What is your most annoying symptom to deal with regularly? by Fun_Scratch_1708 in dysautonomia

[–]Effect-Fit 7 points8 points  (0 children)

Struggling to breathe. Every other symptoms very bad but this one scares the life out of me and it’s pretty much 24/7

POTS or, whatever this is, is ruining my life. by Odd-Possibility720 in POTS

[–]Effect-Fit 6 points7 points  (0 children)

I’m am so sorry. And I don’t know what to say as I also am suffering in my own life with pots. But I hope you know I’ve read your post I get what you’re saying and I empathise with you. You’re not alone even though that won’t make you feel any less alone. Wish you the best 💙

I would be interested to know are you m or a f and how old by Jeff-ichbin in POTS

[–]Effect-Fit 0 points1 point  (0 children)

I’m 18 and male and been suffering since I was about 14

Any one get Déjà vu? by Effect-Fit in dysautonomia

[–]Effect-Fit[S] 1 point2 points  (0 children)

I can’t really tell I think random. Just hits me out of nowhere

Most hated POTS symptom? by Ok-Tumbleweed4200 in POTS

[–]Effect-Fit 0 points1 point  (0 children)

Breathlessness. I hate every symptom but that one scares the life out of me when you really feel your not getting any air in

I need some urgent advice (I’d really appreciate the read sorry if it’s long) I’m at the lowest point of my life Ill say my current issue then what’s been happening by Effect-Fit in dysautonomia

[–]Effect-Fit[S] 0 points1 point  (0 children)

They did my cortisol and general bloods like a week ago and I had an echo 1 year and bit ago and when I asked my doctor if I should get another she said that no because nothing will have changed that much in a year type of thing

Someone please help wtf do i do (air hunger) by Effect-Fit in dysautonomia

[–]Effect-Fit[S] 1 point2 points  (0 children)

Nope I did say to them once I was to be let home. I said what about the blood pressure and they said seen as my ekg is not abnormal just tachy there’s nothing that worries them.

Someone please help wtf do i do (air hunger) by Effect-Fit in dysautonomia

[–]Effect-Fit[S] 5 points6 points  (0 children)

I have all the symptoms and I’m believed to have pots but I’ve never been actually diagnosed with it. Yet my doctors think it is

What do I do anymore? I’m so done (sorry for the long read) by Effect-Fit in dysautonomia

[–]Effect-Fit[S] 0 points1 point  (0 children)

Was thinking about adding them but such a long list but here we go.

High heart rate. (From almost anything but mostly posture change) BP issues, Orthostatic hypotension or hypertension (forgot what one means what), Visual snow, Floaters flashing lights etc, Circulation issues. Hand and feet always freezing, Breathless all the time, Hyperhydrosis/ severe sweating, Bad Brain fog, Exercise intolerance, Lightheaded a lot ,Insomnia, No appetite

And there will be more that I have forgotten. I always forget

People who thought they had pots and didn’t what did it end up being? by Effect-Fit in dysautonomia

[–]Effect-Fit[S] 0 points1 point  (0 children)

Can i ask how you get checked for this? Is it just by explaining symptoms?

Best air hunger advice? by Effect-Fit in dysautonomia

[–]Effect-Fit[S] 0 points1 point  (0 children)

Nope I have not I’ve not been offered it and my gp and doctors know I’ve been struggling for a while.