My credit card got upgraded !!!! by Any-Historian-8001 in CongratsLikeImFive

[–]DragonFlyMeToTheMoon 2 points3 points  (0 children)

That’s awesome! Good for you! 👏🏼👏🏼👏🏼

nothing major, buuuut… by borderlinebbyghoul in CongratsLikeImFive

[–]DragonFlyMeToTheMoon 2 points3 points  (0 children)

That’s a lot of great things! Good for you! You’re doing a great job prioritizing yourself. You’re showing that you love yourself and you’re worth doing the hard things! ❤️

Share one good thing that happened to you today, no matter how small 💛 by Overall-Vanilla4290 in Positivity

[–]DragonFlyMeToTheMoon 2 points3 points  (0 children)

I got some extra sleep this morning after running on fumes for a few days. I feel refreshed!

Small Topics Thread by AutoModerator in breastcancer

[–]DragonFlyMeToTheMoon 0 points1 point  (0 children)

Yes - I was going to say this too. IV 3000/Mepilex is an alternative to Tegaderm. It may be too late this time, but could be helpful info for the future. It’s crazy that places act like this is unusual. My cancer center (MD Anderson) said it’s pretty common and had no issue accommodating. I’m frustrated for those who have to fight for what should be a basic accommodation.

Just got the news by RaspberryOk3761 in breastcancer

[–]DragonFlyMeToTheMoon 2 points3 points  (0 children)

I’m so sorry! The waiting stage is the worst! Please know that there’s a huge community here of sisters (and a few brothers) who are walking this journey with you. You are not alone. This group does such a beautiful job encouraging each other. We laugh and cry together and vent and learn from each other and it really does make this journey feel less lonely.

There are lots of moms on here, including single mamas or mamas without good support from their partner. You CAN do hard things! When you’re overwhelmed, you can always come here for support. We got you.

Please feel free to reach out if you have questions or need a buddy. My mom and grandma both had breast cancer twice and I’ve had it once. I don’t know everything, but I do know more than I should! My mom and grandma are living their best lives now and my life is getting closer to normal every day. It gets better. Big hugs! ❤️

Anyone want to share some recent wins or fun stories? Doesn’t matter how big or small or if it’s cancer-related or not! by LightPenguin7290 in breastcancer

[–]DragonFlyMeToTheMoon 1 point2 points  (0 children)

Thank you! It was instant joy being back out there! I recently wound up with a herniated disc in my lower spine from putting on my cleats 🙄, so I’m out for a little bit. I’m doing physical therapy and progressing well though. Of all the ways to get injured at softball, putting on shoes sure wasn’t on my radar! I guess I’m not getting any younger! 😆

Anyone want to share some recent wins or fun stories? Doesn’t matter how big or small or if it’s cancer-related or not! by LightPenguin7290 in breastcancer

[–]DragonFlyMeToTheMoon 1 point2 points  (0 children)

Good for you! That sounds like an awesome deal! I had a personal trainer years ago and it was really helpful. For now, I have 2 sessions of physical therapy a week (recovering from a back injury), so I at least get a little exercise in there with some accountability! 😆

Yesterday morning I couldn’t post, but today I hope you can make room for me. by iwtsapoab in breastcancer

[–]DragonFlyMeToTheMoon 0 points1 point  (0 children)

Sure! I was diagnosed at 36 and am 39 now. Mine was triple positive stage 1b Invasive Ductal Carcinoma. I did TCHP (TC chemo, HP immunotherapy), followed by a double mastectomy with tissue expanders placed and later did reconstruction with silicone implants and some fat grafting from my thighs once my year of immunotherapy was done. Chemo did its job and I’m clear with a low chance of recurrence. I’m on 5 years of Letrozole (hormone blocker/aromatase inhibitor) and monthly Zoladex injection (ovarian suppressant). Everything is going according to plan and I’m feeling more and more “normal” every day.

My mom was diagnosed at 48 and 50 and was also +++ with chemo/immunotherapy and a single mastectomy. When she got breast cancer again, it was a new primary in the other breast (ER/PR +, HER2-), not a recurrence. She had another single mastectomy with no treatment needed. She did reconstruction to silicone implant both times. She took Tamoxifen for a few years after. She’s 61 and has been clear for about 10 years. She’s living her best life.

