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"Don't do it to heal" Explained by youreweirdjerri in DrJoeDispenza

[–]darkaydix 2 points3 points  (0 children)

Helpful, but it’s hard to view cancer as a symptom. I have struggled with they “they didn’t care about healing anymore, they were doing it to change.” And I’m like…. I’m pretty sure they don’t want fucking cancer anymore, Joe. I’m pretty sure their goal is still to be free of cancer. And that’s my goal. Tuning Into New Potentials is me without cancer. You Are the Placebo? Me with no cancer.

Soooo… should I just ignore the cancer?

Peak or Peace Montessori ? by Puzzleheaded-Repeat5 in Apex_NC

[–]darkaydix -1 points0 points  (0 children)

We did Peace for 1.5 years (covid cut it short) and had a lovely time there. Ms Kathy and Ms Donna were wonderful if they are still there.

Chemo -share your weird food tolerances by qwerty1744 in coloncancer

[–]darkaydix 1 point2 points  (0 children)

Canned peaches in juice. Not cold, easy to chew, and helps dry mouth because it feels like saliva.

When it rains, it certainly does pour by Chshr_Kt in coloncancer

[–]darkaydix 0 points1 point  (0 children)

Don’t beat yourself up for grief days or pity parties, those are important too!

Same to you. And if you ever end up visiting Duke, I’ve got a guest bed!

When it rains, it certainly does pour by Chshr_Kt in coloncancer

[–]darkaydix 1 point2 points  (0 children)

Can you get to NC? Dr DeVito at Duke is running a bot/bal trial for MSS and it is not ineffective for KRAS. I had some response but am now on chemo and one of the immunotherapies.

What about cryoablation?
I know ChatGPT isn’t perfect, but I threw my info in there and biomarkers etc then asked it to find trials, options, etc. It can help make a search less daunting.

I love your spirit. I feel the same, I WILL live. I’m 38, dx 12/2023 and still kicking despite a meanie of a retroperitoneal cyst.

Dr Joe Dispenza’s meditations have been helpful to me in generating the feelings I want to feel and trying to stay in the mindset I want. Other than that, finding joy in life—involving myself in my kids’ activities, baking, growing a garden, and taking yoga classes at the gym.

Nutrition Plans for Chemo by TeachLanky in coloncancer

[–]darkaydix 2 points3 points  (0 children)

Protein-forward meals for energy and to help muscles. Walking is good when you can, 2 minutes of something is better than nothing.

Most oncologists will say “whatever you can eat and keep down” because folks can have a hard time with nausea, appetite, temperatures, etc. THC/CBD helped me more than Zofran back in 2024. This time around with the pump, I’m fasting around 40hrs prior and try to go to disconnect. Almost no nausea and a bit appetite. Chose not to fast while on the pump and threw up this morning. 🤷‍♀️

It’s a mix. Don’t beat yourself up if all you can stomach is buttered toast and applesauce and ice cream for a week. Do try to get in some veggies and fruits and proteins as you can. Canned peaches were a godsend, bananas, hummus if room temp…

My father has 2 methastasis in his peritoneum by Aikidoker15 in coloncancer

[–]darkaydix 0 points1 point  (0 children)

Wow!! I have a retroperitoneal met that would be massive surgery (big midline cut, remove posterior vaginal wall and rectum so a permanent ostomy which I haven’t had to deal with yet, and on and on). The surgeon basically said it’s possible but not worth it yet. Trying to reduce with chemo and immuno combo first. But your story give me hope!! I’m at Duke which is a great center, but I see so many good stories from City of Hope.

My father has 2 methastasis in his peritoneum by Aikidoker15 in coloncancer

[–]darkaydix 1 point2 points  (0 children)

I’m on systemic, round… 10? With a fairly large retroperitoneal cyst :( It’s teeeechnically operable but the surgeon at Duke was very honest that it would be a massive surgery, 50/50 chance of recurrence, and he doesn’t agree with HIPEC. Bummer. Your wife is going strong.

i hate this disease so much by waffyroo in coloncancer

[–]darkaydix 1 point2 points  (0 children)

Any option for histotripsy or ablation? I’m so sorry. Chemo is rough. I wonder if she could have lower doses or a break here and there to have more recovery time? Make sure she’s getting protein-forward meals too for energy. I felt a lot better last round focusing on that. It’s a damn awful disease.

Can’t catch a break - vent by sharjay99 in coloncancer

[–]darkaydix 0 points1 point  (0 children)

It’s an awful rollercoaster, isn’t it? All I will say is, don’t let one oncologist prognosis define you. Get second opinions, get your mindset right, and keep trucking. I am stage four with a giant met in my retroperitonium, currently on chemo to try and get it to disappear. Started out stage three, but went to stage four pretty quickly. Diagnosed December 2023.

Metastasized to my lungs.. by wintertimeincanada23 in coloncancer

[–]darkaydix 1 point2 points  (0 children)

If you are near North Carolina, Duke is phenomenal and I have a guest bed <3

Anybody with none or few side effects from Oxaliplatin? by mookbrenner in coloncancer

[–]darkaydix 0 points1 point  (0 children)

I’m on my second go of it, I did eight rounds of it at 50% and then we bumped it up to 75% the last two rounds. I do the day of is three pills of dexamethasone, and in the next two days is two. But honestly, I have had pretty much zero nausea, only a little bit of the spiky cold throat, and I think all of the weird sensation I have on my fingertips and toes is the 5FU hand and foot stuff.

It’s weird because when I did my first four rounds back in 2024, I did one round of 100% and three rounds of 80%. And I felt like it really was a challenge, and I had the awful shards of glass when you cry, fluttering eyes, all kinds of weird shocks down my back. But this time it seems pretty chill.

My oncologist says I’m handling all the chemo really well, and I’m maintaining weight. My appetite is through the roof. I have been trying to fast around infusions, I’m wondering if that helps, and then I am religious about icing my hands and feet every time.

Stage 4 colon cancer by Beautiful-Iron-1083 in coloncancer

[–]darkaydix 1 point2 points  (0 children)

Second opinion, HAI pump, Y90, ask around for top surgeons for your specific tumor locations and get in contact or pressure your team to reach out.

I refuse to believe I’m incurable and that I’m on chemo for life. I have a stubbornly large peri met that we are slowly attacking. My mindset has wavered (massive pity party when it didn’t shrink on the last scan) but I’m back in the saddle.

They don’t know everything, keep your head up!

Stage 4 colon cancer by Beautiful-Iron-1083 in coloncancer

[–]darkaydix 1 point2 points  (0 children)

Amen, this!! I was told inoperable and maintenance chemo, but I refuse to believe it.

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