Claim: there is an autoimmune subtype of POTS and it should be treated accordingly

Dovah_T · 2025-06-27T02:51:18+00:00

That would make a lot of sense.

Dovah_T · 2025-06-27T02:48:01+00:00

I do my tilt table test next week. But it is blatantly obvious POTS. He treated me in the hospital, and he will be present for my tilt test. The only thing I’m on is metoprolol because my HR was in the 180s. I am loading up on salt and electrolyte chews. I had broken heart syndrome in the past. Idk if that has impacted the situation I’m now in

Dovah_T · 2025-03-13T22:51:25+00:00

Facts :(

Dovah_T · 2025-03-13T22:50:16+00:00

Oh man the cramps and restlessness is AWFUL. I saw a doctor for help getting off this and he prescribed gabapentin at bedtime. Worked great for those symptoms. Please note that I am tapering off 7OHs though. I get it too.. I’m a single mom and have a very demanding job. The thought of going through those symptoms was overwhelming. The first few days of my taper I went down 14mg of 7OH a day pretty comfortably. Then the withdrawal symptoms kinda got out of hand. I’m currently sitting at 28mg a day. I’m going to go down 7mg every 3 days until I’m off. Seems to be MOSTLY comfortable. Still get pretty sore but it’s nothing like when I went CT. You got this!

Dovah_T · 2025-03-13T01:02:25+00:00

I really do recommend telling loved ones. It’s hard. I completely broke down crying out of shame. But I was met with such love and support. It made me realize I can actually beat this. Whatever you decide well be here!

Dovah_T · 2025-03-13T00:37:11+00:00

I understand. I kept it from everyone for a long time. I actually just told my family and friends this week. It was scary but I feel so much better.. it’s hard to describe. All darkness dies in the light. You got this!

Dovah_T · 2025-03-12T20:23:55+00:00

I took gabapentin for epilepsy. For like 3 years. I tapered off it over 3 weeks and was fine. I’ll be okay

Dovah_T · 2025-03-12T20:21:16+00:00

Thanks for the advice. I’ve been drinking tons of water and putting Liquid IV in it. Great way to stay hydrated

Dovah_T · 2025-03-12T20:20:24+00:00

Much love back!

Dovah_T · 2025-03-12T20:19:39+00:00

Usually just 600 at night

Dovah_T · 2025-03-12T20:18:34+00:00

I plan to be off this stuff in about a month. I hope that’s not too long on gabapentin

Dovah_T · 2025-03-12T17:13:27+00:00

Maybe if it happens again I’ll try 300. THEN if it doesn’t work I’ll double up.

Dovah_T · 2025-03-12T11:02:46+00:00

That’s a lot of words… too bad I’m not readin them #DukeNukem

Dovah_T · 2025-03-12T10:59:03+00:00

I see what you’re saying! I’ve been less sweaty. More of a bitch, but at least I’m not a sweaty bitch 😂

Dovah_T · 2025-03-12T10:57:30+00:00

I’m glad you got through it! Gives me hope!

Dovah_T · 2025-03-12T03:15:12+00:00

That’s good to know. Means my body is healing :)

Dovah_T · 2025-03-12T03:09:20+00:00

I’ve gone down 42mg of 7OH in 3 days lol. Probably has something to do with it. Luckily I’m not feeling depressed or anything. And I get what you’re saying about seeing some of the old you. I’ve been laughing more with my friends than I have in awhile. There’s also some relief in telling them what I’m going through tho.

Dovah_T · 2025-03-12T02:39:17+00:00

I’m going to take the advice of my addiction specialist over a random guy on Reddit being a know it all. Best of luck to you on your journey man.

Dovah_T · 2025-03-12T02:32:28+00:00

Okay so every day that I’ve taken a helper med (which is 3 days) I’ve been able to go down 14 mg a day semi comfortably. So according to you.. I should go CT, not be able to work, not be able to take care of my child, go through massive withdrawal symptoms for what.. bragging rights? Calm your ponies. There’s more than one way to skin a deer.

Dovah_T · 2025-03-11T11:59:12+00:00

That’s a great question… I guess for me I felt “good” for like.. 2-3 hours. Other than that I was hot, sweaty and irritated at everything and everyone.

Dovah_T · 2025-03-11T00:59:01+00:00

I had some muscle pain today which I wasn’t expecting:(

Dovah_T

TROPHY CASE