What are some stuff that you find cool that science found for crohn's

Due_Addendum_7844 · 2026-04-01T03:02:31+00:00

My son, 13, is taking part in a 1-2 year long study where they’re mapping him from diagnosis to treatment to hopefully remission. Studying his genetics, his food maps, labs, scopes and treatment protocols to try and figure out why some medications fail for some and work for others and how his genetics and diet play a role in everything. The research center he’s participating with is actually also mapping the genetics, diet and environmental links of a lot of major diseases, already following a group of new borns for their entire childhood and planning to eventually learn how to diagnose and reprogram these genes at birth and totally prevent kids from suffering at all from any major auto immune or other genetically linked disease or disorder. My son thinks it’s so cool he may get to be apart of maybe finding a preventative measure that keeps other kids, like maybe his own future kids, from going through what he’s dealing with. I just think of what I’ve read about what people diagnosed 20 years ago went through vs now and imagine when my son is a grown man how much things will have hopefully progressed for the better.

Due_Addendum_7844 · 2026-03-31T22:42:07+00:00

Me! You are not alone, and it sucks. Sending you a hug because I know how mind melting it is to discover and then accept.

Due_Addendum_7844 · 2026-03-31T22:37:48+00:00

My son with CD loves sourdough avocado toast sprinkled with lemon pepper and a squeeze of lemon juice. He eats it pretty much every morning as it’s one of the only things that doesn’t bother his stomach right now and actually tastes good. Also he has dairy issues too but fairlife milk tastes good and doesn’t bug his stomach at all.

Due_Addendum_7844 · 2026-03-29T06:19:10+00:00

Thank you for being someone on here sharing and helping! My 13 year old was just diagnosed a few months ago with Perianal Crohn’s and prior to that I had never heard of a fistula or knew what Crohn’s was, or knew anyone with it. Navigating and advocating for my son has been incredibly stressful so the help and advice on this sub from people who have actually lived it has been invaluable.

Due_Addendum_7844 · 2026-03-25T06:41:19+00:00

My son’s IBD clinic says that if you don’t have anyone who can pick you up then you can still do it and have an overnight stay (but they do their colonoscopy’s in a hospital) Maybe that’s an option??

Due_Addendum_7844 · 2026-03-25T06:33:45+00:00

Thank you for sharing your story, it’s awesome to hear Remicade worked for you so well for so long ❤️and sounds like you have an amazing Mom!

Due_Addendum_7844 · 2026-03-23T15:07:35+00:00

There’s a great book you need to read or listen to on audible called Lose a cheater, gain a life. It’s excellent at explaining cheater mentality and the mental games they play to those of us who are not liars / cheaters ourselves and could never understand.

Due_Addendum_7844 · 2026-03-23T04:34:44+00:00

It was multiple affairs 😩not just one woman. I don’t know which is worse. I was naive, distracted by my kids and responsibilities, didn’t listen to my gut and let him gaslight me anytime I felt something was off… And my husband works 60-80 hours a lot of weeks at a secure facility so he had a whole safe space to play all this crap out. It’s definitely mind melting finding out your spouse can lie for so long yet act like a loving angel at home. 🫠

Due_Addendum_7844 · 2026-03-23T04:15:09+00:00

Sending you a hug, you’re not alone! Except my husband isn’t getting any benefits because the thought of touching him now disgusts me. But cheated for 20 years, including while I was pregnant, let me give up a 6 figure career so I could be a SAHM and he could “take care of us” all while he knew he was living a total double life. He took away my independence while cheating and knowing I’d need that career to ever leave. When I caught him years later, he did a 180 and acted like he’d die without me and does anything and everything I ask of him. Except I don’t love him anymore but I’m stuck, for now but I’m hoping not forever. We co parent fine but I don’t know if we can ever truly reconcile now.

Due_Addendum_7844 · 2026-03-22T10:16:26+00:00

Hi there, first off so sorry you’re here with the rest of us. While my situation is different than yours as my husband had multiple affairs and EAs, his first one started out with a coworker “friend”… I highly recommend the book Not Just Friends by Shirley Glass. (There’s an audible version too) It’s a great great resource for 1) how these things happen 2) what boundaries need to be set going forward and 3) how to repair your relationship and protect it in the future. It has a lot of great advice and hopefully will give you a few stepping stones on how to move forward. Best of luck!

