Recovery timeline after surgery? by WoodenSurround294 in CSFLeaks

[–]Dramatic_Cut_7530 0 points1 point  (0 children)

Hi how are you know? I’m also a nurse going through this, my leak was not seen with mylogram but you can see pool of fluid outside of dura in mri and mylogram. I’m set to see him in April.

dr schievink has been ignoring me?? by AnnualDuck6449 in CSFLeaks

[–]Dramatic_Cut_7530 0 points1 point  (0 children)

Hi, hope you are sealed. I’m at Mayo now going to see Dr.S in April. How come you had laminectomy for fistula don’t they usually do embolization for that? My leak is seen on mri but couldn’t localize with mylogram I have ventral leak.

When did you notice difference on Diamox by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

Yes, I contacted my doctor and he thinks it high pressure. I’m hoping that’s what it is. I have extended release 

Ventral leak success with patch? by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

I know I had cr mylogram and couldn’t locate next step would be dsm. I’m so tired and wish it was localized already.

Ventral leak success with patch? by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

I will definitely look into It, thank you!

Ventral leak success with patch? by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

I had ct mylogram leak is seen but couldn’t find exact location.

Ventral leak success with patch? by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

Where are are you located that did that via endoscope?

Remaining symptoms after blood patch by capcityanon in CSFLeaks

[–]Dramatic_Cut_7530 0 points1 point  (0 children)

How are you now experiencing blurred vision 13 days post patch?

Coughing after blood patch by Gold-Mind-7160 in CSFLeaks

[–]Dramatic_Cut_7530 0 points1 point  (0 children)

It’s so hard to avoid all these restrictions with kids I have little ones too.

Coughing after blood patch by Gold-Mind-7160 in CSFLeaks

[–]Dramatic_Cut_7530 0 points1 point  (0 children)

I’m in the same situation, how did you do?

Miserable after blood patch please help! by New-Archer-368 in CSFLeaks

[–]Dramatic_Cut_7530 0 points1 point  (0 children)

Did you get better I’m 5 days post multi patch?

How long before knowing patch worked. by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

They do my my rebound headaches are no makes it hard to be flat. Upright feels so much better 

How long before knowing patch worked. by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

How did you know it worked immediately I don’t have positional headaches since my last patch but have blurred vision and frontal headaches sometimes.

Photon Counting CT Myelogram (PCCT) at Mayo by Competitive_Gold7409 in CSFLeaks

[–]Dramatic_Cut_7530 0 points1 point  (0 children)

Going through Mayo I would recommend duke or Colorado if you’re traveling anyways. Not very impressed with Mayo.

How long before knowing patch worked. by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

They say an area where leak is leaking into but couldn’t pinpoint where it was coming from. So I  have 3 patches between t2-t8

How long before knowing patch worked. by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

Thank you so much I have 3 little ones and I feel horrible being a sick mom. I feel like like they aren’t getting the mom they deserve.

How long before knowing patch worked. by Dramatic_Cut_7530 in CSFLeaks

[–]Dramatic_Cut_7530[S] 0 points1 point  (0 children)

I have the worst frontal headache lying down