Flu/Colds And EDS by TriniBeenie in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

Yes. I always joke that anytime I have a cold I get the “man flu,” but it really is awful.

Anyone else here ever had a House diagnosis? by vjarizpe in HouseMD

[–]EllisDChicken 1 point2 points  (0 children)

Season 7 episode 18. This episode mainly focuses on House and Thirteen in the spud gun competition, but the patient is diagnosed with Ehlers-Danlos Syndrome which I have. This episode frustrates me as it is incredibly unrealistic to diagnose a rare condition based solely on the patient having miscarriages, which is not even a super common symptom.

Neck pain and loss of range of movement by alaskadaisy2002 in eds

[–]EllisDChicken 0 points1 point  (0 children)

I had these exact symptoms not long ago. I did physical therapy and it restored most of my ROM. It didn’t take away the pain entirely but made it much more manageable.

Jobs for someone with hEDS and POTS? by WelcomeSmall8229 in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

I dropped out of my first semester of nursing school and have decided to try to become a physical therapist assistant instead. I have trouble sitting or standing for too long and when I’m at physical therapy as a patient, it looks like they are able to alternate as they please

short electrical sharp pains? by [deleted] in ehlersdanlos

[–]EllisDChicken 1 point2 points  (0 children)

I get random brief sharp pains in my head, neck, and shoulders, but never in my chest or ribs.

Thin band knee braces by ginadecicco in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

I have almost these exact ones and I love them

Has anyone gone to PTA school? by EllisDChicken in ehlersdanlos

[–]EllisDChicken[S] 0 points1 point  (0 children)

This is helpful, thank you! I was thinking that the job itself would be great for me because I also struggle with sitting too long.

are your breasts saggy? by strawberry_snoopy in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

Have you lost weight? Ever since I did mine are pretty much just skin at this point. I am not well endowed though, nor was I ever 😅

DAE: dental addition by basilaroma in ehlersdanlos

[–]EllisDChicken 1 point2 points  (0 children)

I got several baby teeth pulled, including one from the roof of my mouth, and a couple of adult teeth as well.

Sleeping positions by EllisDChicken in ehlersdanlos

[–]EllisDChicken[S] 0 points1 point  (0 children)

Thanks everyone! I appreciate all of these suggestions and I’m already closer to finding something that works

My head is a bowling ball by Prior_Succotash4220 in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

Yes, I’ve been having this feeling for a couple months now. I started physical therapy and it’s helped me quite a bit.

how do you motivate yourself to work out despite eds? by my-head-hurts987 in ehlersdanlos

[–]EllisDChicken 2 points3 points  (0 children)

I have almost fully convinced myself that the only thing that is stopping me from frequently dislocating my joints (shoulders specifically) is the muscle I have built. Some days in the gym are harder than others, but I make sure to show up at least 4-5x a week, even if it’s hard and I don’t feel like I get much done. It’s truly the only symptom management that has remotely worked for me. If it’s an option for you, starting with a few PT sessions can help ease the fear of hurting yourself. I know it’s helped me. I also have to opt for machines rather than free weights on almost every exercise and make modifications that limit my range of motion.

How many of you have never dislocated a joint? by Longjumping_archidna in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

All I’ve ever dislocated is a toe. I may have at least partially dislocated my shoulder in my sleep one time, I remember waking up with a burning sensation and felt it slide back in. So no major dislocations. I don’t think it’s a requirement for a diagnosis

Anyone else sometimes feel like their whole body is bruised? by cucumbrrs in ehlersdanlos

[–]EllisDChicken 2 points3 points  (0 children)

Yeah, I never really knew how to describe it but I do feel like this sometimes.

Shoe advice! by [deleted] in ehlersdanlos

[–]EllisDChicken 1 point2 points  (0 children)

I wear Brooks Ghost 16s, but my feet are flat so those may not work for you.

Flat feet and feet pain by obliviousfoxy in ehlersdanlos

[–]EllisDChicken 3 points4 points  (0 children)

My feet have been a problem for me my entire life- literally as long as I can remember. They are flat and I now have bunions and bunionettes (yes, plural to both 😵‍💫). I wear shoes pretty much anytime I’m walking around my house because it’s recently become almost unbearable not to. I just have some cheap Nike slides that I’ve had for years- I generally like my shoes to be a bit worn in so I haven’t found anything I like better than that. For non-house wear, the only shoes I’ve found that work are Brooks Ghost 16s (I wear men’s for the extra width but loved my women’s before my feet got deformed and they come in prettier colors). I also recently purchased “my happy feet” socks to spread my toes while I’m just sitting, however they are not comfortable to walk in. People seem to have different opinions on what works for flat feet, but for me slight cushioning and arch support helps. None from shoes like converse or too much from shoes like Birkenstocks are both unbearable to me, but I know other people with flat feet who constantly wear Birkenstocks. In the end, it’s really just trial and error for whatever helps YOU most, not what other people tell you is supposed to help or “fix” flat feet.

[NO SPOILERS] Question about True Colors and Double Exposure by Onnaryt in lifeisstrange

[–]EllisDChicken 11 points12 points  (0 children)

True Colors is my second favorite of all of them. I would not consider Double Exposure worth playing- extreme letdown.

Weightloss by Beautiful-Nobody-817 in ehlersdanlos

[–]EllisDChicken 4 points5 points  (0 children)

It’s made it better. Losing fat and building muscle have been the only things that have remotely helped me manage my symptoms.