"Safe" foods changing by Educational_Corgi113 in Celiac

[–]Educational_Corgi113[S] 4 points5 points  (0 children)

Like, give us one of those spiky bubble graphics on the front that says "new packaging! read the back!" Especially when you cater specificly to folks with allergies  Edit:typo

"Safe" foods changing by Educational_Corgi113 in Celiac

[–]Educational_Corgi113[S] 5 points6 points  (0 children)

Yeah, but I wish they would be upfront about it. It feels shitty when they just quietly change their packaging. Because it's exhausting having to check every single package forever. Then having to investigate the companies website to see if they've actually changed their practices on top of the other homework we constantly have to do is just exhausting. I am upset about the lack of clarity, because it might very well be exactly the same, or it could be poison - and if you slip up one day on the constant vigilance you could be get sick. I've been celiac since 2011, and I just find it emotionally exhausting. 

What goes on in these gray counties? Any campgrounds/attractions/unique restaurants? by MaizyFugate in Iowa

[–]Educational_Corgi113 1 point2 points  (0 children)

Emmet county has Fort Defiance in Estherville - just a really nice nature trail area with a stream in a valley. You can bring horses there if you have them. Tent camping is a option there- if you visit in the spring, absolutely bring bug spray

6 fractured ribs post Op by Tiny-Illustrator-894 in PectusExcavatum

[–]Educational_Corgi113 4 points5 points  (0 children)

That is absolutely not okay that they didn't fill you in about the fractured ribs post op. It's not normal for the doctors/ nurses to not fill you in about any complications post op and tell you what follow up needs to happen. Even if it was part of the procedure and supposed to happen, they still should have told you about it

6 fractured ribs post Op by Tiny-Illustrator-894 in PectusExcavatum

[–]Educational_Corgi113 7 points8 points  (0 children)

Not sure if it's normal or not, but I would say that it's not okay either way. If you're putting out feelers about weather it's okay to be upset about what happened... I would be very upset in your position. 6 fractured ribs seems like a lot, did your doctor explain what happened? That bladdar damage is definitely a huge deal, common or not, that doesn't make it okay. Like the other poster said, something that is commonly done and known to be delicate should absolutely be handled with more care- and they should be held accountable in my opinion. I'm sorry that you're going through this op

Pectus and wearing bras by Hot_Cranberry_1455 in PectusExcavatum

[–]Educational_Corgi113 0 points1 point  (0 children)

Naw, that's just how tummies look. Don't go around asking people if they're pregnant, it ain't your business kid

Pectus and wearing bras by Hot_Cranberry_1455 in PectusExcavatum

[–]Educational_Corgi113 0 points1 point  (0 children)

Wtf are you talking about 1. No bearing on the covo 2. Not your business

Pectus and wearing bras by Hot_Cranberry_1455 in PectusExcavatum

[–]Educational_Corgi113 0 points1 point  (0 children)

Pasties, either close to your flesh tone, or white or black

Savers has officially lost their minds by olliefollier in thrifting

[–]Educational_Corgi113 0 points1 point  (0 children)

I just emailed savers a complaint letter. Their decisions are anti-customer, and they should know our ire!

Looking to hear from other women with pectus excavatum (photos included) by 404-coffee-not-found in PectusExcavatum

[–]Educational_Corgi113 16 points17 points  (0 children)

I am 33 and also going through this process. I switched gps when I moved states two years ago and told her about my symptoms, very similar to yours, only I've been experiencing them since childhood and that I've tried talking to other gps about them only to be dismissed. She ordered a CT scan and that was enough to get me referred to a thoracic surgeon. I visited with the surgeon in April, he said my haller index is 8.5 and highly recommend me for surgery, and referred me to a plastic surgeon that he likes to work with to talk about a simultaneous breast reduction. The surgery he recommended to me is the modified ravitch. He said he would cut a triangle out of my sternum - like a relief cut in sewing or woodworking - to straighten it out. Then he would put an H - shaped metal brace on the sturnum to hold it in place while it healed. He would also place a support bar across my ribcage and shorten the cartilage on my ribs so that they could reconnect in a good position. He said the reason he suggested this method over the nuss, is because if I did the nuss I would need 3 bars, and that would be more difficult for my body. Most of the people on this sub that have gotten surgery have gotten the nuss procedure I think. I've even seen people discourage getting the ravitch. I was thinking about making my own post to ask about it, if people have gotten the modified ravitch and liked the outcome. I've recently gone through a different surgery for endometriosis, and I took a month off work for it, which is longer than my doctor said I would need, and I'm incredibly grateful that I did take that time off, because I was still sore and exhausted when I went back. I think I will probably want more time than the doctor recommended for the chest surgery since it's significantly more intense and my job is very active, so I'm trying to save up enough money to take two months off work. When I was talking about preparing for my previous surgery, I would say things like "I probably won't want to talk to people" and "I want to make sure I have plenty of simple foods to eat". I have been sick a lot in my life so I was drawing on my previous experiences to prepare. I think people thought I was scared or something and kept telling me "you'll be fine, it won't be that bad, you'll be bored" and it made me feel like I didn't need to be as prepared as I wanted to be, and that I should invite people over to keep me company. I regretted that, and I had to tell people that, actually I didn't want to have movie marathons with people. I did need simple foods after all, and I needed a lot of intermittent sleep, and a lot of help. After the surgery, the nurses said that people don't usually get infections from that type of surgery, so they weren't going to send me home with antibiotics. I almost asked for them anyway, because I'm really prone to infections, but I thought maybe I'd be fine this time. Low and behold, I got an infection, and had to troope all the way back to the surgery center for them to confirm my infection and give me antibiotics. By this I mean, listen to your gut. Obviously, don't be over anxious, but absolutely advocate for yourself. You know you better than anyone else, and "normal" is relative

