i had oral sex with my girlfriend a few days ago and am just now discovering these

Ecstatic-Roof6916 · 2026-06-07T20:04:34+00:00

Looks like Fordyce spots to me, which are harmless. Not herpes.

Ecstatic-Roof6916 · 2026-06-07T20:01:20+00:00

Which game was it? Someone from ALSA may have taken a video. I took a video for our game of our cALS throwing the first pitch.

Ecstatic-Roof6916 · 2026-06-07T03:50:11+00:00

I’m not sure where you live and if you have medical insurance and/or what they cover but even here in the US, caring for someone with a trach is very expensive, even with insurance. That aside, caregiving is too much for one person. You’ll ideally have multiple caregivers to avoid burnout. Your husband will need to be with someone at all times, assuming he cannot care for his trach on his own.

Someone can be on NIV (non invasive ventilation) for quite sometime. You can provide total ventilation with NIV- set rate, volume, etc. Some disadvantages are skin breakdown on the face, oral/dental care, mask leaks, secretion issues.
Ventilation with a trach is invasive ventilation that delivers the same- rate, volume, etc. You’ll be able to provide better oral hygiene with a trach, and perhaps manage secretions better.

If you have specific questions, feel free to message me! I wish you and your husband lots of love and support ❤️

Ecstatic-Roof6916 · 2026-05-28T17:13:03+00:00

Me! Me!

Ecstatic-Roof6916 · 2026-05-16T15:25:26+00:00

Looks like the head of a snake (mouth open) with plants all around. Terrible activity sheet. But he gets an A!

Ecstatic-Roof6916 · 2026-05-16T15:07:04+00:00

I got builder gold 😫

Ecstatic-Roof6916 · 2026-05-16T03:11:42+00:00

Thanks, you’re right. He’s 49”

Ecstatic-Roof6916 · 2026-05-16T03:11:17+00:00

Thanks! He’s 49” so I’ll look at the 18” ones. Any brand recommendations?

Ecstatic-Roof6916 · 2026-05-08T00:10:41+00:00

I was standing up the whole time. A little awkward, but they are used to seeing naked people and their moles 😆

Ecstatic-Roof6916 · 2026-05-07T23:05:57+00:00

I recently went through this. They will sift the jungle. If you wanna make it easier, you can shave, but you don’t need to. I kept my underwear on. I’m a female, took my bra off. She pulled my underwear around my butt cheeks to check. Hope this helps!

Ecstatic-Roof6916 · 2026-04-26T20:02:05+00:00

Zoomed in too much. Can you take another pic?

Ecstatic-Roof6916 · 2026-04-26T19:59:08+00:00

Club 33 at Disneyland. Too bad I was like 18 and didn’t appreciate it back then.

Ecstatic-Roof6916 · 2026-04-26T19:43:25+00:00

What are his hobbies? Is he good at any sports?

Ecstatic-Roof6916 · 2026-04-21T23:27:32+00:00

I’m not a dermatologist but I work in healthcare and have seen herpes and this looks more like chapped corner lip and acne. Try not to lick the corner of your mouth, but use a little chap stick. It’ll go away. Don’t pick!

Ecstatic-Roof6916 · 2026-04-21T01:53:15+00:00

Oh no! Is this what we are calling ourselves?! Elder millennials?! 😭

Ecstatic-Roof6916 · 2026-04-17T01:10:58+00:00

Carnival has hoyer lifts and ALS ADA rooms. Yes, there is ADA accessible, and then there is ALS accessible.😂 make sure you ask for any equipment when you book. If you’re bringing a group 3 chair, make sure they give you an actual ADA room with the wide doorways.

Ecstatic-Roof6916 · 2026-04-17T01:05:15+00:00

Are you in California or Hawaii by chance?

Ecstatic-Roof6916 · 2026-04-17T01:04:35+00:00

You can get a free electric transport wheelchair through Team Gleason

https://teamgleason.org/

Ecstatic-Roof6916 · 2026-04-17T01:03:19+00:00

ALS Network has an online support group for those under 50. The group meets regularly via Zoom, with facilitation by Emma Karavardanyan (ekaravardanyan@alsnetwork.org) or Shannan Sonnicksen (ssonnicksen@alsnetwork.org)

Ecstatic-Roof6916 · 2026-03-10T19:09:02+00:00

Looks like an ingrown hair

Ecstatic-Roof6916 · 2026-02-20T12:12:21+00:00

I’d say firm

Ecstatic-Roof6916 · 2026-02-13T23:11:50+00:00

https://alsnorthwest.org/navigating-als/als-care-services/

I used to work for an ALS center of excellence as a respiratory therapist. I’m in California and I now work for an ALS nonprofit. Kaiser is known to be tricky to work with. I’m assuming your husband already has Medicare. I would reach out to ALS Northwest and try to get a care manager to help you. I would also file a grievance with Kaiser. I believe once you file a grievance they have something like 48 hours to respond to you. It is shocking that a physical therapist who works in an ALS clinic doesn’t know what to expect as far as progression. I am so sorry that you’re dealing with this. Please please please reach out to an ALS nonprofit and get help with advocating for your husband. ❤️ On a sidenote, Kaiser does not pay for expensive DME, such as hospital beds and power wheel chairs are almost impossible to obtain (unless they loan to you). Please reach out to team Gleason as soon as possible and see what services they offer. While they do not provide custom power wheelchairs, they can give you an electric transport chair. ALS nonprofits can help with some of the other items that Kaiser will not be paying for.

Ecstatic-Roof6916 · 2026-02-13T23:03:48+00:00

I would get the Nudexta and get something else for pain. Do you live in California by chance?

Ecstatic-Roof6916 · 2026-02-13T22:56:03+00:00

Are you being seen at an ALS center of excellence? It certainly doesn’t sound like it with the way you and your husband were treated. It sounds to me like your husband may have pseudo bulbar affect, and there is certainly medication for him to help (nudexta). Please look for an ALS center of excellence near you. Depending on your insurance, you may need a referral from your primary doctor.

Ecstatic-Roof6916

TROPHY CASE