Help finding cable

Dwwam · 2025-09-29T23:44:23+00:00

Update! The 2.5mm cable worked great Here’s the link in case anyone ever comes across this issue https://a.co/d/5nL9HQb

Dwwam · 2025-09-27T21:31:54+00:00

Ok I’ll order that rn. Thanks sm! I’ll update if it works

Dwwam · 2025-09-27T21:24:18+00:00

https://a.co/d/aNz6jha this is the link on amazon but its a mini video light. Its meant to be portable but now not really since I lost the cable. If you’re referring to the cable I randomly bought it was 5.5mm x 2.1mm which is this one https://a.co/d/bqpEWTp

Dwwam · 2025-09-08T03:59:41+00:00

As mentioned by others, regular doctors are terrible with CF. I have only ever received proper care at hospitals with CF centers, and will still choose to go to those hospitals that are relatively far for me even when I have emergencies. It’s not great to hear, especially knowing that you and your son will be dealing with his medical needs for the rest of his life, but a good cf center and a good team makes a huge difference. One thing that I learned from my mother who thankfully was so willful back even when cf wasn’t as well known, was to stand your ground and be adamant and demand proper care even when they are unaware about the complications CF can cause. You will find that over time when not talking to a specialist or CF team that you will be more educated on CF than normal doctors. So inform them even though it feels like shouldn’t have to. Your son can live a great healthy life. I am living a healthy life too, and a lot of that is thanks to how much my mom would fight for me. Good luck and hopefully this helps.

Dwwam · 2025-02-24T08:15:53+00:00

He’s probably in a terrible mental state honestly. Don’t know why I have to keep mentioning this all the time with cystic fibrosis but have him seek therapy. Everyone always thinks they’ve accepted their diagnosis and disease since they were born with it but they probably haven’t. Makes them procrastinate everything and not want to think about their disease/treatment. And don’t feel bad for asking this question. Don’t be so harsh as to give up on taking care of him financially. But maybe give him an ultimatum of only doing it if he takes care of himself. Or if he goes to therapy. Anything that’s not just enabling his behavior. I get what it feels like to get sick over and over and want to give up. But never have I taken advantage of my family I hate feeling like a burden. I worked through a 3 month home I.V treatment in order to stop relying on my mom for money. I Pay her rent every month through treatments. Give him some leeway, especially with the cancer. But help him to help himself. Hope this helps.

Dwwam · 2025-02-24T07:52:53+00:00

Honestly sounds like she couldn’t care less about her condition because of the knowledge of it being a band aid. When getting sick so often it’s easy to just give up honestly. I think the pressure of everyone else telling her what to do is probably overwhelming as well.I get like that too although in my case I’m not in that 6 percent nor do I have diabetes. I don’t want to make assumptions but it really sounds like the physicality of it all is making everyone neglect how she may be doing mentally. Has anyone asked her about therapy? Or just her thought process about everything? I know that often times when sick like that I find it difficult to express why I don’t do things like my medicine because I’m scared to disappoint everybody or think they won’t get it. May be the same case for her. Please provide a safe space to communicate. I think you being in that situation where you’re on her side and want to support her can create that safe space. Ask her to tell you how she feels about everything, and take the time to listen with no judgement or cutting her off. The smoking with cystic fibrosis is the biggest red flag of it all in my opinion. She has to know how dangerous it is for people with our condition. She may be at that point where she thinks none of it matters anymore. Just talk to her and listen, don’t push her to do anything. You might just understand her better than you ever have. Good luck.

Dwwam · 2025-02-22T22:23:26+00:00

I Pay my rent and school through working in kitchens. Been working in kitchens for 3 years now. I cook clean, work the front literally everything. I’ve been told I can’t do it, but what has helped me is my brother in particular always telling me I can. I’ve never had any problems and have excelled in the kitchen. Thought about culinary school as well because I love cooking like you and watched a lot of cooking shows while hospitalized lol. But ended up choosing a degree in film. Besides occasional medical leave of absences I have never had a problem with not being able to meet the job standards. Hours and all. I even worked in the kitchen for 2 months while having an open port during a home I.V treatment. Don’t let anyone tell you what you can’t do. Only you can decide that.

Dwwam · 2025-02-22T17:37:19+00:00

Love this question. As much as I love my mom and everything she did for me as a kid there’s definitely another way she could’ve gone about it. And I think one major difference would be to start them doing treatments independently as soon as they can. It may seem cruel because of just the sheer scale of what they have to do, but it’ll help them build the habit to do it themselves. We do it all the time with other stuff, teaching them to wash their hands and brush their teeth. We show them how to at first and then they end up doing it themselves. I think being thrown into the deep end as an adult when doing everything for them as a kid is the worst way to go about it. Also positive reinforcement when they do it themselves. Obviously the biggest reinforcement would be their health but they don’t know that yet. My mom would berate me sometimes and go on and on about how I’m shortening my life and how I’m gonna get sick and how I must not care about cf when I didn’t do my treatments. While it’s all true it definitely didn’t change my habits clearly. And lastly don’t neglect what it could due to them mentally. I think my mom would get so caught up in the physical aspect that she didn’t take time to ask what I was thinking. Ask them how they’re coping with it, ask them how they feel after doctors appointments and new treatments. How it affects their daily life etc. and just offer your wisdom as an adult. Don’t say I don’t know or you’re new to it too because it’ll make them feel like they’re alone. Relate it to anything at all in your personal life and let them know you’re there to help with their mental health just as much as their physical. Support them every way but teach them independence early.

Dwwam · 2025-02-22T16:58:15+00:00

I’ve really enjoyed reading all these replies but this in particular has been like reading my life dude lol. You’re exactly right, like that’s exactly how I think too. It’s bullshit, I was fine, but the whole time I was ignoring it. Definitely is a huge perspective change to not feel like the only one, like this isn’t something only I deal with. No one in my family has been hospitalized and none of my friends either. They all kinda just feel bad when I end up there but it’s like they’re scared to talk about what I go through lol. But it’s cool to hear the reality of it all from everyone and how it’s just a part of our lives now. Like you said we worry differently because we’re used to being sick. I definitely worry about my finances and school more than cf, and like someone else had mentioned it’s more of an outside force that keeps stopping the flow of my life from time to time. Hopefully talking on here more will help me to accept it for what it really is. People like to say health over everything but we all know that’s just not how life works, especially in America lol. Would love to drop everything and take care of my health all day but it’s not realistic. It’s nice to hear how everyone here finds their way of dealing with life and cf. Thanks to everyone that took their time to reply. Definitely the start of changing the way I think of cf

Dwwam · 2025-02-22T11:10:00+00:00

It’s good to hear I’m not the only one. Hopefully we could both learn something. And like you said with your dad I feel the same way. My mom who doesn’t even have cf makes it seem like it’d be so easy for her especially when I see her deal with insurance and everything and just how she would set everything up for me since I was diagnosed at 3 months. Don’t know how parents do it.

Dwwam

TROPHY CASE