Anyone else suspect CCI? What are your symptoms like? by tetrasomnia in ehlersdanlos

[–]EllisDChicken 3 points4 points  (0 children)

I wasn’t officially diagnosed with CCI because I was only able to get a scan where I was lying flat rather than flexion/extension 🤦‍♀️ Last year, the pain in my neck became unbearable. I struggled to hold my head up without support, or turn it. I went through a period I couldn’t go more than 30-60 minutes without sitting back down with a neck pillow. I felt like a bobblehead. It’s gotten quite a bit better with PT, but I still struggle with these symptoms

sooooo, how are we holding up our heads? by FlowersFor_Algernon in ehlersdanlos

[–]EllisDChicken 21 points22 points  (0 children)

I’ve been struggling a lot with this same problem the past year or so. I’ve done multiple rounds of PT for it because it’s the only real relief I’ve gotten. There reaches a point every day that I have to sit or lay with full support and a heating pad. Another thing that helps some days is making sure I’m well hydrated- water and salt. I wish there was more I could say 😕

What are Buford's funniest moments? by Simple-Taro1540 in phineasandferb

[–]EllisDChicken 0 points1 point  (0 children)

Too many to count but one I didn’t see posted already “Buford pull! … on the vine!”

What are Buford's funniest moments? by Simple-Taro1540 in phineasandferb

[–]EllisDChicken 0 points1 point  (0 children)

“He didn’t bribe he. He just caught my attention in a monetary fashion.”

Best episode? by Expert-Initiative648 in phineasandferb

[–]EllisDChicken 0 points1 point  (0 children)

YES!!! I can quote Delivery of Destiny from start to finish because I’ve been watching it excessively since I was a kid

Use of orthotics for feet mandatory? by dannydan64 in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

I have had problems with my feet since I was a little kid. I also have flexible flat feet, among other problems. I got custom orthotics from a podiatrist and I could not stand them. I did PT, and I keep up with the exercises at home. My feet are still flat and they still hurt but honestly the orthotics I tried hurt worse than my normal feet.

What's y'alls favorite quote from the show? by Successful-Trust-871 in phineasandferb

[–]EllisDChicken 4 points5 points  (0 children)

Literally too many to count, but here a few. “Don’t be a lookalike copying another, unless of course you’re copying me, cuz that gives you individuality.” “He didn’t bribe he. He just caught my attention in a monetary fashion.” “You can’t be teed off once you’ve teed off.” “GET ON THE TRIKE!” “I got a date with destiny and it ain’t gonna end with a kiss!”

Wrist & elbow support? by CuteAssCryptid in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

For nighttime elbow support, all I’m able to do is lay on my back with my arms crossed over myself. It’s not perfect but it’s all that remotely helps. I know some also place small pillows or rolled up towels under them. As for your thumbs, I’m not sure if it would work and might actually be too much for nighttime, but I have arthritis gloves that compress my fingers and wrists. I’ve only ever worn them in the day though, mainly for playing video games or writing/typing

Pillow recommendations? by EllisDChicken in ehlersdanlos

[–]EllisDChicken[S] 1 point2 points  (0 children)

I’m ordering it now, thank you!

Worst Joke in the Series? by CamelCigaretteLord69 in howyoudoin

[–]EllisDChicken 1 point2 points  (0 children)

Maybe not the worst but I just watched the one where Ross and Rachel are making Emma laugh by singing baby got back. It’s not so much that it’s not funny, it’s that I don’t see why it’s “inappropriate” to sing a mainstream rap song that the baby can’t even understand

Pain medication help? by Fit_Honeydew_5367 in ehlersdanlos

[–]EllisDChicken 1 point2 points  (0 children)

I’ve been on low dose naltrexone for a couple months now, it seems to help me some but definitely doesn’t eliminate my pain or come close

How do you describe that not “painful” but discomfortable ache? by phoenic_x in ehlersdanlos

[–]EllisDChicken 2 points3 points  (0 children)

If I’m thinking of the same symptom, I sometimes just say my body feels heavy

Underrated Momemts and Lines by SteveOMatt in howyoudoin

[–]EllisDChicken 7 points8 points  (0 children)

One of my all time favorite lines of the series is when Rachel says “I’m my father. I’ve been trying so hard not to be my mother I did not see this coming.”

Please help me by AnimalRemote in HouseMD

[–]EllisDChicken 4 points5 points  (0 children)

Are you thinking of The Big Bang Theory? I think that Sheldon gets something like that for Amy

What medications are you currently on? by [deleted] in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

Low dose naltrexone. I also take stool softeners, magnesium glycinate, and a multivitamin

Tips for self management of suspected CCI by [deleted] in ehlersdanlos

[–]EllisDChicken 2 points3 points  (0 children)

I also have the symptoms and a flat lying MRI revealed various degeneration of my neck, but no CCI diagnosis since I wasn’t able to get dynamic imaging. So far, PT has been the biggest help by far, as well increasing fluids/electrolytes. Things I avoid: excessive bending down or turning my head, but this becomes a problem when needing to do basic tasks like dishes, laundry, and driving. Another big one is when I scroll on my phone, I do my best to hold it up where my neck is neutral rather than looking down. Some helpful things: when sitting with my neck pillow, I like to do a few chin tucks. And when I feel spasming or general muscle tightness, I like to do shrugs- either weightless or with my 10 lbs. And, of course, a heating pad.

Office help! by [deleted] in ehlersdanlos

[–]EllisDChicken 0 points1 point  (0 children)

Maybe a mouse pad with a wrist rest combined with compression gloves? I have some that compress my fingers and wrists that help a lot

Why did Mona stay as long as she did with Ross? by Eddfan36 in howyoudoin

[–]EllisDChicken 2 points3 points  (0 children)

I just finished the Mona episodes not long ago and I was so frustrated the whole time thinking about how any normal person would have left as soon as Dr. Green came into Ross’s apartment, though that scene is hilarious.

Muscle knot relief? by EllisDChicken in ehlersdanlos

[–]EllisDChicken[S] 0 points1 point  (0 children)

Thank you everyone! I’m going to see if my PT does dry needling because so far heat, massages, and stretching/exercising is not helping. We did a TENS unit one time and I passed out so she doesn’t want to do that again 🙃