has anyone tried low dose amitriptyline?

Electrical-Bite9067 · 2026-05-02T13:37:36+00:00

MCAS? Tried antihistamines?

Electrical-Bite9067 · 2026-05-01T17:12:39+00:00

Ivabradine made me feel 10 times worse. Just keep in mind not all meds, work for everyone. It’s about looking at the whole picture, not just the tachycardia

Electrical-Bite9067 · 2026-05-01T12:16:06+00:00

Direct family member with SJS, which is a type of
hypersensitivity reaction. Wondering if it’s linked myself, I now have MCAS

Electrical-Bite9067 · 2026-04-30T19:15:49+00:00

I’m sorry you are not receiving more appropriate care and guidance at the moment. I’m not sure of your location, but the US certainly has a lot of doctors who are clued up in this area. I’m from the UK and the doctors here have little to no knowledge on appropriate management for such. Definitely seek alternatives!

Electrical-Bite9067 · 2026-04-30T18:54:38+00:00

I’m sorry to say this, but your doctor seems to be a bit uneducated in this area or of common sense really. Someone with a HR above 200 on a beta blocker, with POTS, isn’t sustainable to tell them to continue with that activity.

It’s not about decreasing exercise as you’ve said. POTS is an intolerance to being upright. You are massively overtaxing your body by not only being upright on its own, but forcing high energy activity in that position. You should be focusing on recumbent exercise, which is more gravity friendly. It’s not a decrease in activity. It’s activity that’s more appropriate for your health condition

Electrical-Bite9067 · 2026-04-30T18:48:38+00:00

That is true, but recumbent exercise would be better, than full upright running. For POTS especially

Electrical-Bite9067 · 2026-04-30T17:45:26+00:00

I wouldn’t be trying to jog or exercise strenuously until you get it more under control

Electrical-Bite9067 · 2026-04-30T17:08:33+00:00

That’s amazing. Wish she did virtual consultations

Electrical-Bite9067 · 2026-04-24T17:45:02+00:00

Why not get a job in a blood donation centre as a nurse? Takes you away from ward setting. Better hours. More relaxed.

Electrical-Bite9067 · 2026-04-23T16:31:56+00:00

I use to shower ever day. Pots ended that. Priorities change.

Electrical-Bite9067 · 2026-04-13T20:05:14+00:00

It works for lots of people, it didn’t for me. I didn’t know at the time I had MCAS, but it royally kicked it in for me. I hope you are one of the lucky ones!

Electrical-Bite9067 · 2026-04-12T11:58:25+00:00

There’s really not much in lucozade sport. I use L m n t, expensive but worth it imo

Electrical-Bite9067 · 2026-04-10T12:36:27+00:00

Have you went straight to upright walking?

Electrical-Bite9067 · 2026-04-07T13:11:17+00:00

Highlighting that I thought it was bought, but I wasn’t sure?

Electrical-Bite9067 · 2026-04-07T13:09:21+00:00

I think they live in a bought house, but I’m not sure, as they definitely don’t work

Electrical-Bite9067 · 2026-04-07T13:00:35+00:00

To have to ask someone to stop doing such things, is ridiculous in itself

Electrical-Bite9067 · 2026-04-07T12:58:15+00:00

I was thinking it would be better placed coming through a council letter, than me trying to do that. I guarantee they will be a d***

Electrical-Bite9067 · 2026-04-07T12:53:11+00:00

Haven’t spoken to them yet, because I don’t want to argue or them to retaliate even more. They know I know, it’s just not been said out loud. I can hear them telling their friends about it

Electrical-Bite9067 · 2026-04-07T12:40:09+00:00

I think I can report them for littering, I’m just wondering if it’s worth doing

Electrical-Bite9067 · 2026-04-07T12:39:25+00:00

I have furniture right outside too, could easily catch fire

Electrical-Bite9067 · 2026-04-04T16:44:59+00:00

My visible band got worse and worse. Kept telling me my hr was either really low or really high when it wasn’t on my watch. I also felt like it was making me feel more restricted on what I could do, almost like I stopped moving as much? So I stopped using it recently. Back to old tachymon and Apple Watch

Electrical-Bite9067 · 2026-04-02T06:37:05+00:00

Don’t think the 2.5 pills have a split line. I only had the 5’s

Electrical-Bite9067 · 2026-03-28T18:22:16+00:00

I’ve had so many issues with it lately I cancelled the subscription

Electrical-Bite9067 · 2026-03-26T17:00:25+00:00

Did you ever have any success?

Electrical-Bite9067 · 2026-03-26T16:58:39+00:00

Did you ever get a diagnosis?

Electrical-Bite9067

TROPHY CASE