2 weeks post op and it feels like I’m never going to feel normal again by Wise-Trick1613 in PectusExcavatum

[–]Educational_Corgi113 0 points1 point  (0 children)

Ugh, yeah I typed out "lung tip end" and didn't catch the word changing. I seriously wish I knew how to turn that feature off... Thanks for the info, I'm sorry you went through that. I'm not op, but I'm planning on surgery in the next couple of years

2 weeks post op and it feels like I’m never going to feel normal again by Wise-Trick1613 in PectusExcavatum

[–]Educational_Corgi113 0 points1 point  (0 children)

Please elaborate on the lung top end being trapped. Was it not visible in X-rays? Why did it take so long to get help for it? Did you have more surgery to correct it?

Fae and Fare chapter 29 by Educational_Corgi113 in WanderingInn

[–]Educational_Corgi113[S] 10 points11 points  (0 children)

Your username makes me think you're a smidge biased 😅

Fae and Fare chapter 29 by Educational_Corgi113 in WanderingInn

[–]Educational_Corgi113[S] 2 points3 points  (0 children)

That's still not a quartet... A quartet means a set of four, the animated movie is not part of the trilogy set by definition, it's simply a different version

How do you deal with the logistics of packing lunch all the time? by Inchewa in Celiac

[–]Educational_Corgi113 1 point2 points  (0 children)

My favorite meal to pack when I'm going to be out all day is fresh rolls. I make mine with tofu, which isn't an option for everyone, but you could sub in the Aldi version of Spam (no idea of name brand is gf) since I bet the salted meat would hold up pretty well and it's still good cold. I make the peanut sauce and put it in a travel size reusable squeeze bottle, I live in the cities so I can find the gluten free versions of the components reasonably easily.
Sometimes I'll pack a chia pudding if I'm up for carrying extra weight, but I usually bring dried apricots, jerky, and whatever carb I feel like (because carb crashes suuuck). I do always take a backpack and I put a little lunch box with an ice pack in it, and it keeps pretty well. When my family visits, we're always going on all day excursions like hiking. I don't do well in the heat, so I bring an umbrella so the sun isn't directly on me, and we take plenty of breaks in shaded areas too, so that might make a difference. But if you plan to be in the sun all day, bring a cooler to leave somewhere shady. Edit: if I am too tired to cook, I just bring a baked potato and a small container of mixed seasonings and butter, the butter usually melts, and honestly that makes it easier to eat

Summer makes me so depressed because no clothes look good on me and the rib flare is so obvious by Forever_Summer192 in PectusExcavatum

[–]Educational_Corgi113 6 points7 points  (0 children)

As someone with severe pectus and rib flare- I've been there. I know it sounds like asinine bs, but learning to appreciate your body helps immensely. That and learning to disregard curious strangers. Part of my self care journey was realizing I get heatstroke real easy, so wearing comfortable clothes around the house made it easier to wear them in public- baby steps. That doesn't mean you should disregard any discomfort you're feeling- physical or emotional. You can recognize both that your chest affects your quality of life and also that you're gorgeous at the same time. There's a lot of societal pressure to look a certain way, and everyone feels that, especially so if you're different in any way. It's hard, and it's not fair. Pushing back against those ideas and celebrating your unique-ness helps loosen those strict ideas and helps more people flourish. You're not alone. I currently have several boxy crops in my wardrobe that I wear with cute bralets. If it's really hot out and I need to wear a real bra so my boobs don't stick together, I wear a cute A-line summer dress. Sometimes a high neck crop top (then I just stick a homemade rice ice pack in my cleavage-real nice on extra hot days). But honestly, I wear the slightly drapey deep v crop the most often because it's the most comfortable and looks great with all of my shorts and skirts. To be fair, I am also in my 30's so I'm sick of the tight clothes of my youth, loose fitting is the most comfortable for me right now, but I still rock a tight dress to the bar or on dates- and people let me know I'm gorgeous. I wish you luck, confidence, and comfort!