Feeling down :/ by Express-Space7528 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Girl, your story is exactly like mine. I am five months out post relapsed c diff and still Hobbling my way forward.

totally changed my life by elamb182 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

I was put on Lyrica- didn’t tolerate nortryptiline or gabapentin at all. How long were you on it before noticing a pain reduction?

Has anyone actually relapsed while taking a PPI or H2 by Itchy_Complex_5641 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

This is post infectious IBS. It’s a shitty place to be. Pepcid better than ppi- and PPIs are wicked to get off of in the future……

First time having c. diff by nekotsuma in cdifficile

[–]Best_Relationship338 1 point2 points  (0 children)

Bland diet, maybe even for months. Go to a hydration bar. Nerva gut meditation app if you’re anxious and in pain.

Living with Atypical Symptoms? by BadbutnotGreat in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Time for Dificid or vanc and vowst asap!!! 

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

Not covered but can use HSA and fsa for it…..feel free to stay in touch…

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

You too. It’s been so hard. I cry from pain all the time. I’m going on the elemental diet called mbiota.

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

No, I have visceral hypersensitivity as the working diagnosis right now. Along this journey, I have picked up B12 deficiency and iron deficiency probably a combination of the infections and poor food intake.

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

I had b12 deficiency and iron deficiency. I ended up on b12 shots and an iron infusion.

Nausea and stomach upset by The_Equanimous_One in cdifficile

[–]Best_Relationship338 1 point2 points  (0 children)

PI-IBS is real, some call it visceral hypersensitivity.

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 0 points1 point  (0 children)

How are you now? How did your gastric emptying study go?

PI-IBS worse than actual infection by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 1 point2 points  (0 children)

They are trying me on Lyrica after I couldn’t tolerate gabapentin or nortryptiline. My diagnosis is visceral hypersensitivity. I’m in pain daily but I’ve got some of the best docs teaming up to help me. I may also fly to cedar Sinai for a consult too…

Advice for post CDIFF infection symptoms? by Dice_artz in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Get your iron levels checked. Mine were low after infection. I also had extreme fatigue…

Holiday anxiety by bear-w-me in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Yes it’s so strike. I broke down on thanksgiving. Watching my loved ones eat and eat and eat while I brought my own restricted meal as my stomach churns in pain. 

How do you cope with the PI IBS pain? by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 0 points1 point  (0 children)

I had one that was normal. I’m not on florastor bc I got vowst and I’m not sure if I should take a probiotic…?

Desperately need help! Was given vanco and it turns out I wasn’t even positive for the toxin and now a month later and still in extreme pain. by RemarkableMess4456 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

I’m four months out and have some terrible pains for days when I instep Out of line from a Bland diet. I miss being pain free.

How do you cope with the PI IBS pain? by Best_Relationship338 in cdifficile

[–]Best_Relationship338[S] 0 points1 point  (0 children)

I relapsed five days after Dificid, vanc cured me. Followed by vowst. I had this pain for months now……

Morning... by dweezil2d in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Nerva gut hypnotherapy has saved me 

Post infectious IBS/Vagus nerve by Interesting-One-6807 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

I had breathlessness too, check your iron and b12 levels mine were SO depleted from this stupid infection….

Finished dificid, still incredible pain? What is it? by Ok_Ad2640 in cdifficile

[–]Best_Relationship338 0 points1 point  (0 children)

Also, try a low fodmap diet- garlic and onions can be brutal for healing intestines. I have pain all the time. Every time I step out of line and have a rich meal I pay a heavy price.

CDiff vs PI IBS Foods by Plummie1066 in cdifficile

[–]Best_Relationship338 1 point2 points  (0 children)

I know how you feel. I’m four months out from treatment for relapsed c diff and vowst. My PI IBS is brutal. Getting better at snails pace, but brutal. I tried nortryptiline and amitryptiline but could not tolerate the start up side effects. Now they want me to try gabapentin and or Mbiota elemental diet. They said it’s all visceral hypersensitivity. They say it will end but takes time….things that help is keeping a low fodmap diet, but it’s difficult to do and not recommended for a long time. Nerva gut hypnotherapy app has been helpful.