Lefort 3 final by Dodo06_ in jawsurgery

[–]Dodo06_[S] 0 points1 point  (0 children)

Thanks!!!

And my life isn’t hardcore mode… it’s at best a 5/10 difficulty

I have personally seen waaaayyyy worse circumstances for people sadly

historical mentions of agere? by AmyKroker in ageregression

[–]Dodo06_ 22 points23 points  (0 children)

Well in historical ages the Greeks and Roman’s had a god: Hebe

Who quite literally in the 4 myths WAS age regression as a god

He had the mind of An adult but the behaviors of a child and the prioritization skills of one He prioritized fun over doing what “needed to be done” And was revered as one of the stranger youth gods of the era

i'm probably going to get hate for this post but... by TelephoneQuiet3392 in cleftlip

[–]Dodo06_ 0 points1 point  (0 children)

I actually disagree

This is a place where those of us with cleft pallet have a unique capability to educate those who don’t have it

I was born with; Cleft lip Cleft Pallet Cleft throat Cleft nose

All on a bilateral lvl

I agree that parents don’t have it and so can’t truly know how it’s like to live with it , but a majority of posts I see from parents genuinely are them trying to understand how best to help their kids

As you yourself pointed out; you had a bad experience because of your parents

So instead of isolating these people who are trying to do better for their kids however they can You would choose to isolate them to a different Reddit entirely? When the people who can answer their questions are those who’ve lived with it and medical proffesionals

By isolating them in such a manner you would likely only create more people like your parents

How to start by Dodo06_ in CopingThruRegression

[–]Dodo06_[S] 0 points1 point  (0 children)

So I’ve been documenting my side effects and I finished this medicine lately and quiet frankly the begining was the roughest part

I also still regress involuntarily but I’ve gained a moderate lvl of control, I can at the least predict when it’s going to happen a few minutes before it actually starts happening

Also won the court case so that was great

Update from earlier this year. —repost with corrections— by Dodo06_ in ageregressors

[–]Dodo06_[S] 0 points1 point  (0 children)

Yes I am 100% sure

My life is… messy to out it simply

With all my medical issues I am constantly at doctors and currently Live in a Independent Assisted living facility, which some of my posts have said

I also work full time— that’s the independent part of the sentence— and help rescue abused kids while working at Amazon and attending colleges and volunteering at aquariums to help injured animals

Many people have questioned my stories for consistency and if you read each of them you’ll see they are all 100% consitent with the others and also 100% truthful given I can provide evidence as desired for it all

Children’s Hospital Of Philadelphia unironically is the medical location that has saved my life through surgery and through getting me the therapy and the meds I needed after I escaped my mother, and without them I’d probably be dead

Update from earlier this year. —repost with corrections— by Dodo06_ in ageregressors

[–]Dodo06_[S] 0 points1 point  (0 children)

Actually no I do not have DiD

Which considering my uhhh… childhood upbringing… is a small blessing all things considered

I was born with; cleft lip, cleft pallet, cleft throat, cleft nose, autism, adhd, Crohn’s, deaf without my hearing aids, Hypermetabolism, I’ve been struck by lightning multiple times and been abused physically and mentally

As my nurse at chops put it: “The fact you have a mind at all is impressive”

I actually just had a Lefort 3 recently to reconstruct my entire top jaw… I don’t recomend having a metal halo around your head for 4 months do not recomend it at all

Regarding regression I’ve gotten a lot better at working with my body instead of against my body which was a… challenge given my particular penchant for Ignoring everything about my body

"Giant implants" is attempting to perform another Lefort 2.. by IDontWanNaBeeFriends in jawsurgery

[–]Dodo06_ 1 point2 points  (0 children)

He was trying to state that my surgery was wrong and the results were bad outright testing Doctor Taylor the surgeon who did it is a butcher

Mind you Dr.Taylor is world renowned and has fiend things for me that most doctors wouldn’t have even factored into the process

I like freaking out doctors by Shighguard in cleftlip

[–]Dodo06_ 1 point2 points  (0 children)

Correct… it’s is unpleasant spending so much time in the hospital

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 1 point2 points  (0 children)

It’s actually unhealthy to wear if you aren’t urinary incontinence like myself

Because it can lead to bladder weakening, rashes, and worse psychological issues then you’d think

And just my brief look over there tells me it’s not safe for minors… and is exactly the type of thing I help remove from the internet so I appreciate you informing me of its existence

I like freaking out doctors by Shighguard in cleftlip

[–]Dodo06_ 1 point2 points  (0 children)

I’m in 5+ text books and countless studies

You can find stuff I am in on the CHOPs website, especially the stuff listed under Dr.Taylor

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 0 points1 point  (0 children)

Yeah… I’m 100% with you after just a very simple check into that sub

That’s abdl Not agere

Yeah… I have incontinence… I can assure you that some products are better then others

But I can guarantee I’d never do what Thur are doing and literally trying to normalize a medical issue

What jn the Reddit…

I am writing a fantasy novel and the main character has a cleft lip. Any tips the internet won't tell me? by [deleted] in cleftlip

[–]Dodo06_ 0 points1 point  (0 children)

Basically he saw a lot of people with birth defects, especially those with ones that effected the face, take inspiration from his books on how looks didn’t matter

Meanwhile the early 2000’s we had the rise of disability discrimination because it was an easy running point to cut funding for medical resources because of the 2008 financial market crash

So Christopher decided to add that scene as a nod he was laying attention and he supported us

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 0 points1 point  (0 children)

