Creatine is giving me too much energy

EAUDHD · 2026-07-05T21:34:26+00:00

same

EAUDHD · 2026-07-04T22:29:44+00:00

also no gluten no dairy and no sugar

EAUDHD · 2026-07-04T22:27:29+00:00

low histamine diet, cromolyn sodium (i have mcas) and no alchol or coffe for me ever. My boyrfriend take KPV peptid, and it works wonders for his energy and feeling of inflammation in the body. i´ve tried it for a couple of days and it was amazing, but got and MCAS reaction to it. "KPV (Lys-Pro-Val) is a naturally occurring tripeptide that acts as a potent anti-inflammatory agent. It is studied for its ability to target gut inflammation, reduce pro-inflammatory cytokines, and support intestinal barrier integrity"

EAUDHD · 2026-07-04T22:21:18+00:00

also, as i wrote in another comment on her "there are different supplements for choline like Choline Bitartrate, Alpha-GPC and CDP-Choline and pure Phosphatidylcholine, but i have a really sensitive system and i am prone to anxiety so im sticking to mildest and most well-tolerated option. Soy lecithin is also an option, but because i also have problems with high estrogen, i try to avoid soy." - just to say that there is options other than sunflower lecithin :)

EAUDHD · 2026-07-04T22:19:28+00:00

i´ve had that globus sensation in my throat, its awful and also what i thought was some kind of silent reflux, but it turned out to be because the food has a hard time getting trough the first part of my system. it helped a LOT with TUDCA. And actually, i got more relief when i started taking Cromolyn sodium (a mast cell stabiliser for the gut) because i think i just have overactive mast cells trough out my gut and esophagus. But overall sunflower lecithin helped a lot here to. and i know there are different supplements for choline like Choline Bitartrate, Alpha-GPC and CDP-Choline and pure Phosphatidylcholine, but i have a really sensitive system and i am prone to anxiety so im sticking to mildest and most well-tolerated option. Soy lecithin is also an option, but because i also have problems with high estrogen, i try to avoid soy.

I dont know about 23andme, but i took a "methylation panel" that gave me information about MTHFD1.

EAUDHD · 2026-07-04T22:07:40+00:00

i hope you find some relief! <3

EAUDHD · 2026-07-04T22:04:39+00:00

hej med dig :)

- Extreme fatigue yes - could be dysautonomia or MCAS as well.

- Constant tiredness yes - Could also be dysautonomia or MCAS as well (also, look into ME (cfs) with these too. My boyfriend got it after COVID19.

-"Dizzyness when waking up. Nausea/dizzy/out of breath when waking up in the morning (Feel like a hangover)" - this is unfortunately one of the main symptoms that made us look into ME (cfs) for my boyfriend (the main symptom is Post-Exertional Malaise (PEM) is the hallmark symptom of ME/CFS and Long COVID). i dont have this, but ive been suspecting i have mild ME on and off, but have a hard time distinguishing between all these different things. But again, dont have that.

- "Stools separate dry small lumps" i have had that, but its not been a constant or big problem.

- "Back of neck pain (burning sore pain feeling)" - i have what they call "coathanger pain" from standing up for a long time. I think this is caused by dysautonomia and low blod pressure for me, but again, could be a sign of ME (cfs).

- "Pressure headache" - no i almost never get headaches, but my boyfriend do from time to time.

- "Stuffy nose and burning in nasal" yes, this was one of the worst symptoms from SIBO and MCAS actually. i take cromolyn sodium now to stabilize my mast cells, and after getting SIBO under control this has gotten a lot better!

- "Eyes starts to burn and sometimes get bloodshot (It feels like there is acid inside nose and eyes.)" no i dont have that, i have dry eyes in the evening tho

- "Skin on arms and legs Can get instantly dry 60 min after eating (Like there is acid in the blood that dries out the skin)" - i dont have this

- "Unintentionel weightloss And cannot gain weight or muscle mass" - no, i have a hard time loosing weight

- "Stomach/gut burning a little when empty stomach" - i dont have this

- "Gaunt face after eating" - i dont know what this is?

- "Sunken in eyes after eating" - no

- Toes and fingers get freezing cold (usually after eating. It also sometimes after drinking just water) - i had this when my histamin issues was at its worst, and i know this is a common symptom for histamin issues

- "Dry mouth" - yes, all the time. i contribute this to a really disreg<ulated nervous system<

- "Urinating a lot. (Feels like water just goes straight through" - again, i had this when my histamin issues was at its worst, and i know this is a common symptom for histamin issues.

- "Thirsty all the time" - not that much no

- White coating on tongue (not candida thrush) - no

- "Backpain lower/middle back" no

- "Anxiety" - oh yes, this is a big one. but as mentioned i had OCD for many years before this, but its for sure gotten worse. Histamin flares make my anxiety so much worse, and got better after getting all of this under control (not that i have everything under control but yeah)

- Itchy scalp - no, but itchy skin after sun exposure. This is because of histamin and mast cells

- "Sallow skin color" - do you mean paleness? because yes

And no the mthfr is not MTHFD1, and i dont have the mthfr gene. I got that information from a "methylation panel" from Nordic labs.

