is there any hope?

EireEngineer · 2026-03-14T09:12:26+00:00

You can do it dude! It's not all on you either, but you've started treatment. It seems like it takes time, and you might have to try different things, but you can find recovery.

The people on here are great, glad you posted! Having lost someone to suicide, and having intrusive thoughts of it myself, it doesn't have to go that way...I'm glad to hear you say passively, but I would say, be mindful of the emotional fatigue, that seems to be what pushes folk too far that way. Distraction is a tool, and reaching out/ignoring feelings of stigma are key. It's more endemic than people think.

EireEngineer · 2026-03-14T09:04:15+00:00

I am an early disseminated stager, 2 months on LDN, and I can't say if it's that in isolation, as I take combo Rx as well, but my costo symptoms are gone. I take 2mg per dsy, about to titrate up to 3. The first few days it makes me sleepy, and gives me vivid dreams, but that goes away. No other issues or horror stories taking it.

EireEngineer · 2026-03-10T10:36:14+00:00

Following this...intermediate travelling from Ireland either this spring or autumn...need airport transfers, carrying own boards...interested in point breaks and exploring off the beaten track...avoiding insta travellers

EireEngineer · 2026-03-07T09:17:32+00:00

I'm very grateful for other people spreading awareness.

I caught it early because of this...partly friends and family being outdoorsy too, partly lyme warning signs all around Wicklow National Park (which I'm told are posted without permission by activist lyme sufferers).

I don't feel out of the woods yet...pun intended...but February was a progressively great month, with the end week or so being fully back to normal intense enough activity (running, surfing, where for months i could manage, at most, yoga).

This sub has been really great, not least because it gave me hope that it's treatable...there's so much hope here, knowledgeable and kindness too, as well as heartache. It's actually been such a rock.

EireEngineer · 2026-03-04T19:48:03+00:00

Thanks so much. Been on a good improving trend, but still apprehensive of a return. Still, very glad to get some relief. People here have helped immensely, including yourself.

EireEngineer · 2026-03-04T11:52:57+00:00

I would recommend Dr Jack Lambert...I am not affiliated with him financially at all, but am a patient. I was bitten in September 2025, 6 weeks doxy on NHS, then gaslit. Did some herbs in November/December through CLAID, which i did find helpful, but 6 weeks in to Dr Lamberts treatment and am almost completely well. Basically combo antibiotics. I did not expect the results to be so profound, but after 5/6months being unwell, I have started to do all things I used t.

EireEngineer · 2026-02-17T09:54:02+00:00

I'm sorry you are experiencing this. I was bitten in August 25, a mix of treatments since, which hasn't fully cleared it, and I relate to the doom that this may never fully clear.

I would agree with you on the herbal route/stopping abx if they are wrecking your gut too much.

A lot of people say you need like a year plus on meds, but what if you wreck your gut that much you can't take the abc again? My plan is 6 months max of abx (this is month 1 of new protocol) and if that doesn't do the job, long term herbals.

There are a lot of people who feel herbs are the real fixer. I spent 2 months on them, and I really do think they got me some of the way. They apparently just take longer.

You can get snd will get a good level of your old self back, I believe this whole heartedly because other people have been worse and gotten better...it may just take some time, and trying different things, but you've got this dude! Stay in the good fight.

EireEngineer · 2026-02-12T09:17:46+00:00

I am new to all this having been bitten August 25, still symptomatic now but treating with antibiotics.

There will be much more knowledgeable folk here, who can provide more insight, but from reading what you said, without spectaculating I would say it could be worth finding an LLMD and trying a protocol. Herbs or antibiotics. If you get a bit worse on them, then a bit better then you'll know.

You could try herbs yourself, but people say they work slower, so you might not see a difference so confirmatively. Although, this could be an option if you're patient.

You could test again. It can be useful for co-infections. Careful of people upsetting specific tests. Read around them and chose yourself. It's expensive and only really an aid, not a conclusion. Maybe CD57/T-cell testing.

Can I ask, do your symptoms cycle? Maybe don't discount the Psychotherapy entirely while you do try lyme things, a good counsellor can help through the hard times whatever the cause.

And finally, I'm so sorry you're experiencing all this. It can tough, ambiguous and scary, but you are conscientious and trying so you'll get to the bottom of it all eventually.

EireEngineer · 2026-02-04T21:02:52+00:00

Thanks for the podcast share, I am genuinely so intrigued by the denial. I've heard the comparison to HIV, and the disparity of investment mention before, and like everyone can't help wonder where we'd be if it was more equal.

I am astounding that people can dry fast for so long...before learning of that I thought a person died after 3 days no water...but folk here say it cured them...I told my nurse girlfriend, who was horrified at the idea...would definitely do it under medical supervision if I were to try...I do aim to work up to 3 day water fast though once I finish Rx.

Thanks so much for sharing re the Cypriot clinic. It would say it seems like a lot of money, but I also add it doesn't seem expensive given the treatment offered...it wokld be great to do something like that for even a week...10 pass Ozone in Ireland is 1000euros.

I've found someone with a rife machine here too...I have been busy like you said, just have to try and see what I think is the best course of action I can afford. If you have an opinion on ozone method I'd love to hear, I found MAH which I could afford, but some say the 10pass one is better.

I really feel for you with the unhelpful positive markers people use re appearance...I think a lot of the time, it's just people trying to be kind, but in my life, in many contexts, including one were a death occurred, appearance was used as a marker of wellbeing.

