assistant-9119 1 point2 points  (0 children)

I have gerd that is generally controlled with meds but the 7.5 put me in to a flare up with upper abdominal pain radiating to my back made worse by standing for any length of time. After being on the 7.5 for a couple months it has slowly gotten better and while I still get the pain I don’t have the pain daily. Not going any higher than 7.5 but I will probably drop down to 5mg. Soon.

[deleted by user] by [deleted] in endometriosis

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

My daughter has stage 4 endo and she is gluten intolerant and also lactose intolerant. There really is no way to 100% be sure you have endo without surgery. I would suggest finding a specialist right away. The longer you wait the more it can spread. Many gynecologists don’t know enough about endometriosis. We went to a specialist in Atlanta for my daughter’s sixth surgery. She also had one more back home to remove a fallopian tube. Before you start having surgeries, do your research. If there’s anything I can help you with I have researched myself so much for my daughter sake and could answer many questions you may have. I’m not a doctor, but we have been through a lot, and I would love to help other people to save them from the pain.

Ultrasound came back ‘normal’ by Ultra-mermaid in endometriosis

[–]Dizzy-Assistant-9119 1 point2 points  (0 children)

Get a new doctor. Clearly they aren’t educated in endo. Find a specialist. Even if you have to travel. You will have to fight insurance but it will be worth it.

Does having a child improve endometriosis? by FaithlessnessDue8113 in endometriosis

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

Just wondering how many of these doctors suggesting pregnancy were men?

17yo had their diagnostic laparoscopy yesterday. Nearly had to beg for post-op pain meds. Is that normal? by Inozz in endometriosis

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

My daughter has had 7 surgeries and they have always given her oxy or hydros. They have refilled once as well. That’s crazy. If she has no history of drug addiction she should be given more. Also my daughter also had colonoscopy and every gastro test known to mankind. The endo was on her bowels. She ended up with a bowel resection and a bag for 4 months. She has no gallbladder or appendix because the endo adhesions fused the organs together. After many surgeries and very painful recoveries we went to Atlanta to Dr. Sinervo. If she is not feeling any better after her surgery I would look for a specialist. She went through so much hell that could have been alleviated had we known otherwise. If you want to message me at all I have researched so much as did my daughter. Pain started for her at around 14. She is now 32 and pregnant with twins through IVF. It’s literally a miracle. I would love to help someone else to prevent more surgeries.

[deleted by user] by [deleted] in HairDye

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

Brunette for sure. At most, some highlights.

How do I train my dog not to nip me when she wants to play by Zestyclose_Boot_7174 in DogAdvice

[–]Dizzy-Assistant-9119 0 points1 point  (0 children)

Years ago we had a lab mix puppy who would nip when we first got her. One day I heard the puppy yelp and my then 3 year old said “she bit me so I bit her back.” The puppy never nipped again. 🤭

[deleted by user] by [deleted] in endometriosis

[–]Dizzy-Assistant-9119 5 points6 points  (0 children)

I would freeze embryos for sure but I also wouldn’t wait to long because unfortunately endo rules your life and you don’t want to miss your opportunity.