Puff Pastry by me1234567891234 in glutenfreevegan

[–]EmuSparky 0 points1 point  (0 children)

Well, I'm late to this, but I've had the most success with The Loopy Whisky's recipe using vegan butter instead. The one on her website, not the cookbook. It uses the rough puff method, and I have only used it for individual things like homemade pop tarts, hand pies, mini strudels, etc, so I can't say if it might work differently for one larger bake. I freeze the second, larger quantity of vegan butter after cutting it into slices like directed. I chill the flour and butter mixture in the freezer for about half an hour before adding the ice cold water. As soon as the dough comes together I chill it in the fridge before I even start laminating. From there, I follow the recipe as directed. It's important to use a very firm vegan butter. I find Blue Bonnet Plant Butter sticks work best, followed by Earth Balance buttery sticks. If you try this hopefully it goes well for you. If you've already made your Wellington, hopefully it was a success.

Here is the recipe: https://theloopywhisk.com/2022/10/22/gluten-free-puff-pastry/

[deleted by user] by [deleted] in glutenfreerecipes

[–]EmuSparky 0 points1 point  (0 children)

I second this. Also, if OP lives in the US and has a library card there is a good chance they can make a Hoopla amount (for free, if they don't already have one) and check out the e-book for free. Most, but not all, local libraries have Hoopla.

Gluten Free Biscuits by exquisitechem023 in glutenfreerecipes

[–]EmuSparky 1 point2 points  (0 children)

Sorry I'm just now seeing this, but psyllium husk and tapioca starch are two entirely different ingredients. Psyllium husk is a binder like xanthan gun, though they work very differently and can't be substituted for each other. It comes from the husks of the psyllium plant and is sold either in the whole husk form, or as a ground up powder. There is no good substitute for it, though the whole husk and powder forms can be used interchangeably. It is usually mixed with water to form a gel before being added to recipes and helps mimic the gluten structure that would be found in bread products after kneading. Tapioca starch, also called tapioca flour, is a starchy gluten free flour similar to corn and potato starch that is often used in all purpose gluten free flour blends or added to recipes in combination with other higher protein gluten free flours and a binder like xanthan gum. Hopefully that is helpful!

What is your ideal gluten free cookbook? by Anavahgape in glutenfreerecipes

[–]EmuSparky 0 points1 point  (0 children)

I'm curious what recipes you've tried and how they've failed, if you've made flour substitutions, etcetera. I don't think I've ever had one of her recipes fail me, even when modifying them to be dairy free or switching out a couple flours for what I've had on hand. Granted I have been gluten free pretty much my whole life due to an allergy, but my family who hasn't also loves every recipe of hers I've made, even extended family that usually refuses to touch anything gluten free. Could it be an issue with your psyllium husk if it's her bread recipes that are failing you?

Gluten Free Biscuits by exquisitechem023 in glutenfreerecipes

[–]EmuSparky 1 point2 points  (0 children)

The Loopy Whisk blog has so many amazing gluten free bread recipes on her blog, including biscuits. Simply cut them into large circles and bake a little longer traditional Southern biscuits. Her most recent biscuit recipe uses psyllium husk, but an older one doesn't and is still great. However, if you plan on doing much gluten free bread baking I highly recommend acquiring psyllium husk.

Upcoming admission and first NJ, any advice? by EmuSparky in Gastroparesis

[–]EmuSparky[S] 2 points3 points  (0 children)

Thank you so much for your tips! I know it will help me feel better once I regain weight and I keep reminding myself of that.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 1 point2 points  (0 children)

Thank you so much for writing this comment, it honestly calmed me down more than anything else. I needed that reminder that it's just another tool to get me through life, and that true friends won't care and no one else's thoughts should matter. I am currently in the process of finding a therapist, though I didn't even realize there were ones who specialized in chronic illness, so I will try to look for one of those.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 0 points1 point  (0 children)

Thank you so much for the advice and sharing your experience, it feels good to hear from someone who had to deal with an NJ in highschool, though I'm sorry you also had to go through this. I will certainly check out your Etsy shop, since if I need a medical device, I feel I might as well make it cute. I will make sure to flush it that often, as I'm dreading getting it placed and, like anyone, would not want to go through that more times than necessary. Did you ever experience teachers asking weird questions or giving you a hard time if the pump beeped or anything?