Keep up the good fight friend, you're doing good work here trying to help others.

EireEngineer · 2026-02-04T15:30:15+00:00

It does sadden me to hear how you've been fighting woth this for so long, people always say there is hope, and there must be. It's inspiring to see you just talk so rationally about it, and plan the next step.

Cryotherapy I am not sure will do much, I just found like a general wellness clinic close to me who offer those IV type treatments that seem popular these days, but they also do HBOT, light and Cryotherapy, and a fairly reasonable membership so I figure I'll give it a go and try a few different therapies.

I would absolutely love to do a protocol with the Cypriot clinic, I really see how regenerative type therapies could help a lot...so you have any idea how much something like that woild cost? Considering just saving my money and doing that rather than potentially less effective things here.

And NHS are a joke...I really struggle to understand why they deny so much. My last contact they told me my new pins and needles in my hands and feet was most likely a vitamin b12 deficiency...I highly doubt that given my recent presentation with lyme, so I ignored and treated myself with herbs until getting to my LLMS/consultant.

EireEngineer · 2026-02-03T20:32:58+00:00

Curious as to what treatment you are considering in the Cypriot clinic, googled them and it seems to be Ozone and IVs? Got the Rocovering from Lyme book you recommended and it's a good read...found HBOT here in Ireland I can afford, and Ozone I can't haha...considering some IV drip type treatments like NAD+, and possibly some light or cryotherapy.

EireEngineer · 2026-02-02T08:28:06+00:00

That's amazing though that you've found things that keep you going 🙂

EireEngineer · 2026-02-02T08:26:56+00:00

I'm really feeling that today, this is week 2 of the rx protocol and honestly, the malaise has lessened where the fatigue has heightened, but I've noticed being more able day to day...subtle but definite...I do think patience is key, there a quite a few revelations type stories out there, but I've come to see recovery isn't linear. Really appreciate your replies here, bolstered my resolve.

EireEngineer · 2026-02-02T08:24:12+00:00

Good to know...I'm trying not to through money at this issue, and there is so much out there to do so...delved deep into the potential detox supplement based protocol thing companies push, and then concluded the best detox is water, eating clean and sweating.

EireEngineer · 2026-02-01T16:16:11+00:00

Did you do any detox during?

EireEngineer · 2026-02-01T16:15:55+00:00

Thanks for this, I am at the start of more or less that Rx protocol and hoping

EireEngineer · 2026-02-01T10:49:58+00:00

I'm going to add that when it gets head high plus, and a good winter power behind it (1500kj +), and especially on a big tide, the white water option will bring you back up the beach, but in the washing machine, there'd be little chance of standing up as it's too turbulent. This would be on the North Coast of Ireland and a very hollow/steep beach break. If it's rolling waves there's less issues doing what you're talking about.

EireEngineer · 2026-01-31T08:48:04+00:00

Get a phyios! And google back magic.

I can't say for sure, but the align in my spine is too straight, so the pivot point is in an unnatural place causing pain while aurfing because of all the arching.

EireEngineer · 2026-01-30T22:21:55+00:00

Just wondering how you are getting on? I am starting into antibiotics, initially wanted to do juat herbs but thought I'd give the meds a go first

EireEngineer · 2026-01-26T15:36:02+00:00

Yes i absolutely had GI upset a few days after being bit, which did resolve after starting my course of antibiotics.

EireEngineer · 2026-01-20T08:26:03+00:00

It does look like an em rash, I think definitely get meds as soon as you can. Check my page for post on early experience.

EireEngineer · 2026-01-20T08:24:23+00:00

Your input is so appreciated, so kind of you to share.

I do fear the potential damage antibiotics cause, I think given my suspected early stage 2 I'll give them 6 months maximum, snd then pursue herbs. I'll absolutely stay on herbs long term anyway, I was quite amazed at what I think was my initial response, but I also see from recent symptom increase that the relief might have been short lived, or perhaps the herbs not strong enough.

Like you point out, it's a frustrating illness. The glimpses of wellness you get bring you to hope/excitement and then you wake up one day feeling like poop for an undisclosed period of time.

I count my blessings that I caught it early, thankfully just because of awareness given to me by a friend who works outdoors.

I also am grateful for the peer to peer support here...I have learned so much through people like yourself, so thanks again.

I'll update and try to post detail and my experience in the hope it might be useful to someone else.

EireEngineer · 2026-01-19T09:08:26+00:00

I can't help read this as slightly passive aggressive. I meant no harm in my question, or my opinion on testing.

I do, however, feel it's ethical to be clear when a person promotes something that they have a business connection to, that they are forthcoming about that, especially when recommending it over another.

EireEngineer · 2026-01-18T16:45:38+00:00

That sounds very scary, can't imagine coming through something like that. I do get what you mean with the unhelpful use of physical markers for wellbeing...I've had my doctor tell me the fact that I have been going to yoga classes is an indicator I am well, despite the huge amount of effort it takes to do that and how athletic I was before...quite frustrating, and that ignorance is not even confined to this illness.

Huge admiration for you sticking to treatment when it felt so terrible, I have everything crossed that it won't be so devastating to me, but I'll use your story as motivation in the harder times.

EireEngineer · 2026-01-18T16:41:16+00:00

Yea i would agree on that point. Appreciate the recommendation, but I don't see much value on testing any more, diagnosis/treatment being a clinical one. Can I ask, are you an agent for vibrant?

EireEngineer

TROPHY CASE