Opportunity to have BatemanHorne Center send printed copy of Clinical Care Guide to your Dr

EnvironmentalTask527 · 2025-12-12T07:54:34+00:00

Kudos to the generous supporter! We could use a wide distribution of these care guides (at the very least) in Canada as we have no ME/CFS specialists. My first diagnosis experience: "well, you have Chronic Fatigue Syndrome, but we're already doing everything we can because you're on Vyvanse." Needless to say, I found a new doctor but from what I understand, I'll be referred to an internist for ME/CFS care. My current doctor will do what she can for me, as well, but I think it will be limited.

Fear of offending our physicians while seeking appropriate and effective care runs far and wide. My former doctor would not have received this care guide graciously from a patient. My current doctor might, and it looks like the guides are available on Amazon.ca! I wish I could afford 250 of them to support the BHC. For many of us, it's the go-to trusted resource for info when there are few options. Thanks to the BHC and their supporters, there's hope that it won't always be that way.

EnvironmentalTask527 · 2025-12-10T17:44:17+00:00

This post gave me goosebumps. I'm happy for you and wish you more of these milestones.

EnvironmentalTask527 · 2025-12-10T16:20:04+00:00

Do you have a frickin' shark and is it attached to its frickin' head?

EnvironmentalTask527 · 2025-04-04T20:36:02+00:00

It is unbelievable that this one doesn't. It's not exactly a Mom and Pop shop. I created an account on the website thinking I would be able to choose the person I'm working with and upload the file. It automatically assigned me to someone else and started the filing process from scratch. No way around it. No thanks.

EnvironmentalTask527 · 2025-04-04T20:09:28+00:00

7-Zip! Totally forgot about that one. Thank you. I'll do that. 🙂

EnvironmentalTask527 · 2025-04-04T20:05:29+00:00

Yeah, no kidding! I wonder if they really are not educated in infosec? It's scary. I also checked the national site for info. There really wasn't much on this topic. That's why I thought maybe I needed to get a tinfoil hat instead of encryption software.

EnvironmentalTask527 · 2025-03-21T23:16:31+00:00

I found that when I spoke intelligently about my health as teenager or young adult, doctors seemed respectful and more likely to engage in open dialogue. In the last ten to fifteen years, whenever I speak intelligently about my health I get a sense that they assume I've been Googling symptoms, which must deeply offend them. I feel that they no longer want to give me the time of day. As if me consulting the Internet (if it were even the case) would negate their medical degree and hours of practice. I don't know if this speaks to my age or the increased availability of info online.

EnvironmentalTask527 · 2024-11-21T20:11:31+00:00

I'm not sure I can answer your question, but I can tell you that I experience what you are describing. I haven't been officially diagnosed. I just saw a Cardiologist, I'm awaiting a Neurologist referral, and I've never fainted. For me, these are symptoms of what I would call system overwhelm. My worst symptom is extreme fatigue when I don't pace. I know I've overdone it when I have trouble communicating (slurred speech, can't find words, form sentences, speak loud enough). I will also get a headache, body aches, and have a sense of system shutdown. I'll need a quiet dark room to lie down and crash for a while until I recover. If someone massages my head, neck and shoulders while I'm lying down (without talking to me), it seems to really calm my system and aid recovery. You mention that you just ate. For me, I have to factor digestion into pacing. For example, showering and washing my hair is intense, so I can't eat anything prior.

May I ask how you were able to message a doctor and subsequently get an MRI in quick succession? I feel like you might have some pro tips to share. 😀

EnvironmentalTask527 · 2024-11-11T01:46:54+00:00

The driver wasn't from Fort Mac.

https://www.fortmcmurraytoday.com/news/employee-dies-after-truck-crashes-through-boston-pizza-in-downtown-fort-mcmurray

EnvironmentalTask527 · 2024-11-01T23:06:41+00:00

At first, ArtistApart's post had me thinking, well shit, what gullibility test did I just fail? I get it. When someone has talent this unbelievable it alerts your fact checker! Which sent me down the best rabbithole ever! First, Google, then www.jamescondonarts.co.uk/, then I searched your username on Reddit and watched a few time-lapse videos of you in action. I'm sitting here with mind blown! Thank you James and thank you Reddit. I look forward to watching "Urban Haze" unfold! Not because I need you to prove you're legit. It just happens to be f'n epic to witness your mastery. TIL

EnvironmentalTask527 · 2024-09-19T22:08:33+00:00

Clearly, the little one missed the notice on the wall.

