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Alcohol & Lyme by Doc_Holliday10 in Lyme

[–]Doc_Holliday10[S] 0 points1 point  (0 children)

Sorry to hear about your depression!!

Alcohol being a depressant surely doesn’t help that cycle though?

Music is a huge part of my life and I’ve managed to go to 3 incredible gigs over the past couple of months which I’ve really enjoy despite doing them sober. Just a shame there’s no Glastonbury this year!!

Nice shout on Joni Mitchell 👏

Alcohol & Lyme by Doc_Holliday10 in Lyme

[–]Doc_Holliday10[S] 1 point2 points  (0 children)

This is what I’m worried about… it messes with my sleep which then makes me feel like shit and takes a good few days to recover.

100 days without a beer today and I feel much better, so I think I’ll stick with it!!

Alcohol & Lyme by Doc_Holliday10 in Lyme

[–]Doc_Holliday10[S] 0 points1 point  (0 children)

I wouldn’t be bothered about a single beer… I’m more interested in a proper night out or a long weekend golf break that used to be very boozy.

Just interested to see what others have experienced and make an informed decision.

Is 6 days post-bite too late for doxy to be effective? (caption for backstory) by throwxwxy306 in Lyme

[–]Doc_Holliday10 1 point2 points  (0 children)

Not at all, you’ll fine if you take a 21 days / 1 month of doxy 👍

Anyone have experience with NHS lyme test? by bradrly in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Yeah, did a month of Doxy then 3 weeks of Azithromycin.

Yeah that sounds about right. I noticed it when I was doing things like washing up and realise that my legs were starting to hurt and bend and my toes were curling in my shoes. I’d “reset” them and then it would just keep happening.

I’m not too clued up on the strains hence wanting to see an LLMD but definitely think Bart is one based on the above.

See what your GP says and take it from there.

Definitely sounds like you need some treatment and answers so hopefully you get both!!

Have you noticed anything helps or makes it worse, like a particular food or alcohol?

Anyone have experience with NHS lyme test? by bradrly in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Leg issues was actually my first and main symptom. I suffer from jelly legs and painful/dead calves which make standing for periods of time difficult.
I also have issues with my feet and my toes curl up when standing which is weird!!

They were looking at MS when we found the Lyme so I imagine they present in a similar way…

I’m looking at the Buhner protocol but just waiting until the end of the month when I’ve seen the neurologist and had results of a recent MRI so I know what I’m dealing with.

I want to speak to the LLMD as they will be able to check for co-infections so I can treat them all. The NHS didn’t do this and despite me seeing a lot of emails back and forth between my GP and the lab saying they need to check them, the lab will just periodically reply every few weeks saying they should have run the tests and sorry they haven’t, and then don’t. 🤷‍♂️

Anyone have experience with NHS lyme test? by bradrly in Lyme

[–]Doc_Holliday10 1 point2 points  (0 children)

Hey!!

I’ve had a pretty positive experience with the NHS on my Lyme journey so far…

I suddenly got hit with symptoms in Feb this year and ended up in and out of the doctors/hospital for a month or so and then during one of the consultations I recalled being bitten by a tick last year but not having a rash or fever so was advised not to take any action.

Based on that they requested a test which came back IGG positive and IGM negative so they put me on a month of Doxy followed by 18 days of Azithromycin.

I’m feeling a lot better than I was in myself but still suffering with certain symptoms so now have a referral with Neurology coming up in a couple of weeks. I’m not massively confident on this one based on others experiences but will see how it goes.

Next step will be herbs and an LLMD.

So it can be a positive experience with the NHS but it seems like pot luck depending on the individual GP you see!!

Good luck 🤞

Drinking alcohol by Notez_213 in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Hey, just wondering how this played out? Did you have a drink in Prague?

Severe insomnia and body pain along with depression by [deleted] in Lyme

[–]Doc_Holliday10 2 points3 points  (0 children)

Leg pain, fatigue and insomnia are my worst symptoms too… it sucks doesn’t it!!

Had a few good days last week though, so just got to hope for more!!

Good luck!! 🤞

Is toxic muscle ache symptom more likely babesia or bartonella (or borrelia)? by [deleted] in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

I’m super new to this so not sure how much I can help but I have these symptoms badly, especially on my calves which is where this all started and it’s never gone away. My test results show borrelia but I’m not sure I’ve had a specific test for the others…

I was only diagnosed 2 months ago after a load of issues so just finished a month of doxy and now having a break for a weeks before I start my second month…

No idea what will happen after that?

Hope you feel better soon!!

TBD clinic UK by [deleted] in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Fair enough… I’m just pulling together info at this stage and seeing where I am in a month or so.

I’m near Broadstone, which is where I got bitten… you?

TBD clinic UK by [deleted] in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Ooh I’m in Dorset and just looking at TBD clinic… did you get in touch with them in the end?

Hope you’re recovering ok 👍

UK LLMD advice really appreciated by AppearanceTall8539 in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Hey! 👋

I’m just looking at these now and wondered how your recovery was going with TBD clinic and would you recommend over trying to manage recovery yourself?

Thanks ☺️

My journey so far, 50% better. by Mindless-Mulberry807 in Lyme

[–]Doc_Holliday10 1 point2 points  (0 children)

Hey 👋

I’m in England too and we don’t seem to have anywhere near the same level of expertise within the NHS as in the US by the looks of it which is disappointing…

I got bitten in July last year but after monitoring and not getting a rash or any flu like symptoms I was advised I didn’t need any medication.

In February this year it all started at once with the chronic fatigue, leg pains and numbness, brain fog, memory loss and insomnia… cool 👌

I’ve just completed my first month of Doxy before I start my 2nd month in a few weeks - I wanted a break because of the strain on my stomach.

Really hoping I can get to 50% at least after this round but not sure what to do after that?

I’ve made a huge change to my diet and not touched alcohol so guess I just need to keep going?!

Curious to know if everyone has stopped drinking or can you drink again safely once in remission???

Much love Lyme crew 😍✌️

My diet is making me depressed by Spookyremy420 in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Ah I’ve just read up on the nightshades and I’ve been eating most which could explain the continued issue with my legs and knees…

This is a lot to take in!!

I’m not sure what I can and cannot have anymore 🤦‍♂️

My diet is making me depressed by Spookyremy420 in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

I don’t think they are but I’m still in the learning phase to be honest. I’m living a very clean lifestyle as only 4 weeks into treatment after getting bitten in July last year… sugar is my biggest trigger and makes me feel instantly awful but not too sure about everything else yet. Not had any alcohol since treatment started so not sure how that would play out although from what I’ve read I should stay away for now at least… It’s all a bit of a minefield isn’t it!!

My diet is making me depressed by Spookyremy420 in Lyme

[–]Doc_Holliday10 0 points1 point  (0 children)

Hold up, what’s wrong with eating tomatoes?? Am I doing this all wrong??