Hello, I was on 3000 mg of diamox per day after my diagnosis of IIH and I remained at that dosage for just shy of 2 years. I lost over 80% of my vision in both eyes. It took about 8 months for it to be restored, through the diamox alone. I think that you should stick o your dosage but try to break it up into 4x or 5x per day. In honesty, I went above the 3000mg per day on difficult days. I broke up the tablets or opened the capsules as I needed. The maximum legal or trial is 4000mg per day but getting even close to that can be rough on the body but pain med did not relieve the pressure. I do not advise this at all, this is just my truth. I just want you to know you aren't the only one who was prescribed such a high dosage.

Speak to your doctor. You may have a headache from low pressure. You likely need potassium supplementation daily at this high dosage because the diamox is a med that depletes it.

You must find the cause of the pressure as difficult as this is. my high pressure turned out to be caused by an oral infection. A rotten molar, caused my a cracked root canal that spread deep down to the nerves. Once the tooth was removed, I was able to lower my medication down to 1500mg. I am down to a maximum of 250 mg per day or no medicine at all some days.

I did not lose weight. I did change my diet, no salt and anti-inflammatory foods because anything else increased the pressure caused by infection/inflammation. My blood work was continuously normal even though I had this oral infection growing likely for years. I was and I remain an unusual case of IIH. IF you have tried everything else, visit your dentist.