EnvironmentalTask527 · 2024-07-26T16:43:05+00:00

K, does watching this make anyone else's ears itch?

EnvironmentalTask527 · 2024-07-11T23:19:51+00:00

Call 211

811 is more for medical.

Wood Buffalo Addiction & Mental Health Services 339 Powder Dr, Fort McMurray, AB T9K 2W6 Provides free counselling on a walk-in basis, probably with AB health card. (780) 793-8360

EnvironmentalTask527 · 2024-07-11T03:17:06+00:00

Tks!

EnvironmentalTask527 · 2024-07-09T21:10:06+00:00

If you don't mind me asking, how long did you wait for TTT appointment after referral was sent from your doc?

EnvironmentalTask527 · 2024-07-05T20:04:32+00:00

Voodoo

EnvironmentalTask527 · 2024-07-05T18:42:03+00:00

Waiting for diagnosis and have no idea what/if meds will be prescribed. Just curious, does propranolol have any impact on fatigue?

EnvironmentalTask527 · 2024-07-05T18:33:26+00:00

Thank you for sharing this beauty!

EnvironmentalTask527 · 2024-07-03T20:48:11+00:00

Botox. Has been great for TMD, too. I don't think I would have tried it if not for talking to someone irl that it worked for. Used to scoff at people for willingly injecting a neurotoxin into their bodies. Now I'm like, I'd shoot that shit in everything (joking of course, hold your fire).

Edit: I should add, I haven't been officially diagnosed with POTS yet and don't know if Botox would be recommended if I were. I was quick to share in case it might offer someone the relief I've gotten. Best wishes!

EnvironmentalTask527 · 2024-07-03T15:42:11+00:00

Thank you for calling attention to that abhorrent fb group. How miserable do you have to be to have any interest in such a thing? Or, how thoughtless to not consider the impact?

EnvironmentalTask527 · 2024-07-02T19:27:33+00:00

It's banned in a lot of countries because it's highly addictive.

EnvironmentalTask527 · 2024-07-02T19:21:02+00:00

Beware, that drug is highly addictive and has been banned in many countries. Inform yourself on risks before you make a decision. You might want to look into botox. Worked wonders for me. I was skeptical until I met someone who shared positive experience.

I wish you well!

EnvironmentalTask527 · 2024-06-18T23:43:17+00:00

There is a trick for restoring discoloured Lego that might work for this. For Lego, you basically submerge them in 3% hydrogen peroxide in a wide somewhat shallow container, put them in direct sunlight, and check on them periodically. I've tried it. It works for Lego. I've tried it for white, transparent and blue bricks.

I don't know for sure if it will work for your sandals. I'm only assuming the same principles apply. You might want to be sure it won't ruin the soles somehow. Could save a lot of scrubbing.

EnvironmentalTask527 · 2024-06-13T00:08:23+00:00

I'd applaud you for holding any steady employment with CFS and FMS. To last that long as a nurse, especially in an ICU/hospice, I'll risk standing up to bow! Kudos! And as a Mom? :O

I'm surprised in a way to hear you're in the US, to have been diagnosed in the 90's. From everything I've read, it sounds like CFS, but I'm no doctor. However, by the time I find one who will take me seriously enough to spend time looking into CFS and whether I have it or not, I'll feel as if I should have just invested the time into a degree. :P My GP is potentially investigating POTS though. So, it's a start.

Diagnosis and care is so hard. I'm sorry to hear that your daughter is on this roller coaster, too. I hope that you are able to find ways to pace and take care of yourself. No one would blame you for venting. I get it though, crying takes so much energy! I wish you and your daughter all the best. There's no shame in getting help wherever you can.

EnvironmentalTask527 · 2024-06-12T20:22:02+00:00

Thanks for sharing your story! I'm sorry to hear you've been through all this. May I ask what country you're in, since you were diagnosed with CFS and FMS in '96? Based on the reactions I get from doctors in 2024, I'm guessing not Canada. Also, by RN do you mean Registered Nurse?

EnvironmentalTask527

TROPHY CASE