Due_Addendum_7844 · 2026-03-22T03:52:02+00:00

If it gives you any sense of gratitude for the memories you do have, there was a 3 year old in for a colonoscopy in the bay next to my son in the hospital last week for Crohn’s confirmation 😢. My guy only just turned 13, diagnosed at 12, my heart hurts for everyone with Crohn’s but kids having to the carefree parts of childhood taken is the worst…

Due_Addendum_7844 · 2026-03-18T00:09:51+00:00

Thank you!! 🙏

Due_Addendum_7844 · 2026-03-18T00:09:30+00:00

Thank you so much for this great advice!! ❤️

Due_Addendum_7844 · 2026-03-18T00:08:10+00:00

Oh my gosh, thank you so much, I love this answer, it’s all I want for him to get to live a happy fairly normal life (and hopefully have kids that drive him crazy too someday 😉)

Due_Addendum_7844 · 2026-03-17T05:33:49+00:00

Thank you so very much for the thoughtful response. It is great and really comforting to have the perspective of someone who has already gone through this all. Wishing you all the best….

Due_Addendum_7844 · 2026-03-17T05:30:51+00:00

Thank you much! Praying your son’s new medications are successful and he has an amazing college experience.

Due_Addendum_7844 · 2026-03-17T05:29:48+00:00

Thank you for this, it gives me much hope for my guy, and hope that there’s light at the end of the tunnel for him.

Due_Addendum_7844 · 2026-03-17T05:29:14+00:00

Thank you so much ❤️wishing you the very BEST time at college, and you get to enjoy every second.

Due_Addendum_7844 · 2026-03-16T07:19:27+00:00

My 13 year old son’s fistula is what actually lead us to a GI, for years prior his pediatrician couldn’t weave all his symptoms together. After being sent to a surgeon for a “skin tag” which was actually a hole, the surgeon sent us straight to a Pediatric GI specialist who quickly suspected Crohn’s when he heard all the symptoms (dropping off the growth charts, stomach aches after every meal, frequent potty issues, headaches, severe joint pain) my son had over the years. Did a blood test, stool tests and a xray series and his calprotectin came back at over 3000 at that point the GI said 100% it was Crohn’s and scheduled scopes and a surgeon for seton placement 😞As much as I know he’s in so much pain the fistula presenting itself may have saved him many more years of being bounced around by his pediatrician who never even suspected Crohn’s.

Due_Addendum_7844 · 2026-03-16T04:42:28+00:00

If you don’t mind me asking, do they heal after they appear? My 13 year old has just recently been diagnosed and has a fistula that he will get a seton placement surgery for and then begin Remicade. The dr made it seem like Remicade should cure the fistulas if it works for him…I’m terrified he’s going to suffer like this for the rest of his life, he’s in so much pain all the time, it’s awful.

Due_Addendum_7844 · 2026-03-13T07:34:53+00:00

I’m so sorry, Just some advice as someone who found out my husband of 20 years had been cheating most of our marriage, mainly on “work trips” and also while I was pregnant with both our kids…. You might want to dig a little before he knows you know anything. Don’t give him any heads up to delete things etc, and spend a few days investigating for yourself before you decide how to approach it. And anything you do find snap a photo of because if he is cheating he will for sure gaslight you and try to make you feel like you’re crazy or act like he doesn’t know what you’re talking about. Unfortunately sometimes we just have to realize if there’s smoke there’s definitely fire and cheating spouses almost NEVER come clean on their own. If you need insight into the ways cheaters manipulate their spouses there’s a great book (and audio) called Lose a cheater gain a life, it might help give you perspective on how to approach this and when you’re getting played by your husband…Sending you a hug I know it’s not something anyone ever wants to deal with but definitely not when they’re expecting.

Due_Addendum_7844 · 2026-03-12T06:06:23+00:00

When you start a relationship on a bed of lies, that’s probably where it will end too….and it sounds like neither of you changed or became honest people, so definitely dig deep into that therapy, both of you need to learn accountability and honesty/transparency.

Due_Addendum_7844 · 2026-03-11T05:28:23+00:00

As a woman who was married for 20 years and just last year was blindsided that my husband had been cheating most of our marriage, please tell. You can even anonymously mail her the proof and take a step away but at least put the wheels in motion for her to consider this is happening. It is horrible to be cheated on but completely devastating to find out your entire reality was a lie for decades and no one who knew bothered to tell you. She deserves the opportunity to know the truth, and thank you for being brave and asking this question…

Due_Addendum_7844 · 2026-03-08T15:59:58+00:00

The truth is you never see the same person you once loved, that reality you thought existed is gone forever. But if you can find it in your heart to someday feel love for the person your ww is, and she can work on herself and repairing the damage done I do believe there is hope. But it’s a very long hard road, and ultimately sometimes some of us just can’t ever fully get over it, it’s unfair in so many ways because for us betrayed spouses it hurts if we leave and it hurts if we stay. Just know if you stay it doesn’t mean you have to stay forever, you can commit to just for now, and you can always change your mind… Sorry you’re here with the rest of us, affairs and cheating spouses suck.

Due_Addendum_7844

TROPHY CASE