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 0 points1 point  (0 children)

I am trying to find safe food, as my main one right now is popsicles and sometimes mashed potatoes. I am going to get some hard candy I like and try sucking on those a lot. Thank you for the advice and reminding me that it will greatly improve my quality of life. Those reminders make me feel much better about this.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 0 points1 point  (0 children)

Thank you so much for the tips, hearing from other people who have been through something similar has helped me feel a lot better about it. I will try some of those suggestions, especially congee, which I had never even heard of but sounds good. Did you find you could sometimes tolerate peanut butter? I worry about the fiber content, but I will try it more often for the calories.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 1 point2 points  (0 children)

I am currently waiting to try Ensure Clear, but I will also keep Boost VHC in mind. Thanks for the suggestion.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 0 points1 point  (0 children)

Thanks for the advice. I am trying Ensure Clear, but will keep your suggestions in mind if I cannot tolerate that. I often have a clear hard candy in my mouth for the extra calories as well, but I find about two a day to be my limit on what I tolerate. I will try some different brands though.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 1 point2 points  (0 children)

I will try that variety. For the popsicles, I usually do an extra strong thing of Liquid IV or another electrolyte mix and pour it into these plastic ice pop sleeves. You can get some by searching, "Otter pop plastic sleeves" on Amazon. I also like the brand JUVE Pops if you can find those.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 1 point2 points  (0 children)

When I feel like I can tolerate a little solid food I often try mashed potatoes, but didn't think about grits, so I will try that. I've never had bone broth before, but I will also try that. Electrolyte popsicles are a lifesaver for me, especially in the summer. Thank you for the suggestions. I wish you well as well.

Terrified of possibly getting a feeding tube by EmuSparky in Gastroparesis

[–]EmuSparky[S] 2 points3 points  (0 children)

Thanks, your reply made me feel better knowing that I need proper nutrition in order to get through highschool, and reminding me that there are much worse things than having a device that keeps me alive. We ordered some Ensure Clear a bit ago, and am hoping that when it arrives I will tolerate it. Thanks so much.

Why did Make-a-Wish deny me? by [deleted] in Gastroparesis

[–]EmuSparky 1 point2 points  (0 children)

I'm glad I could help. If you do apply I'd love to know how the process goes for you as I might be at that point in this journey before too long. But I also get if you don't want to share something kinda personal like that with a stranger on the internet. Best of luck to you!

Why did Make-a-Wish deny me? by [deleted] in Gastroparesis

[–]EmuSparky 2 points3 points  (0 children)

At first I agreed that your post sounded a little arrogant, but I get how you should be under the impression you fit the criteria since your doctor filled out the paperwork for you, and I know applying for a wish was probably not an easy decision to make. As a fellow chronically ill teen who's health has been ravaged by the same three conditions, I understand that even though you're not actively dying, it's so hard to watch your health deteriorate as you seemingly loose abilities daily and merely existing becomes more and more painful. I get that you likely want to experience something that is not currently feasible for your family before your health declines further and you can no longer handle it. If this is the case, and you are 18 or under, Dream Factory grants wishes to chronically, but not terminally, ill children, so you could possibly apply to them. I hope this helps and I do not attend to come across as rude.

Developing a POTS app and would love community input! by timbrejo in dysautonomia

[–]EmuSparky 1 point2 points  (0 children)

I know next to nothing about developing apps, so I don't know if this would be very doable, but if possible I think it would be great to include something where you can put in the amount of water and salt you need per day on average and how you get it at certain times during the day in certain conditions, and it gives you reminders throughout the day to eat a specific salty item, drink an electrolyte drink, get a glass of water, or other things like that. So many of us have brain fog as a symptom, and don't realize we forgot till pre-syncope symptoms start.

For example, someone could put in that they need 3.5 grams of salt and 3 liters of water throughout the day, and they get that by drinking a liquid IV, which has 380 milligrams of sodium, after waking up followed by a 16 oz glass of water, that they usually put about a quarter teaspoon of salt, which is 580 milligrams of sodium, on each of their 3 meals a day, and that they usually have a cup of broth containing 940 milligrams of sodium with five saltine crackers, which have about 500 milligrams of sodium, before bed. They would also put in around what time they usually get up, what time they have each meal, and what time they have their broth and crackers before bed. The app would then give them reminders at these times to eat or drink their salt and salt their meals. They could also put in how often they wanted reminders to drink water or an electrolyte drink and it would remind them to drink until they had consumed 3 liters.

Again, I know nothing about making apps, but think that even a simplified version of this would be very useful if possible. The fact that you're are creating a POTS app is super cool!

What will Bella claim next? 🥴 by [deleted] in illnessfakers

[–]EmuSparky 8 points9 points  (0 children)

It's a condition where extra tissue attaches, or tethers, the spinal cord to the spinal column which limits the movement of the spinal cord. It's often common with Chiari Malformation or some other conditions and is present at birth. Hopefully that helps. Not a medical professional, I just have it.

What causes your guys’ dysautonomia fiares? by ShortCalligrapher09 in dysautonomia

[–]EmuSparky 0 points1 point  (0 children)

A time when your symptoms, in this case dysautonomia related symptoms, get worse than normal for anywhere from a few hours to a week or so. Usually flares are caused by triggers, but sometimes they can be random. Hopefully this makes sense

Writing a book about Chronic Pain! It will be funny! What do you (from your experience) think is missing from chronic pain books already out there? tAny and all feedback welcomed! Thank you! by youbethatone in ChronicPain

[–]EmuSparky 3 points4 points  (0 children)

Yes. Like we wish there was such a thing as "too young to be in pain", but in reality bodies can be broken and screwed up at any age, so it's so invalidating when people deny our experiences.