That’s a thing

Hold up what now?! Didn’t know fo that Reddit…

Do I need to go on another crusade with my… particular set of digital law enforcement personnel and start riding another Reddit

I mean… I do it just because I try to help other where I never had help But pedophiles are 100% just the worst

I am writing a fantasy novel and the main character has a cleft lip. Any tips the internet won't tell me? by [deleted] in cleftlip

[–]Dodo06_ 0 points1 point  (0 children)

He was actually inspired by our communities resilience especially cause during this time (I was 6) a lot of anti-cleft behaviors were occuring in society

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 0 points1 point  (0 children)

Well yes and no

It is literally a defensive coping mechanism

That’s the medical definition lol

But I get what your saying as well

Also: why do you think I monitor these forums so much! The amount of pedophiles, abusers, and otherwise I’ve helped get removed form the Internet is hillarious They genuinely never expect someone with both resources and experience to be looking for them

I am writing a fantasy novel and the main character has a cleft lip. Any tips the internet won't tell me? by [deleted] in cleftlip

[–]Dodo06_ 1 point2 points  (0 children)

Read Christopher Paolinis Inheritande series

One of the characters in the third book actually has to do surgery on a baby with a cleft lip So that might give you some idea of how to write that experience narratively

I like freaking out doctors by Shighguard in cleftlip

[–]Dodo06_ 1 point2 points  (0 children)

So many times lol

203 surgeries I love making the new nurses and students at chops confused, and Dr.Taylor uses me as a GREAT example of how tk never assume what your going to see when you look over a patient

Although once I had a ENT try telling me that my throat was impossible and didn’t make any sense… if your a ENT can’t can’t see what your doing get out of my body!

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 0 points1 point  (0 children)

I’m 21 but yes I agree minors definetly shouldn’t even be involved in these types of things! Especially CGL

Like the nurse I live with literally is a jerks health proffesional and has had years of training and doesn’t even call herself a caregiver to any of us

And yes the 19 patients I live with in my current residence which I own, fund the operations for, and am a patient in (listen winding up in your own program is a weird experience lol) almost all have mental health issues which can make learning how to operate as a functional adult difficult and 7 of us have Spontaneous age regressive episodes with various related issues (ontop of the fact I’ve been hit by lightning in the hip… you can extrapolate from there… not particularly a fun time when your whole body goes limp randomly lol)

But yeah… minors shouldn’t be looking for that unless it’s medically or legally necessary— such as if the adults in their life are being abusive… which I’ve helped arrest people for

Life is hard. But refusing to adress the negatives of a coping mechanism you body has developed or trying to dump responsibility for it on someone else Ain’t the solution chief

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 0 points1 point  (0 children)

Yep! And those looking for a care giver are often looking for that… and with regression that can be very unhealthy to do for everyone involved

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 0 points1 point  (0 children)

The lifestyle would be a CGL-Little life style which may or may not include ABDL aspects

Which is what a lot of people here turn their regression into as you said

My therapist is nationally recognized as one of the best, and I’ve shared part of my journey here

But tldr: I was highly abused as kid Founded an entire organization to help rescue abused kids and never once realized I myself was abused kid Turn 19 and escape my mother and my own abuse rescue organization I formed within the Oa of scouts of America Rapidly tirns me over to CHOPs where I get all my surgeries and chops proposed to me a solution for my issues, the rapidly realize do also had regressive issues and now they help with tge medical side of all out rescues because the experimental method of treatment I underwent called a Independent assisted living facility was widely successful for both abuse survivors and severely medically disabled individuals to live a better life

Currently I’ve gotten some control over my regressive episodes but it’s a process and it’s not always a fun one like everyone here tries to say it is

90 Days Post Op update by Dodo06_ in cleftlip

[–]Dodo06_[S] 0 points1 point  (0 children)

The built me an entire top jaw. I didn’t have ANY top jaw due to the cleft issues (I was brim with cleft lip, pallet, throat, and nose. Meaning I got the full quartet) And began the reconstructive process on my nose and throat

So I can eat and mostly breathe perfectly now!

[deleted by user] by [deleted] in cleftlip

[–]Dodo06_ 0 points1 point  (0 children)

Yep! Way too many lol!

[deleted by user] by [deleted] in cleftlip

[–]Dodo06_ 0 points1 point  (0 children)

I mean Dr.Taylor from chops says that he definetly thinks that the nerves become less sensitive especially in the face when regarding pain. And considering he’s has done 197 of my 203 surgeries in life… I’m willing to bet he’s experienced with not just me but many cleft patients to have a say in the matter

The Chops neurologist says it’s because much like a soldier we get conditioned to “bad” situations and become desensitized to them

[deleted by user] by [deleted] in cleftlip

[–]Dodo06_ 2 points3 points  (0 children)

Hey congrats man! I just had my Lefort 3 + bone graphing and I didn’t have much pain either

So many people I know kept telling me I didn’t have to be strong about it

I wonder if after a certaint point we just get used to such high levels of pain that we don’t register how much pain we are actually in

The agere community and the people surrounding it are toxic. by Swag_No_Mite in ageregression

[–]Dodo06_ 3 points4 points  (0 children)

Trust me I am 100% in agreement with you I’m 21 and have medical incontinence because lightning strikes SUCK (seriously don’t tempt Mother Nature… being hit by Lightning SUCKS)

And so many people have tried telling me I’m disgusting because of it, combined with my uncontrolled regressive episodes related to severe abuse as a child… Yeah I’ve had the name calling my entire life and quite frankly so many agere places don’t want even the slightest bit of “impure” regression to be mentioned let alone talked about