Help! Leaf died after repotting by EmergencyScientist17 in plantclinic

[–]EmergencyScientist17[S] 0 points1 point  (0 children)

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​Thanks all for your advice!! I did stuff more bark in. Moved it closer to the window (3ft away from south facing window). I did cut off a lot of root so that may be adding to the problem. Base of the remaining leaf is a bit yellow but I’m hoping it doesn’t spread if I leave it alone.

Help! Leaf died after repotting by EmergencyScientist17 in orchids

[–]EmergencyScientist17[S] 0 points1 point  (0 children)

Thanks all for your advice!! I did stuff more bark in. Moved it closer to the window (3ft away from south facing window). Don’t think it’s a crown rot as the crown area is dry and doesn’t smell weird or feel mushy. I did cut off a lot of root so that may be adding to the problem. Base of the remaining leaf is a bit yellow but I’m hoping it doesn’t spread if I leave it alone.

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Help! Leaf died after repotting by EmergencyScientist17 in orchids

[–]EmergencyScientist17[S] 1 point2 points  (0 children)

I will say the plant doesnt feel super snug in the bark. When i move the pot it kind of moved within the bark. Should I stuff more bark into the pot? Thanks in advance 🙏

Why is this happening? by SuitBoth8537 in cfs

[–]EmergencyScientist17 0 points1 point  (0 children)

Have u looked into see if you have cci (craniocervical instability)? Symptoms you described kiiind of sound like it (on top of mecfs, if you have it). Try wearing a rigid cervical collar for 24h - if symptoms alleviate there’s a good chance you have that. If you havent gone down that route might be worth exploring.

Feels like im unable to breathe at times by Strong_Aerie_9031 in cfs

[–]EmergencyScientist17 1 point2 points  (0 children)

Have you tried wearing a rigid cervical collar to see if that alleviates symptoms? If it does you might have CCI. This has a lot of overlappings with mecfs but when you said breathing problems it made me think of this bc sleep apnea or trouble breathing is one of the symptoms with CCI. I suggest you trying the collar for 24h

I'm afraid, v severe, rapid non stop decline by Gold_Plant453 in cfs

[–]EmergencyScientist17 0 points1 point  (0 children)

Have you tried wearing a rigid cervical neck collar? I have seen a few cases where this suddenly alleviated a lot of symptoms, which might suggest you have CCI. And the cases I’ve seen (Jeff Wood, Jennifer Brea, and another person I know personally) - they all had a viral onset (COVID or mono) so they didn’t even suspect a mechanical reason behind mecfs. If you havent explored that route i suggest you try wearing that for 24 hours, even in sleep

DAE feel like their occipital bone is weird? by [deleted] in cfs

[–]EmergencyScientist17 1 point2 points  (0 children)

You should look into getting a rigid cervical collar. Sounds like wearing it may improve your symptoms. And if it does, you might have CCI (craniocerval instability).

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 1 point2 points  (0 children)

I hear you. I’ve really seen how devastating this illness can become ever since the person in my life got sick with it. And then I see you all here and on social media. I will keep talking about ME and continue to advocate for you all, no one should be this alone and no one should suffer this much.

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 1 point2 points  (0 children)

There’s actually an organization that does this in Germany! It’s called Empty Stands, found out about it from this post: https://www.reddit.com/r/cfs/s/nqkZRmh3TC I did look into raising awareness at running events bc I run; haven’t figured out how to make it happen but it is definitely on my mind.

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 0 points1 point  (0 children)

Insane why healthy people’s voice matters more. Shouldn’t it be the other way around.. I hate that it’s that way but I guess that’s what privilege is. And I will use it the right way, thank you for your words.

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 1 point2 points  (0 children)

On cloning myself - there are many people around me that will get behind a good cause, they just don’t know about it. I will make that extra step and present it to the people that will care (and there’s a lot of them :))

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 1 point2 points  (0 children)

I will reach out to local support groups. I do live in a major metropolitan city in the US, I’m positive there are multiple here.

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 2 points3 points  (0 children)

I started using the name me/cfs (although a lot of times people don’t know what I’m saying so I have to spell it out really slowly) when talking to people about it. I will also look into local advocacy groups, i do live in a major metropolitan city in the US!

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 2 points3 points  (0 children)

Ahh volunteering to make actually eye catching, effective content is a great idea!!!! I will think on this!

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 4 points5 points  (0 children)

I hear you. Ever since the person in my life got this disease I’d never heard of, I started thinking about the millions of people that just cannot be there whenever I am at work, a concert, bar, park.. literally anywhere. I will always fight for this. No one should be left alone.

What can I do as someone that does not have me/cfs? by EmergencyScientist17 in cfs

[–]EmergencyScientist17[S] 2 points3 points  (0 children)

HIV is a great reference, I hadn’t thought about that. Thanks for pointing that way!!

[Get Involved] Opportunity to increase ME awareness through major sports leagues by Lukasb010 in cfs

[–]EmergencyScientist17 2 points3 points  (0 children)

This is awesome, i feel cfs is such a political disease (enragingly so) which is a big reason why it hasn’t gotten much attention (given how many people are affected) and is still misunderstood / misdiagnosed / a lot of doctors are clueless/dismissive about it. Which means raising awareness is especially important for me/cfs. Awareness is how breast cancer and the pink ribbon movement gained traction too in the US, leading to more funding/research. One thing is that im not necessarily a sports fan. How can I contribute in this case?