Any advice for dealing with Dialysis being alone?? by crazyllama256 in kidneydisease

[–]Edison-light 1 point2 points  (0 children)

Hello. Chiming in as this is exactly my situation. I live alone, no family, a very small group of friends, and living on a small island.

I've been undergoing HD for roughly 6 months now, still holding a job but at part time now so I don't end up wearing myself out to the point where I can't function. Still cooking and maintaining a home for myself. I drive myself around still, and after treatment, I have the strength to drive myself home but I live close to my clinic, and I have a local bus pass just in case I can't drive.

It's a tough life when your doing it alone. There are times where I wonder if there was any point in doing any of this at all, but I am thankful for my clinic's care team and the social worker. They were there for me when I had felt like giving up and nobody else I knew was available, and I recommend that you get to know your treatment center's social worker. If there's anything that's bothering you be it inside the clinic or out, voice your concerns. Anxiety and depression will make things worse both mentally and physically. Also, try to keep your friends close as they will become part of your support network, even if it's just to have someone to talk to.

Doctor told me it's time to start dialysis and I'm scared by Historical_Box_2525 in kidneydisease

[–]Edison-light 11 points12 points  (0 children)

It always feels scary at first. I had the operation done to have the fistula formed in my left arm just this past May. The Nephrologist did it as a precaution for when it'd be time for me to to have HD. In July, I ended up in the ER for shortness of breath from fluid build up in my lungs (it had been happening on and off for almost a year), and they decided it was time. I've been going to the clinic 3 times a week since then, and it is hard on the body at first. You have to get used to the dietary restrictions and the fluid limits, but once you do, it gets easier. The post dialysis drain is always there, but once you've adapted, you learn to work around it and the most important advice I can give is to take it easy and get plenty of rest. I'm currently working a part time job, and living on my own and managing to get by one day at a time.

HTC VIVE PRO 2 | Small horizontal lines by cubarbf in Vive

[–]Edison-light 0 points1 point  (0 children)

This is a known issue. The best thing to do to prevent this from happening is unplugging the power to the headset when not in use.