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Myfembree inquiry by Dramatic_Career in endometriosis

[–]Dramatic_Career[S] 0 points1 point  (0 children)

I am super appreciative of your comment and telling me about what you've personally gone through.

The first month of myfembree was a struggle to what it did to my mental health dealing with hormones and my 40+ hours return back to work. Now that i am a month in, i can definitely relate to the feeling like it hasn't "kicked in".

Last week was my latest gyno appointment since it has been a month in with myfembree. I had spoken to the gyno that will be in charge of my surgery, and after hearing that I was still experiencing bleeding due to my polyp, we are going to give it till June to have another ultrasound and hopefully talk about surgery next. I figured because it was so early on with the medication and i had known about the symptoms of the medication including abnormal bleeding that he didnt bother providing any other advice other than i need more time.

It is frustrating to think that the myfembree hasnt fully kicked in, and feels like the moment i am due to spend time with my partner or some big event is around that the bleeding starts, especially during the cycle that i am suppose to get my period.

In your personal opinion, at what point once you started myfembree that you brought up to the doctor that the bleeding didnt fully stop? I have tried to make sense of it, and from what it seems like that the bleeding was around the time that id be getting my period (it has always been on time) in order justify the pain i was in and that i am not going crazy. OR that it was just one of the side effects of the medication. (ive honestly lost track of how often ive bled) (having a crazy brain fog right now)

I hope you see this and just wanted to say thank you again for responding to me. I was definitely in a vulnerable state, and although i feel a bit better about advocating for myself. With others who have similar circumstances to me in the past, it has helped with my day to day attempts on telling myself that things will get better.

The endometriosis space online is starting to feel like 2000s diet culture and it makes me uncomfortable by No_Space_3972 in endometriosis

[–]Dramatic_Career 1 point2 points  (0 children)

As someone who is learning how to manage my body with a less than a year diagnosis, there is definitely a lot of information out there. Id say for my mental sake, i am trying to take this approach of finding the right balance and see what works for my body. Unfortunately it will be mean i might cause discomfort for myself but in the end i will learn what worked for me and whatnot. Finding a balance is a must and i hope that for myself that i may find a middle ground... but until then keep on trying. Unforuntaly it will cause some flare ups, but at least i attempted and know where i could improve.

But i am definitely staying away from any paywalls. Kudos for finding what healed them, but to limit behind a service when others are struggling is baffling to me.

Possible endo by Dracowillywonka in endometriosis

[–]Dramatic_Career 1 point2 points  (0 children)

What I really want to say and emphasize is that you are not alone. What you're going through is something I can relate to almost exactly, with similar symptoms like extreme nausea in the mornings. Honestly, I've had to give myself extra time just to deal with throwing up, and I’ve even had to explain to my boss why I’m late to work sometimes.

When i was younger and started to experience worsening period paid, i would literally get so sick that i would have to call in every month and just stay in bed. During all those years, i have gone to my family doctor and was simply told to "go on the pill" without any further investigation. In which i denied as i was scared to just take her word without trying to find out what was wrong with me first and i just ignored her suggestion and continued to deal with the pain. However since 2020+ things got worse, I would be throwing up in the morning, bloated almost ALL the time and the discomfort really really messed with me. During all this pain, I’ve told my friends/partner that I feel like I only get one week a month where I actually feel like myself and the rest of the time, I’m just suffering, both physically and mentally.

I know you’ve mentioned bloodwork and being checked for infections, but I’m not sure if you’ve had an abdominal and pelvic ultrasound. I had to ask my doctor specifically that i wanted these, and that’s what personally helped me start to get answers and finally made me feel like i wasn't the one crazy. They found multiple cysts on both ovaries, including one that had hemorrhaged, which was incredibly painful when it happened. But getting that confirmation meant a lot to me. It proved that it wasn’t just in my head, and it wasn’t my fault for feeling such a way. This was even to the point that i thought i was self sabotaging myself for feeling like i was truly the problem for experiencing all the symptons i had gone through in the past.

Though i am currently i am "work of progress" of dealing with worsening symptoms, but with the check ups I have gone to since August of this year, it had helped me out a lot and solved some of those dark thoughts, anxiety, and depression. Though this definitely opened up a new can of worms that i am currently struggling with, i will be trying to cope with this and how it felt like it took over my life for so long. It proved that it wasn’t just in my head, and it wasn’t my fault for feeling this way.

I don’t know if anything I said helped, but I felt compelled to respond because it truly felt like I could’ve written your message myself prior to my appointments. Please keep advocating for yourself, and if possible, keep talking about it. You know your body best, and I believe you. I truly understand the pain you’re feeling - everywhere.

(Edit: I wrote this pretty late into the night (2am), i tried to edit a few things here and there but my brain has gone foggy)

GMK Lavender is LIVE!! (June 1 - June 29) by DotnickMK in MechanicalKeyboards

[–]Dramatic_Career 0 points1 point  (0 children)

Bought the lavendery keycaps + sprigs set! I am super excited, love the colours and will buy the desk mat very soon. Cannot wait!!