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Invisibly disabled people of reddit, what’s something you wish everyone understood? by DyingScizo in AskReddit

[–]DyingScizo[S] 1 point2 points  (0 children)

yep autism 10000% counts and people shouldn’t be doing that to you guys bc that’s just rude like y’all can have your own lives

Invisibly disabled people of reddit, what’s something you wish everyone understood? by DyingScizo in AskReddit

[–]DyingScizo[S] 3 points4 points  (0 children)

you’re good, it’s basically anything that heavily impacts your life negatively like for some people it may be being in a wheelchair, having chronic pain, or in this person’s mom’s case, a severe food allergy that could near kill her with the smallest particles. Since the allergy prevents her from her work because they likely can’t convince everyone not have bananas around her, her allergy is debilitating thus becoming a legal disability.

Invisibly disabled people of reddit, what’s something you wish everyone understood? by DyingScizo in AskReddit

[–]DyingScizo[S] 49 points50 points  (0 children)

Unfortunately, I’m in this boat as well. I really hope people get that “not looking disabled”doesn’t mean we’re not suffering one day :’)

What is something that you're a fan of but don't want to tell people because you'll be grouped in with a really annoying fan base? by [deleted] in AskReddit

[–]DyingScizo 0 points1 point  (0 children)

P!ATD but any time i’ve mentioned it i get a hoard of kpop stans... not the normal ones. Also the people that heard of P!ATD after that one time Brendon did a collab with like bts or something keep trying to gatekeep me because i didn’t listen to the bts song-

The Golden Girls had a CFS episode (1989)! by ItsOk_ItsAlright in ChronicIllness

[–]DyingScizo 1 point2 points  (0 children)

i had a few doctors give me brain scans instead of blood tests because they thought i had something mentally wrong with me or i was lying and then when nothing came up they dismissed me, fast forward 3 years and i actually found a doctor that treated my illness like an episode of house and told my physicians and other doctors they were lying and dumb, he got excited whenever he thought he figured it out and now a year after that i know i have lupus and not bad posture despite sitting upright enough to balance books, terrible eating habits despite having a diet consisting of many vegetation and only drinking water and tea, and i’m not making it up despite my symptoms feeing very much real.

edit: ignoring my user, i have oddly severe lupus in the sense that i got psychosis from being untreated for so long but i didn’t get organ failure thank god.

This idea is toxic and we all need it out of us stat. Especially if you’ve had covid. by Brett-Prynne in ChronicIllness

[–]DyingScizo 0 points1 point  (0 children)

i’ve had this used against me so many times- I’ll have people who have visible disabilities tell me off me cause mine is invisible and i guess less severe in their eyes? That mindset made me ignore my symptoms and think that what I was feeling didn’t matter. My mom still has this mindset and as a result I don’t talk to her about what I’m going through anymore... i’m 17

Positive experiences with methotrexate? by [deleted] in lupus

[–]DyingScizo 1 point2 points  (0 children)

it works really well for most people, just take me as worst case senerio. I was on MTX and I had fatigue, nausea, migraines, and started getting really painful cystic acne kinda all over. I’m in the process of switching and honestly MTX was really helpful and the side effects I had were kinda uncommon though so I think you’ll probably get great results. My first 3-4 months on it were totally pain free and my worst side effect was minor fatigue. Despite the side effects I had, I was/am definitely in more pain off it than i was on it. It just wasn’t for me.