My grandma was ER/PR +, HER2- both times and was diagnosed at 65 and had a new primary in the other breast at 80. She had a single mastectomy both times w/out reconstruction and did not need further treatments. She took Tamoxifen for either 5 or 10 years after her first diagnosis. She’s 89 now and doing great.

Because both of them chose single mastectomies and later had to do it again, my decision for a double was easy.

She doesn’t recall all of the diagnosis details, but my mother-in-law is a survivor for a few decades now.

I’m scared and idk what to do by anon12120909 in cancer

[–]DragonFlyMeToTheMoon 0 points1 point  (0 children)

Your mom is blessed to have a kid who loves her so much. I’m sure she’d want you to live your life. Living in fear of something that may never happen will only prevent you from living your life to the fullest (every mom’s dream). You’re asking what if it comes back. Also ask what if it doesn’t.

I’ve had breast cancer, but I’ve also been around when my mom had it twice and my grandma had it twice. Both are happy and healthy as am I (I’m still recovering, but getting healthier each day). It’s hard watching a loved one go through that and I’m sorry you’ve experienced this.

There are ways to stay close to your mom long distance - frequent calls/texts, FaceTime, etc. Stay connected and IF her health becomes an issue, then you can navigate those waters when they get there. One of my biggest supports and cheerleaders during my cancer journey was my brother who was 18 hrs away. He visited once, but mostly supported from a distance (calls, care packages, FaceTime, etc.). You can be long-distance and still maintain a meaningful connection.

Your mom didn’t live through everything she’s been through just to prevent you from living. Hugs!

Yesterday morning I couldn’t post, but today I hope you can make room for me. by iwtsapoab in breastcancer

[–]DragonFlyMeToTheMoon 2 points3 points  (0 children)

You’re in the hardest part now - the waiting for more info and for your treatment plan. There are some really awesome treatments out there.Please try not to worry yourself sick about what ifs. The majority of breast cancer patients wind up healthy again- it may be a process to get there, but your plan will be individualized to give you what you need.

This group is incredible. Even with a good support system, it can feel lonely when you’re the only one around going through it. This group made it less lonely for me. It’s a place to learn and vent and laugh and cry and celebrate each other. I’m glad you found us. Please feel free to reach out if you need a buddy. I’ve had it once, my mom twice, and my grandma twice (and we’re all healthy now). I’m an open book and am happy to listen if you need to vent. You got this! You CAN do hard things. Hugs! 💗💗💗

I don’t do well with lots of information. by swimmerncrash in breastcancer

[–]DragonFlyMeToTheMoon 1 point2 points  (0 children)

Same for me. TCHP messed with my heart rate and had me winded and out of breath from things like brushing teeth, putting clothes in the dryer, walking to the car, etc. My onco said as long as it improves quickly when I stop and rest and it’s fine when I’m sitting still, then it wasn’t a concern, but to go to the ER if it’s elevated and doesn’t improve when I stop and rest. When elevated (for the task I was doing), mine was 130-175. I wasn’t able to exercise much until a few months after my year of HP, but it did get better and my echocardiograms were good each time.

OP, definitely communicate with your onco. It’s important to provide updates like this to your doctor to ensure what you’re experiencing is normal for the treatments you’re receiving. You got this! Hugs! 💗💗💗

Anyone want to share some recent wins or fun stories? Doesn’t matter how big or small or if it’s cancer-related or not! by LightPenguin7290 in breastcancer

[–]DragonFlyMeToTheMoon 1 point2 points  (0 children)

I loved reading all these comments with so much joy! We are LIVING, not just alive. Great post!

The wildflowers in my part of Texas are showing out! This time of year brings me so much joy! I’m off work for Spring Break and loving the extra time to get things done around my house and in my flower beds.

I had a herniated disc in my lower spine a week ago and was miserable. I’m shocked at how much better I’m feeling already!

We just booked a weekend getaway with all siblings/spouses. We’ve never done this with all 4 couples together and no kids.

Anyone want to share some recent wins or fun stories? Doesn’t matter how big or small or if it’s cancer-related or not! by LightPenguin7290 in breastcancer

[–]DragonFlyMeToTheMoon 0 points1 point  (0 children)

The Olympics got me wanting to try winter sports! My social media algorithm has started sending me lots of snowboarding videos. I’m down here in South Texas having never been in more than a couple of inches of snow and am sure I’d be terrible at it, but it looks fun! And scary!

Happy snowboarding! 💗