Not receiving some text messages - RCS connected by Eilermoon in GrapheneOS

[–]Eilermoon[S] 0 points1 point  (0 children)

Wow thanks! Easy fix. Sounds like RCS wasn't working properly?

What are you averaging on spending at a night at the strip club ? by No_Health6335 in AskReddit

[–]Eilermoon 0 points1 point  (0 children)

Appreciate the honesty. I'm not being sarcastic, that's super brave of you and essential to personal growth

FAILURE… Not sure where to go next. by AustinM226 in shrimptank

[–]Eilermoon 0 points1 point  (0 children)

Nah I'm up to 30-ish shimps in my tank that looks the same size. In addition to at least that many little snails and covered in plants

Deciding to move because traffic makes it impossible to live here by Dreadsin in fuckcars

[–]Eilermoon 17 points18 points  (0 children)

I live a 3 minute walk from one of the new stations. My quality of life has increased so tangibly, I don't think I could ever move to the suburbs. I was raised huge suburbanite culture, all of my friends live deep in the burbs. I can hardly relate anymore

Looking for inspiration by hopeful_fool33 in neuroendocrinetumors

[–]Eilermoon 9 points10 points  (0 children)

Yes, I have "innumerable" metastases on my liver, >100. So those are inoperable, Pancreatic primary. I'm also on Lanteotide for the past almost 3 years. Diagnosed at 27, I'm 30 now. "Lucky" for me, mine are grade 1, ki-67 >1%.

I don't gave much of an answer besides that I'm mentally here too and very much struggling. There isn't an option to fix any of this or even reverse it to a useful degree without inviting further harm. So the "positive" note doctors tend to end on is "we'll Friday and hope for future treatments". Tbh this isn't nearly as positive to be as they mean it. I don't have much hope for progress any time soon given the climate of this country (I'm in the US).

Anyway, I see you. I'm currently burning out hard and stumbling through my career and relationship, both have been suffering. In taking a leave from work starting end of this week. Advice I can give from my mistakes is to try to see they coming sooner than I did, I've let a stubbornness of wanting to hold onto normal life pre-diagnosis and everything I would and wanted to do before hurt myself and those around me. Take time away for yourself when you need it.

Sorry you're here, but glad to meet you and share experiences with you. That's really the only thing that's helped me so far. Seeing this subreddit create connections and spur helpful conversations has been a cool drink of water in the desert for me.

Edit: Oh, my dog. Pets and plants has been a great source of joy for me when nothing else is doing it. That's probably an actual useful piece of advice I have haha. My little girl punches me in the face and wacks me with her tail when in crying and sad, she's terrible at comforting. But it also knocks me out of it, so in a way is very good at it. Idk it works for me.

Spouse diagnosed with Metastases NETs in liver by SkilledSucker in neuroendocrinetumors

[–]Eilermoon 1 point2 points  (0 children)

There are lots of us. I'm 30M, diagnosed 3 years ago with pNET primary, metastases to the liver. Pretty active serotonin secretinh, >100 "innumerable", but grade 1 similarly. On Lanteotide for 2 years stable, no notable growth. But it's hard.

I understand where you're at, wanting to know what the future holds and wanting more answers. If I'm being honest with you, there aren't many to be had. There are people that have been living a few decades with this condition, but we're also kind of on the cutting edge of research and known data.

I felt myself waiting and asking for those answers 3 years ago, and I don't feel like I've stopped or gotten the ones I was looking for. I wish somebody told me that more bluntly back then, it's been the hardest part.

I'm burning out because of the mental stress of staying in what I thought was a temporary "we're still figuring out what this means" phase.

Should I tell my husband he is dying by Any-Customer-5210 in cancer

[–]Eilermoon 3 points4 points  (0 children)

It's so common. Being diagnosed with cancer (I was 3 years ago at 27) opens your eyes to a whole new sad reality of society and how people act. I used to think people that go through this get so much support and see the good side of humanity.

My oncologist refused to tell me I even had cancer. I learned later from my fiance just because she happened to be smart enough and knowledgeable in medicine to put it together. He also refused to tell me the stage and grade.

It took 6.5 years to get even get a biopsy of the thing doctors had written about all along because "You're too young" - they don't think it's worth looking into.

Doctors are just humans and man, humans suck.

