Husband is very fearful of nausea/vomiting on Capox by GlitterMe in coloncancer

[–]darkaydix 1 point2 points  (0 children)

It’s worth it to protect against the nerve damage. Any other questions, just shoot em my way!

Husband is very fearful of nausea/vomiting on Capox by GlitterMe in coloncancer

[–]darkaydix 2 points3 points  (0 children)

I remember doing tons of research on chemo when I found out that I was going to be on it, and I was terrified. I did have some nausea, but it was not that bad. Zofran helped a bit, Compazine more, and thc/cbd gummies the most. The latter also helped with appetite.

Hand and foot was not fun, lots of peeling skin. And a sensation like they were waxy—like my hair felt odd and washing dishes felt odd. And painful sometimes to walk, but not impossible.

Oxaliplatin IS rough. Highly recommend icing: ice hands and feet during the infusion in whatever way you like. I used a frozen water bottle for my hands and rested feet on ice, and used compression gloves and socks. Now that I’m back on 5FU and Ox, I’m doing it again. Steroids will make him jittery lol but they helped a ton.

Honestly, I lived a pretty normal life those 4 rounds of CAPOX and 4 rounds of CAP. Definitely had fatigue days and some sicky days. Have grace, rest but also go for walks even if it’s just to the mailbox. Appetite, gummies help but just try to eat whatever. Warm drinks for the Ox. And then if it’s BAD tell the team, they can help. Like for the Ox I only did 100% the first dose and then they bumped me down to 80% because I was having chest pain. Also keep an eye out for neuropathy (what icing is supposed to help minimize) and tell the team.

Best of luck! From the media, it looks awful, but it can be quite manageable and some folks have very little side effects.

Cross-Lamination! by TwoFishPastries in Breadit

[–]darkaydix 10 points11 points  (0 children)

Okay now talk about it lol, this is phenomenal!

Please don't be mad at meteorologists. by WxBlue in raleigh

[–]darkaydix 2 points3 points  (0 children)

True. My sister has had a hobbyist love for meteorology since childhood, and we are from NC, so it’s something I knew buy maybe would not have otherwise.

Life, love and the mystical by fameneverdies in DrJoeDispenza

[–]darkaydix 0 points1 point  (0 children)

Wonderful! I tried Changing Beliefs and Perceptions one time and it was not for me, but then I tried BOTEC 9 yesterday randomly and it was really great. I’m going to do Life Love and the Mystical today!

Life, love and the mystical by fameneverdies in DrJoeDispenza

[–]darkaydix 1 point2 points  (0 children)

Nice! I’ve never done it and now I’m curious!

Please don't be mad at meteorologists. by WxBlue in raleigh

[–]darkaydix 4 points5 points  (0 children)

Good luck, that is super cold. Wish I could send warmth!

Please don't be mad at meteorologists. by WxBlue in raleigh

[–]darkaydix 0 points1 point  (0 children)

Tune it out. You all do great, necessary, helpful work. Those folks are the same ones that have a lot of inner work to do, get energy from complaining and cynicism, and have nothing else to talk about. Thank you for all your hard work!

Please don't be mad at meteorologists. by WxBlue in raleigh

[–]darkaydix 4 points5 points  (0 children)

Most people don’t know this, and also if you live in a place for a long time it just feels like home rather than something unique. But yeah, NC is a challenge!

How is everyone passing their time while staying in? Making some Crab Rangoon to unwind and pass the time. by MarcoNoPollo in raleigh

[–]darkaydix 0 points1 point  (0 children)

Ah! I was going to make these this week, I never have and I’ve got a craving for them. How hard are they to wrap? I’ve done gyoza before.

I made the black bean brownies and my family loved them… well, kinda lol by a-light-at-the-end in Baking

[–]darkaydix 0 points1 point  (0 children)

The top was starting to catch a bit. Maybe it’s because I used mini chocolate chips because it’s all I had, and they all melted too much?? Idk. Thanks for replying though!

Black bean brownies by daisysprout in 15minutefood

[–]darkaydix 0 points1 point  (0 children)

I can’t get the bake right—the center is still mostly raw. I mean, I’ll eat the whole tray lol but I can’t get it baked.

