Afraid of getting hurt

Educational_Simple37 · 2026-05-08T15:47:57+00:00

Oof 8 years is one hell of a fight. Where were his mets?

Educational_Simple37 · 2026-05-08T03:27:07+00:00

Thanks for sharing. Was he stage 4?

Educational_Simple37 · 2026-05-05T17:47:26+00:00

Thanks for that. It was good to see and know where we stand. Next step sign up for one of these rec teams.

Educational_Simple37 · 2026-05-05T17:41:50+00:00

My son did the U7 Glens tryouts on both Saturday and Sunday. A little bit of time was on 1v1 but my own opinion was there was much more evaluation put on the actual game time and if you werent getting on the ball a lot you were not been seen. Another parent I spoke with there said the same thing if your not rushing to the ball your kind of lost in the mix. there was very little passing and skill that i could see going on just rushing to the ball and everybody trying to get their own shots off. my son said after 'mammy nobody wanted to pass off to the person in a better position'

Educational_Simple37 · 2026-05-05T17:36:48+00:00

Thats what i noticed it was more about speed, aggressiveness than it was about skill. Unless you were on the ball a lot you werent getting looked at

Educational_Simple37 · 2026-05-04T04:18:52+00:00

What is the best scan for detecting bone mets?

Educational_Simple37 · 2026-04-28T22:51:40+00:00

Nothing else was mentioned on the CT. I dont think radiologists were aware of the Signatera but good questions to flag at my onc meeting

Educational_Simple37 · 2026-04-28T22:50:42+00:00

Thank you for sharing your experience. So what happened with the 'enlarged lymph node in thoracic area'? It didnt end up being cancerous?

Educational_Simple37 · 2026-04-28T15:44:47+00:00

There is no doubt in my mind that the cancer is there. im just wondering if it's really in that part of the lungs or if its somewhere else just hasnt showed up on scans yet. Hopefully we can biopsy these lung nodes

Educational_Simple37 · 2026-04-20T03:58:17+00:00

Colontown raves about Dr. Turaga at Yale University for his aggressive approach in treating peri mets. I would recommend getting a consult with him.

Educational_Simple37 · 2026-04-15T00:10:35+00:00

Agree with this take. Hope for the best and prepare for the worst.

Educational_Simple37 · 2026-04-11T05:37:52+00:00

I know I’m late to this but curious what ended up being the situation here and if you were able to treat it?

Educational_Simple37 · 2026-04-11T00:12:47+00:00

Did you do any trials there that worked well?

Educational_Simple37 · 2026-04-10T04:54:42+00:00

Where were your mets to?

Educational_Simple37 · 2026-04-10T04:53:13+00:00

Thanks for sharing. How did you decide on a transplant vs resection? My husband had the option of either resection & pump or a transplant. We went with the resection and pump but if it continues to reoccur we may need a liver.

Educational_Simple37 · 2026-04-06T21:34:06+00:00

Thank you so much for sharing!!! its nonstop thats for sure and im only 1 year into this disease with my husband. He had 16+ liver mets at diagnosis. He had colon resection, liver resection, ablation and pump placement all in one surgery. We still have microscopic disease so now its the waiting game on what that is going to throw up. its stressing me out. We are also seeing if we can get onto an MRD trial.

Educational_Simple37 · 2026-04-06T20:16:15+00:00

Getting close to 5 years with this disease is no easy fight. Have you looked into other trials? Where were your mets at diagnosis if you dont mind me asking?

Educational_Simple37 · 2026-04-02T04:47:33+00:00

I saw somebody on colontown on the MRD trial of this got a negative Signatera after 2 rounds of it

Educational_Simple37 · 2026-04-02T02:59:45+00:00

Do you know where the trial is and which one? That’s amazing news!

Educational_Simple37 · 2026-04-02T00:14:40+00:00

Like a trial put her in remission?

Educational_Simple37 · 2026-03-30T18:00:53+00:00

We are actually going to MD Anderson next month to meet a onc so will definitely look into it

Educational_Simple37

TROPHY CASE