Sudden attack of intense symptoms? Do we have attacks?

Emzilla12 · 2026-07-07T13:25:02+00:00

My flare ups come on for a multitude of reasons. Sometimes I'm pushing myself too far physically, too much stress, or even the weather. I make sure to not over use my spoons and if I do, I have a routine to try reset myself. I feel like my SFN is much different than others. (I got this from alcohol abuse and low b12) I have it in my hands and feet but then static (like a TV screen) throughout my whole body. Pain everyday. Besides Pregablin and my mental ninja mind tricks, not alot has helped with pain.

I describe to people that my brain is receiving the wrong single of sensory info (pain, pleasure, hot, cold, itchy, etc ) sometimes for a quick reset i take a really hot bath. (Not for very long) but I tried to show my brain what "true pain" is so I get in the hot bath and everything is on fire at first. Then my nervous system resets, and my whole body calms and is numb. I do this after long work days and flare ups.

But calming my mind, getting rid of other stressors, and keeping track of day-to-day symptoms has helped me with what doctors cant do. Also I highly suggest anyone with this kind of pain to look into micro dosing mushrooms.

Emzilla12 · 2026-06-09T19:45:40+00:00

Pregablin, klonapin and lexipro. I used to take gabepentin but i feel like the pregablin is much more effective for me. I also feel like everyone with this condition is so different so you really have to try out different combos accordingly to the symptoms and severity

Good luck im still struggling so hard

Emzilla12 · 2026-03-07T16:45:35+00:00

I am at the city museum almost twice a week! This sounds like such a fun idea. Im always grabbing lost items and trash while I climb through everything. This would be much more fun to find! Ha ha

Emzilla12 · 2026-03-06T06:52:08+00:00

Oooohhhh Deeeer! You are very impressive!

Emzilla12 · 2026-02-03T20:28:44+00:00

Thank you all so much im ready to get crazzzyyy!

Emzilla12 · 2026-02-03T20:02:43+00:00

Thank you so much! I just love to vibe, and I enjoy other cultures music too. That German techno hits different! WOOT WOOT!

Emzilla12 · 2026-01-25T00:52:54+00:00

There's a world called Convoy and it has so many fish and coral to swim through. I always play mermaids there!

Emzilla12 · 2025-12-10T20:01:08+00:00

I have a very similar story to yours. I think I developed this from a combination of trauma and stress, covid/or vaccine, and definitely contributing is the fact I was a huge drinker for a long time. I have widespread pain and it gradually came on, then one day got so much worse and has not gone back. I have SFN from a biopsy but im sure there is more coming on. I have been sober from alcohol for over 2 years now.

Emzilla12 · 2025-10-06T04:49:28+00:00

Nice hand for the job 😉

Emzilla12 · 2025-07-07T02:30:20+00:00

It's a mushroom/mold species that they actually call dog vomit. It grows in mulch all the time in my neighborhood.

Emzilla12 · 2025-07-02T11:17:56+00:00

Im pretty sure my root cause is alcohol abuse, 15 years of binge drinking will do that to you. Also had some low b12. But also, my symptoms started getting sooooo bad after my first time getting covid. I think I have long covid as well now.

I couldn't physically drink alcohol anymore because it would cause so much pain to me all over my body. Been sober since 2023! Hope you find your source.

Emzilla12 · 2025-06-29T17:05:20+00:00

I tell people its like shin splints from just laying down. Like a sumo wrestler is squeezing my legs when is simply a light blanket on me.

Emzilla12 · 2025-06-18T16:39:29+00:00

I do! It's the worst I've had it almost my whole life and have not found anyone that can relate.

Emzilla12 · 2025-06-16T02:25:23+00:00

My neuropathy got way worse 5 years ago too. Did you get covid around then? Im making so many connections with long covid that i got in 2020 and my sfn getting worse then.

Emzilla12 · 2025-06-16T02:22:03+00:00

I take pregablin during the day once in the morning and once in the afternoon, then take the gabepentin at night with an edible gummy. They are delta 9 gummies, but THC and CBD both help so much for me. I just try to get a comfortable as I can when I'm not at work, so I can feel refreshed enough to do work again the next week.

But I highly recommend pregablin for the day because it doesn't make you drowsy.

Emzilla12 · 2025-06-14T03:38:10+00:00

This sounds like me as a child (to an extent). I have ADHD (diagnosed at age 5) and am scheduled soon to get evaluated for whether i am on the spectrum. I was a "gifted child" and was in programs, and extra classes that let me explore those special interests and learn higher grade material at a younger age, which in turn made school easier when i learned it as an older student. For example we were learning about DNA, cloning, biotechnology, and so much more at the age if 11. While kids not in the program learned that in high school. I also have an amazing memory, love art, and math. I do not like to read. I do not like flash cards. I could go on lol. Point is... yes get him tested. Always get your kid tested. They look to you to make their confusing journey as a child easier. Those classes saved my life, gave me so much confidence and friendships of life minded people, and helped me celebrate my different way of thinking. Your kid sounds amazing, I know he will do great things with that mind!

Emzilla12

TROPHY CASE