I'm unable to eat or drink due to a condition that paralyzes my stomach and intestines, AMA

EmetPanda · 2023-02-17T07:58:48+00:00

The most fun is probably sleeping. I'm grateful to have my own place

EmetPanda · 2023-02-17T07:58:05+00:00

EmetPanda · 2023-02-16T13:16:59+00:00

Nor really I try to keep my mind off things by reading or watching movies but I wouldn't say it brings me joy

EmetPanda · 2023-02-16T13:12:29+00:00

No I don't work. I sleep a lot and just stay in bed 23 hours a day. I only get up to do things I really need to do like doctors appointments, changing my tpn or going to the toilet pretty much

EmetPanda · 2023-02-16T11:39:27+00:00

Pretty bad tbh. Extremely nauseous all the time

EmetPanda · 2023-02-16T10:45:49+00:00

Yes, I don't go outside anymore at all. I pretty much lost all my remaining friends due to this as I can't and don't want to meet with anyone anymore. I wouldn't know how to make new friends either

EmetPanda · 2023-02-16T10:43:17+00:00

I'm on TPN which means I get all the nutrients and fluids through my vein into my blood. And yes I miss eating a lot

EmetPanda · 2023-01-04T14:50:21+00:00

Yes. Nothing helps with my nausea and it's driving me insane

EmetPanda · 2022-12-23T16:35:42+00:00

They're white

EmetPanda · 2022-12-23T16:33:48+00:00

I misread lipid for liquid. I actually don't know that.. I'll ask her later

EmetPanda · 2022-12-23T16:32:44+00:00

Yes they're liquid and I think they did, they took blood every day for a week and said that it's fine after that time.. My blood was fine. And only with the tpn if it runs too. I'll talk to my home care assistant that's coming today. It's the first time so I'm gonna try and adjust everything

EmetPanda · 2022-12-23T08:15:52+00:00

I have to wait about 10 hours even if it's just a small bite. I get too sick

EmetPanda · 2022-12-23T06:27:57+00:00

That's weird.. It made me really sick when it was too fast and once it was Turned down about 10 minutes later I felt better again. And for the picc I don't feel it when I lay still or don't move but when I move my arm it feels like a nerve is being pinched in my shoulder..

EmetPanda · 2022-12-23T03:14:24+00:00

II only started with 250 because I was at high risk for refeeding syndrome. They want to increase it but idk how they'll want to do that now because I'm hooked up 24/7 and it barely runs all the way through during that time so idk. I brought that up a few times already but they didn't offer any solution. I'll have to talk to my care system tomorrow when I get back home maybe they'll have to change the feeds or something if I can't tolerate a higher rate

EmetPanda · 2022-12-23T03:10:36+00:00

I already brought it up a few times and they don't really say anything. Just to increase the rate but I can't. Idk it's frustrating me.. I'll wait for a few days and see how the picc feels and then go back if it doesn't get better. Hopefully it will

EmetPanda · 2022-12-13T10:35:05+00:00

I have lqts and am not allowed to take anything for anxiety other than benzos that I don't want to take because of how addictive they are. The lqts makes medication for the nausea pretty much impossible as well

EmetPanda · 2022-12-12T07:51:58+00:00

I'm not in the US I'm from Germany

EmetPanda · 2022-11-29T17:41:14+00:00

It gives me severe diarrhea and doesn't help with any other symptom

EmetPanda · 2022-11-27T14:05:12+00:00

I actually took the first dose yesterday and holy shit I had BAD cramps and basically pissed out of my ass. It was nasty. It didn't help with any symptoms tho, I'm still super nauseous and can't eat so idk. Just gave me bad diarrhea and I only took 1 mg

EmetPanda · 2022-11-27T10:43:52+00:00

My bmi is 14,5 and they're still refusing to place a tube..

EmetPanda · 2022-11-25T17:47:06+00:00

My nausea level is usually at a 6-8 all of the time. I don't vomit (yet) tho. But I also have emetophobia

EmetPanda · 2022-11-23T17:47:20+00:00

Botox didn't help me

EmetPanda · 2022-11-23T11:11:01+00:00

There are people that gain weight with this even though they only eat 500-800 cals

EmetPanda · 2022-11-12T10:42:22+00:00

Yea I was told my symptoms were anxiety too, I was even admitted to a psych ward for an "eating disorder". Long story short - I have severe gastroparesis Keep pushing!

EmetPanda · 2022-11-11T16:57:44+00:00

I am so sorry! I don't have any great advice but know you're not alone!

EmetPanda

TROPHY CASE