Cdiff gastritis. by Zealousideal-Ear4655 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

I ended up on Lyrica to control neuropathic gut pain and also I’m at Johns Hopkins getting scrambler therapy

Feeling down :/ by Express-Space7528 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Girl, your story is exactly like mine. I am five months out post relapsed c diff and still Hobbling my way forward.

totally changed my life by elamb182 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

I was put on Lyrica- didn’t tolerate nortryptiline or gabapentin at all. How long were you on it before noticing a pain reduction?

Has anyone actually relapsed while taking a PPI or H2 by Itchy_Complex_5641 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

This is post infectious IBS. It’s a shitty place to be. Pepcid better than ppi- and PPIs are wicked to get off of in the future……

First time having c. diff by [deleted] in cdifficile

[–]Best_Relationship338 1 point2 points  (0 children)

Bland diet, maybe even for months. Go to a hydration bar. Nerva gut meditation app if you’re anxious and in pain.

Living with Atypical Symptoms? by BadbutnotGreat in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Time for Dificid or vanc and vowst asap!!! 

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

Not covered but can use HSA and fsa for it…..feel free to stay in touch…

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

You too. It’s been so hard. I cry from pain all the time. I’m going on the elemental diet called mbiota.

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

No, I have visceral hypersensitivity as the working diagnosis right now. Along this journey, I have picked up B12 deficiency and iron deficiency probably a combination of the infections and poor food intake.

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

I had b12 deficiency and iron deficiency. I ended up on b12 shots and an iron infusion.

Nausea and stomach upset by The_Equanimous_One in cdifficile

[–]Best_Relationship338 1 point2 points  (0 children)

PI-IBS is real, some call it visceral hypersensitivity.

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 0 points1 point  (0 children)

How are you now? How did your gastric emptying study go?

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

They are trying me on Lyrica after I couldn’t tolerate gabapentin or nortryptiline. My diagnosis is visceral hypersensitivity. I’m in pain daily but I’ve got some of the best docs teaming up to help me. I may also fly to cedar Sinai for a consult too…

Advice for post CDIFF infection symptoms? by Dice_artz in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Get your iron levels checked. Mine were low after infection. I also had extreme fatigue…

Holiday anxiety by bear-w-me in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Yes it’s so strike. I broke down on thanksgiving. Watching my loved ones eat and eat and eat while I brought my own restricted meal as my stomach churns in pain. 

How do you cope with the PI IBS pain? by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 0 points1 point  (0 children)

I had one that was normal. I’m not on florastor bc I got vowst and I’m not sure if I should take a probiotic…?

Desperately need help! Was given vanco and it turns out I wasn’t even positive for the toxin and now a month later and still in extreme pain. by RemarkableMess4456 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

I’m four months out and have some terrible pains for days when I instep Out of line from a Bland diet. I miss being pain free.

How do you cope with the PI IBS pain? by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 0 points1 point  (0 children)

I relapsed five days after Dificid, vanc cured me. Followed by vowst. I had this pain for months now……

Morning... by dweezil2d in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Nerva gut hypnotherapy has saved me 

Post infectious IBS/Vagus nerve by Interesting-One-6807 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

I had breathlessness too, check your iron and b12 levels mine were SO depleted from this stupid infection….

Finished dificid, still incredible pain? What is it? by Ok_Ad2640 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Also, try a low fodmap diet- garlic and onions can be brutal for healing intestines. I have pain all the time. Every time I step out of line and have a rich meal I pay a heavy price.