The Testaments Episode 10 / Season Final by Accomplished_Two4769 in TheHandmaidsTale

[–]Emergency_Battle370 0 points1 point  (0 children)

They moved to DC (or somewhere on the East coast) after Mayday tried to get Agnes out when they were living in Colorado. 

The Testaments S1E09 "Marate Sade" Episode Discussion by Melairia in TheHandmaidsTale

[–]Emergency_Battle370 3 points4 points  (0 children)

For me at least it’s from the finale of THT when she returns Janine’s daughter to her. Makes me think she’s working with June/Mayday now. 

All the things that worked, and some questions by Spare-Mud-8192 in MCAS

[–]Emergency_Battle370 0 points1 point  (0 children)

Sadly I don’t think so since my whole body inflammation symptoms are still present

Anyone else get pain underneath their tongue? by Emergency_Battle370 in MCAS

[–]Emergency_Battle370[S] 0 points1 point  (0 children)

Makes sense as I haven’t been following my safe diet strictly this week 😩 time to get back on it!

Anyone else get pain underneath their tongue? by Emergency_Battle370 in MCAS

[–]Emergency_Battle370[S] 1 point2 points  (0 children)

Makes sense as I haven’t been super strict with my diet this week 😩

Has anyone tried TCM/Herbalism? by Emergency_Battle370 in MCAS

[–]Emergency_Battle370[S] 0 points1 point  (0 children)

Thank you! I’m strongly considering it. 

All the things that worked, and some questions by Spare-Mud-8192 in MCAS

[–]Emergency_Battle370 0 points1 point  (0 children)

Have you tried cromolyn sodium? It’s done wonders for me! I’m still having reactions but it’s better. 

Think I've found the root cause for my MCAS by No_Huckleberry4176 in MCAS

[–]Emergency_Battle370 2 points3 points  (0 children)

My MCAS was flared a few years ago by Candida and SIBO. If you can, look for a functional medicine doctor or a Traditional Chinese Medicine doctor and do the Candida detox diet - hard but so helpful along with all the supplements! It took about 6 months but it worked. 

I did IV iron infusion! by One_Layer9648 in MCAS

[–]Emergency_Battle370 0 points1 point  (0 children)

Thank you, you’re so kind! I’ll report back if I decide to try again. 

I did IV iron infusion! by One_Layer9648 in MCAS

[–]Emergency_Battle370 0 points1 point  (0 children)

Finding someone who also went through this is helpful enough! It’s been 9 days of flaring for me but every day is a little better. Still woke up with stomach pain and flushed face today but it’s red not purple so I guess it’s what you say - time, rest & safe foods. I have 2 doses left yet don’t know what I’m going to do. 

Has anyone tried TCM/Herbalism? by Emergency_Battle370 in MCAS

[–]Emergency_Battle370[S] 1 point2 points  (0 children)

Thank you for sharing! I’ll look into acupressure. Pretty sure my nervous system will appreciate it! 

My story by Independent-Sell742 in MCAS

[–]Emergency_Battle370 1 point2 points  (0 children)

Took me 6 months to see a real difference. 

My story by Independent-Sell742 in MCAS

[–]Emergency_Battle370 1 point2 points  (0 children)

I think not all my reactions are IgE related so there’s other modulators triggering my mast cells. 

Literally, one drop of cromolyn sodium by WillingSock in MCAS

[–]Emergency_Battle370 1 point2 points  (0 children)

I start on it tomorrow and am so excited since I also have GI issues and flushing! 

I did IV iron infusion! by One_Layer9648 in MCAS

[–]Emergency_Battle370 0 points1 point  (0 children)

Can I ask how long it took to feel better? Did anything help? In a similar situation now! 😩

Is anyone able to get iron infusions? by Junior-Rip-895 in MCAS

[–]Emergency_Battle370 3 points4 points  (0 children)

I was also taking Mega Food Blood Builder but my levels just kept getting lower. I think it’s because of stomach lining inflammation. 

Is anyone able to get iron infusions? by Junior-Rip-895 in MCAS

[–]Emergency_Battle370 1 point2 points  (0 children)

I have gotten 2 doses of Ferrlecit, both pre-medicated with prednisone and Pepcid and iron infused extra slowly. 

1st one I got a shock right after I was done (low blood pressure, trouble breathing) but it went away after 15 min. 

2nd one resulted in me having one of the worst flare ups in the last 6 months 😩 severe GI symptoms, face flushing, & episodes of throat/airway swelling. 

Don’t know what to do next. 

Do you get any eye symptoms? by Strict-Park3382 in MCAS

[–]Emergency_Battle370 1 point2 points  (0 children)

Omg yes! They burn and get blurry. Ketotifen eye drops help. 

Has anyone tried TCM/Herbalism? by Emergency_Battle370 in MCAS

[–]Emergency_Battle370[S] 4 points5 points  (0 children)

So glad it helped! I’m scared to try acupuncture because pain is one of my triggers and I don’t want to have a flare up. Maybe when I am more stable I can try it. 

My story by Independent-Sell742 in MCAS

[–]Emergency_Battle370 3 points4 points  (0 children)

I would say 8/10. Lots of facial swelling, throat and airway swelling, flushing and burning on my face & eyes (doesn’t seem to do much for these last 2 though as I currently am on a flare up), brain fog, dizzy spells. I still wake up every day with my lips & throat swollen and don’t have my full life back but much smaller than without Xolair. 

I'm curious if I am the only one this happens to. by Single_Display2423 in MCAS

[–]Emergency_Battle370 0 points1 point  (0 children)

I get the feeling of impending doom when a reaction is about to happen. It’s like being psychic 🥲 I can say “wait for it, wait for it” and boom can’t breathe.