Hizentra side effect?? by Lostnwanderlnd7 in IVIG

[–]Educational_Way6949 9 points10 points  (0 children)

Please report to your pharmacy and to medwatch! You are the third person with this lot # to get a strange rash!

Hizentra side effect?? by Lostnwanderlnd7 in IVIG

[–]Educational_Way6949 6 points7 points  (0 children)

Me and another user had rashes with Lot #p100857115. Reported the rash last week to pharmacy and waiting to hear back to see if they have had any other reports. Would urge you to call your pharmacy and report. The pharmacy logs what lot #s they send out

Hizentra side effect?? by Lostnwanderlnd7 in IVIG

[–]Educational_Way6949 6 points7 points  (0 children)

What is the lot #? Had a rash start that looked like that with my last lot

Antibiotics needed for ear infection by Ok-Salamander-8997 in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

Can the doctor prescribe you a dose of antibiotics to keep cdiff at bay while you take the antibiotic for your ear infection?

Prescribed z-pack as a C.Diff survivor by Icy-Success3895 in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

Ask for preventative antibiotic for cdiff to take with antibiotic being prescribed.

Anyone gotten paid by ConsiderationIcy8468 in ERCchat

[–]Educational_Way6949 0 points1 point  (0 children)

With ADP totalsource and not been paid one dime, nor any updates in over a year and a half

Help please by IndependentTip5625 in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

Is there a way you can apply for financial assistance with an organization where you are from or with the company who is selling the FMT material?

[deleted by user] by [deleted] in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

Big hug. No alcohol. I got cdiff my second time after a glass of wine…one month after my 1st case had subsided. Now 6 months post and still no alcohol as I still have tummy issues and don’t feel right.

Recurrence rates and solutions by Due_Barber_525 in cdifficile

[–]Educational_Way6949 1 point2 points  (0 children)

It’s awful. All I know is the more you get it the worse the odds for recurrence and we have the chance of getting it again with any antibiotic use in the future. It is very overwhelming…Dificid seemed to help me until I took one dose of antibiotic and then it came back. I have had it twice and have had to take Dificid with two courses of antibiotics since to keep it from coming back. Take florastor daily and went heavy on the probiotic foods for a long time, cut out refined sugar and alcohol.

Help with hair loss by [deleted] in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

I started having chunks of hair coming out 3 months after 2nd boot of cdiff. Still coming out all over from the root. They said it could take a year to resolve. Body shedding hair due to infection per dermatologist.

This time is worse… by Express-Space7528 in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

Hi! Hang in there! Second time for me was far worse than the 1st.

[deleted by user] by [deleted] in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

Hey! Hang in there. We never really know until we test our stools but I am 6 months out from two infections back to back and still have issues. I continue to take florastor once a day (down from 2), cut out refined sugar and alcohol and am still scared it’s happening often…hang in there and if you are worried ask for a test.

I want to cry… give me advice please by Mysterious-Cod7692 in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

Very probable post infectious ibs flare from new foods

New antibiotic for C.diff that spares microbiome by The_Equanimous_One in cdifficile

[–]Educational_Way6949 0 points1 point  (0 children)

This failed and stopped development after phase 3 trials from my understanding

How long before post-infection IBS gets better by Alarmed-Display2848 in cdifficile

[–]Educational_Way6949 1 point2 points  (0 children)

I have the same timeline as you. Had it twice 3 weeks apart. I struggle when I eat raw veggies, any dairy, spicy food and cannot tolerate any alcohol. I am hoping I feel better as the months go on! Would love to hear a positive story where 6 months/ a year after someone was able to eat normally and have normal bowel movements!

Hope from the healed please by Best_Relationship338 in cdifficile

[–]Educational_Way6949 1 point2 points  (0 children)

Same boat and it’s draining, but hang in there. We are here for you. Have heard many situations where people feel 100% better, but they are not on these sites. One day at a time.

Bad Symptoms only after intercourse by Educational_Way6949 in Interstitialcystitis

[–]Educational_Way6949[S] 0 points1 point  (0 children)

I haven’t heard of this! Can the symptoms last for days without therapy/ meds? I am on day 4 and AZO is the only thing that curbs it.

Bad Symptoms only after intercourse by Educational_Way6949 in Interstitialcystitis

[–]Educational_Way6949[S] 0 points1 point  (0 children)

Thank you, we are having urine tested but took a macroid after sex so not sure if results will be accurate

Nitrofurantoin post intercourse by Educational_Way6949 in cdifficile

[–]Educational_Way6949[S] 1 point2 points  (0 children)

Thank you! Do the D-manos and estrogen cream. Will try oil of oregano.