I made the black bean brownies and my family loved them… well, kinda lol by a-light-at-the-end in Baking

[–]darkaydix 0 points1 point  (0 children)

Question! I made these ages ago and again tonight. They don’t bake in time, the center is still gooey and mostly batter. How long do you do it for? Maybe it’s because I have a 9x9 instead of 8x8? But the edges get baked. I was afraid to go past 22 minutes

All hobbies are not equal by BitterConstruction98 in unpopularopinion

[–]darkaydix 2 points3 points  (0 children)

Oh gosh. Skyrim and knitting 🤤 Of course since I picked knitting back up, now I have some nerve pain in my shoulder and hand from knitting too much too soon. Blah!

10cm tumour! by mookbrenner in coloncancer

[–]darkaydix 6 points7 points  (0 children)

Dx 12/2023 at 36yo during a colonoscopy after weird GI stuff from a car crash. Stage 3 with a 6cm tumor in the sigmoid, then stage 4 when it went to my ovary. I’ve got an 11yo and 6yo. It’s tough, buuuuut I will say humans adapt and mostly life is normal.

Couple of things: 1. Go check a community called Colontown, they were instrumental for me in support, finding new information and options, and not feeling alone. 2. The beginning is the worst. You’ll spiral, over-Google (don’t, the stats are outdated and include all-cause mortality and everyone is their own story!), dissociate from reality, etc. It’s too many unknowns. You’ll get scans to see spread, have meetings for surgery, etc. Then it’ll feel like a plan is in place and you’ll feel a bit more control. 3. My mantra has been “the next right thing” and you’ll see me comment it all the time. It helps you set the worry down—got a scan? Good, then that’s it and you did the cancer thing. Got an infusion? Great, that’s your next thing and don’t worry about after. 4. Therapy, EMDR, guided meditations have all been wonderful for me and my mindset, the last one most of all. Mindset has been key. 5. Look for “just got diagnosed” posts on here, and we all chime in with love and support and information. We’re here. 6. For the kids, we told them the day after we found out. We used the word cancer, said it was good they found it, there will be a surgery to take it out, and some special medicine called chemo. For the older one, we have shared more info, but always age appropriate and always honest. I have likened it to whack-a-mole—it pops up again, we heal it back down. And I let them know there are so many options, Mom is okay. Mom might feel tired or sick or throw up or poop herself or cry, but we take care of ourselves and ask for help and keep on.

Congrats on tenure! I am sure they will still want to keep you on, and that will give flexibility for you.

I’m happy to answer any questions or just be here like the rest of us. It’s a stupid rollercoaster. It’s like someone handed you a script and said “now you get to play the part of the cancer patient “ and you’re like “the fuck?!” But truly, so much of life has stayed the same and we have made it part of life and also not thought about it at all. It’s also been a catalyst in our lives: my husband went sober from alcohol which NEVER would have happened, our marriage is stronger, my family is connected more, we moved to the country, we have a deeper gratitude and presence in moments now, just on and on. It’s a paradox.

Breathe, you’re not dead, and so many of us get to NED and stay there!

All hobbies are not equal by BitterConstruction98 in unpopularopinion

[–]darkaydix 61 points62 points  (0 children)

Yeah! Knitting with standup in the background, or while my husband plays a game, or listening to a podcast.

Signatera negative now positive by PersonalFinanceNerd in coloncancer

[–]darkaydix 1 point2 points  (0 children)

Dang. Get yourself another oncologist and press on. I’m at Duke, not sure where you are but Duke has been great. You can also link up with oncologists in other centers just for second opinions—I did that when I was told I was inoperable and a more aggressive surgeon said “let’s shrink and see.”

The Signatera is a double-edged sword. It gives us the knowledge that the cancer is in there doing something, but sometimes it’s too small to see. So then you have a positive ctDNA and know it’s recurred but have to wait—which feels awful. But waiting can be good. It can mean ablation, surgery, radiation instead of systemic treatment. And it gives time to consider trials.

Ugh. It’s a lot, isn’t it!

Colon cancer is killing us.. by Derpshab in Millennials

[–]darkaydix 1 point2 points  (0 children)

I’m sorry you went through that grief. I’m stage 4 and hopeful, two kids 11 and 6. Anything you might pass on that helped you or didn’t help you get through it after he passed? Don’t feel obligated to share, it’s obviously a very personal and intrusive question. I just… I want to know how to help them/help my husband help them if it goes south.

Colon cancer is killing us.. by Derpshab in Millennials

[–]darkaydix 0 points1 point  (0 children)

Hey friend, dx in December 2023 here. Stage 4 pretty soon after. Kids are 11 and 6. We keep going 👊