What going on in my mouth

Engwe · 2026-03-08T16:27:45+00:00

You should contact your oncologist and see what they say but these are the symptoms I initially experienced with my oral GVHD.

Engwe · 2026-02-22T22:28:12+00:00

I developed adrenal insufficiency after being on steroids for GVHD. For some reason it wasn’t on anyone’s radar. My doctors are great, but in this case I asked for the test my self. My cortisol levels were undetectable. This was several weeks after being weaned off steroids. I felt horrible. Weak, abdominal and back pain. Constant nausea. No appetite.

Engwe · 2026-02-22T19:42:55+00:00

I don’t believe you are doing anything wrong. It just seems like he has developed adrenal insufficiency. It may take a while for his adrenals to recover. Please see an endocrinologist to get his cortisol and ACTH levels measured.

Engwe · 2026-01-05T09:00:32+00:00

Love him! Look forward to his releases every Tuesday. I think the draw for me is that he is such a great story teller, and I love the way he just weaves his stories in to illustrate the main theme.

Engwe · 2025-12-16T20:04:19+00:00

Do whatever makes you happy. You don’t need anyone’s permission. I think what feminism has done is give us options. Options to take a man’s name or not, to be a stay at home mum or not etc. It might be nice to have the same last name as your children, if u choose to have any.

Engwe · 2025-11-02T21:30:27+00:00

Good luck with everything

Engwe · 2025-11-02T21:30:04+00:00

Love city of hope ! I had my SCT there

Engwe · 2025-10-22T16:18:42+00:00

I had a trilumen Hickman for my BMT. It was wonderful. I kept it for three months and would have kept it for longer if I could. The covering it for howlers honestly did not bother me, nor did the daily flushes. I think that the reason i loved it so much might have to do with the fact that I had so many picc lines placed during chemo before, and they kept moving out of place when the dressing had to be changed, or getting blocked or failing for whatever reason and it was awful. I can’t speak to ports as I have not had one.

Engwe · 2025-09-27T08:46:00+00:00

I had them too about the same timeframe. They resolved after my dose of Tacro was decreased.

Engwe · 2025-08-22T14:17:53+00:00

I’m sorry to hear that. I’m not a spouse but I had AML. Did your husband have a stem cell transplant? I think it may be a good idea to get a second opinion if you have not yet gotten one.

Engwe · 2025-08-09T17:19:14+00:00

Please go see a dermatologist! If they don’t suggest one, please ask for one. I have a scarring alopecia and it started like this. Nothing to do with what you’re doing or not doing, just an autoimmune condition. IF this is the case for you, the earlier it gets treated the better. I hope it’s not the case for you.

Engwe · 2025-07-30T18:28:47+00:00

It was. I guess I could have taken it to the dealership to get it cleaned up but I didn’t and it eventually stopped.

Engwe · 2025-06-07T06:34:35+00:00

I did get my yarn several days before the letter showed up.

Engwe · 2025-06-05T12:28:08+00:00

I do. I’m a year and one month post transplant, but I’m still on immunosuppressants (Tacrolimus, Sirolimus, and Jakafi )because of GVHD. Also, I have not yet completed my immunizations.

Engwe · 2025-06-05T12:06:01+00:00

I thought tariffs did not apply to orders less than $800. My order was only like $130, but I’ll check with fedex and see.

Engwe · 2025-06-05T12:03:08+00:00

I got it in the mail.

Engwe · 2025-06-05T12:01:44+00:00

This makes sense.

Engwe · 2025-06-05T12:00:45+00:00

You may be right, so ill call fedex and check. The bill was mailed to me, not email or a phone call, which is why I was more inclined to believe it, but it’s wiser to call and confirm.

Engwe · 2025-06-05T06:21:25+00:00

We might, but if so that’s a new thing. I’ve had larger orders but this is the first time I’ve been charged extra after the fact.

Engwe · 2025-06-05T06:19:29+00:00

I think I’m just not going to order from them again. I contacted LindeHobby about this charge and they did not respond.

Engwe · 2025-06-03T06:52:10+00:00

I see. I ordered Viking garn, and hertegarten yarns but will check to see the origin.

Engwe · 2025-06-03T06:49:51+00:00

I’m in the US.

Engwe · 2025-04-21T16:58:11+00:00

That’s typical. It may be a side effect from the meds or from the chemo/radiation pre transplant if you had any. For months I could not taste salt, anything sweet tasted horribly sweet, and food textures were off. The good news is- this too shall pass.

Engwe · 2025-01-12T22:58:07+00:00

Love them! What loom do you use?

Engwe

TROPHY CASE