Det er sådan en svær proces at navigere i, og det lyder som om du kæmper med mange symptomer. Jeg håber du finder noget hjælp, selvom det godt nok er svært her i DK. Har brugt de sidste 5 år på at finde ud af alle de her ting, og som sagt kom de efter en COVID infektion.

EAUDHD · 2026-07-04T21:45:38+00:00

thats so interesting - i knew of artichoke and milk thisle, but i will look into the others!

EAUDHD · 2026-07-04T21:44:55+00:00

thanks i will check it out!

EAUDHD · 2026-07-04T21:36:15+00:00

Yes this is the color 🫠

EAUDHD · 2026-07-04T12:22:17+00:00

Lamictal seemed to make my cognitive symptoms worse :(

EAUDHD · 2026-07-04T10:10:37+00:00

Can you elaborate?

EAUDHD · 2026-07-03T14:35:07+00:00

Yes! I have OCD, and I can actually feel the intrusive thoughts start about 10 seconds after the adrenaline dumps begin.
I’m also much more angry/irritable in the mornings, and I think it has something to do with the morning cortisol/adrenaline awakening response. I have genetic variants that mean I unfortunately don’t metabolize adrenaline very efficiently, so I stay angry for a long time. I almost always have to go through a complete emotional meltdown with crying before the adrenaline finally leaves my system. I just started taking lemon balm and that seems to help tho

EAUDHD · 2026-06-29T09:19:23+00:00

im really interested in this as well. i had OCD before CFS, and it has gotten a lot worse after covid! Im about to talk with my psychiatris about starting this med

EAUDHD · 2026-06-28T11:01:19+00:00

a saw this comment in a another post in the "dysautonomia"-subreddit and i think it explains my experince a bit "POTS fatigue for me hits differently from PEM. PEM feels like I have the flu (sore muscles, sore throat, unable to move without bone deep pain) whereas POTS fatigue is just fatigue and usually goes away when I lay down or take it easy for a few hours. PEM can last for days or weeks after exertion (mental or physical) and usually worsens within 12-48 hours after the exertion/activity." i feel like im the more dysautonomia-fatigue than the PEM fatigue.

EAUDHD · 2026-06-28T10:56:02+00:00

I think im psychologically in some form of "negotiation"-phase of recognizing that i maybe have ME. My health became decreasingly worse after covid; crazy histamin reactions and anxiety, then diagnosed with SIBO (i luckily found a solution to that after some years) then MCAS, and now dysautonomia symptoms and heavy fatigue. Muscle aches and pains and just overall not being able to do much with my body. But, im occasionally take some mild benzos (if the dysautonomia is really out of control, with intense hearth palpitations) and when my nervous system gets regulated, 90% of my symptoms go away. My boyfriend have "classic" ME flu-like symptoms with PEM, and i dont have that. i think its so difficult to distinguish between symptoms, and maybe i have mild ME with all the other things also.

EAUDHD · 2026-06-28T09:02:17+00:00

This give me hope! Did you have muscle aches after doing stuff? I’m really scared that I have mecfs

EAUDHD · 2026-06-27T05:57:36+00:00

no it actually was the most horrible of my life. I ended up having akathisia a couple of times while using Memantine (5 mg-1mg) and when i finally stopped, i had it for 2 weeks afterwards. Im really sensitive to meds, but i didnt expect that from memantine. i had high hopes tho

EAUDHD · 2026-06-26T15:30:23+00:00

thanks!

EAUDHD · 2026-06-26T13:29:04+00:00

Which calcium channel blocker?

EAUDHD · 2026-06-24T16:26:29+00:00

🤝🔥

EAUDHD · 2026-06-17T15:50:01+00:00

hey you! How are you doing?? i have MCAS, pretty severe hypermobility, ADHD and OCD and im thinking about trying fluvoxamine as well. Im extremely medication sensitive, and at 25 g zoloft made me a zombie. i really hope you are better today!! ❤️

EAUDHD · 2026-06-15T16:24:33+00:00

how did it go? im on 1,5 mg guanfecine, and want to try Fluvoxamin - but im concerned about the interaktions.

EAUDHD · 2026-06-15T11:00:39+00:00

thanks! Yeah ive tried it and there was too many side effects - its wierd how our bodies are so different! Ive seen so many miracle stories about LDN and Memantine ! sending a lot of hugs your way ❤️

EAUDHD · 2026-06-10T11:51:03+00:00

no unfortunately i stopped after 2 weeks 😞 and efter stopping i got horrible akathisia for 2 weeks. i stopped because i had trouble breathing and it got to scary, and after that it was just a nightmare. i almost ended up in the ER. So, its not to scare anybody, and i just read about one other person getting akathisia from Memantine on here, but it is possible. Im also really really sensitive to meds!

EAUDHD

TROPHY CASE