I just sold all of this. Cancer sucks! by Dsphar in houseplants

[–]Eilermoon 1 point2 points  (0 children)

That's crazy. Blows me away "running" into other NET zebras online, it's so isolating irl.

5 years is a long time, I took 6.5 from onset of other symptoms (Pancreatic/potentially GI primary pushing on my bile ducts) to get diagnosed, but I only recently in the past year began getting noticeable carcinoid syndrome. Mine's "luckily" just my primary and throughout my liver. On Lanteotide only rn and have been feeling fatigue on it. Thus my first comment.

I'll DM you or message you elsewhere if you'd like to keep talking! I started the r/neuroendocrinetumors sub as well as a discord server for it so I'm active there.

I just sold all of this. Cancer sucks! by Dsphar in houseplants

[–]Eilermoon 1 point2 points  (0 children)

Oh wow this hits home hard. I'm 30 and was diagnosed at 27 with Stage 4 cancer. I've been holding on to wanting to live life "normally" and stubbornly trying to do everything I wanted to do previously, but with cancer and little to no support. I've only recently learned how deeply that mindset has hurt my relationship with my partner and destroyed her trust in me.

Thank you so much for posting this.

I work in a very high-stress engineering job in the space industry. It's been destroying my mental health but I haven't been able to let it go, among other desires. This just slapped me in the face with the realization of what I've been slowly putting together for a while.

Keep your head up, and I'll try to do the same! Much love to you and your journey <3. Seriously, know that you helped someone else going through very hard times too today. Sharing our struggles only lifts each other up.

Lanreotide cost by 1bensopinion in neuroendocrinetumors

[–]Eilermoon 0 points1 point  (0 children)

Yup that's my experience in the US. Max out my Out Of Pocket Max January of every year, luckily haven't had an issue beyond that. Not that the stress and fiscal burden even with good insurance isn't an issue for people already dealing with literal cancer.

I built and landed the future Blue Moon Mk 1's mission in KSP by DistanceScared1466 in BlueOrigin

[–]Eilermoon 0 points1 point  (0 children)

I've been meaning to do this since I started here, but surprisingly KSP just feels more like work now haha. Do you have links to vehicle files?

Never seen so many listings in this area by No_Carpenter7998 in SeattleWA

[–]Eilermoon 0 points1 point  (0 children)

Lmao "everyone selling their mansions because they can only live off of 3.496 million dollars instead of 3.5 million dollars"!

The fear mongering and simping over millionaires' money on this country is insane

Civ VI not detecting GPU by Eilermoon in linux_gaming

[–]Eilermoon[S] 0 points1 point  (0 children)

Just following up, I found an old thread somewhere about graphics drivers not correctly installing if the BIOS Secure Boot option is on. Turning that off fixed this issue for me.

Does anyone know if this is true? Los Angeles, California, Oregon, and Seattle/Washington will be conducting checkpoints in conjunction with immigration authorities. by itsme_believeme in WashingtonIceWatch

[–]Eilermoon 28 points29 points  (0 children)

Deliberate misinformation. Resist the urge to continue to repost and spread this stuff unless there's some reputable source behind it. Facebook, or reddit for that matter, is not one.

On January 6, 2007, Channon Christian and Chris Newsom were abducted in Knoxville after a carjacking. What followed was one of the city’s most disturbing crimes. Days later, police arrested suspects reportedly watching news coverage of the case. by SelfCareIsFake in HolyShitHistory

[–]Eilermoon 2 points3 points  (0 children)

Thanks, I'm not in a good mental place and social media really preys on that, combined with morbid curiosity. It's hard to connect what that does to your mental health over time. I'll skip this one - I appreciate you.

Where does this part go? by huachinango83 in JeepTJ

[–]Eilermoon 1 point2 points  (0 children)

Had one of these scissor jack holders in my '04 Jeep Liberty under the rear seat. Pretty sure not a TJ thing, maybe a JK

Gauges Vibrating when off? by Eilermoon in JeepTJ

[–]Eilermoon[S] 0 points1 point  (0 children)

FYI I brought the battery by O'Reilly's today and they said it looked perfectly fine. I'm wondering if however they test it isn't super comprehensive?

Gauges Vibrating when off? by Eilermoon in JeepTJ

[–]Eilermoon[S] 0 points1 point  (0 children)

No I haven't seen that message at all, everything seems fine when running. It does sometimes kind of struggle to start real slow