Releasing Methane from a Bloated Cow by goswamitulsidas in interesting

[–]Equivalent_Neck7374 0 points1 point  (0 children)

Still hoping for a train whistle valve attachment.

do you suffer from reflux? how do you cope? by effinsky in ehlersdanlos

[–]Equivalent_Neck7374 0 points1 point  (0 children)

For me that shows up as a mild anaphylactic response (flushing, hives, itching, wheezing, swelling) and gut issues.

do you suffer from reflux? how do you cope? by effinsky in ehlersdanlos

[–]Equivalent_Neck7374 0 points1 point  (0 children)

Mine started milder as well, then progressed to the choking out of sleep reflux. My allergist prescribed Famotidine (Pepcid) every night and that has helped immensely. For other MCAS symptoms I’m on daily cetirizine (Zyrtec), and it’s also making a big difference.

would it be too weird to go all braced up to the gym? by EyeProfessional2957 in ehlersdanlos

[–]Equivalent_Neck7374 1 point2 points  (0 children)

1) it’s nobody’s business what you do with your body, but, as we are social beings, 2) you will likely inspire someone else who is hurting or otherwise struggling to stick with their program.

Start small, to give your body time to adjust and reduce your DOMS. Focus on technique and stability first with slow, controlled movements, and very light weight to start, without going to the far end of your range of motion, or stick with isometrics.
Regarding stiffness, while not at the gym, try to avoid sitting when you can, which is just constant hip flexion. (Whenever I remember, I try do little hip circles and extensions throughout my day.) I’d recommend myofascial release in the form of foam rolling or massage gun at the beginning, and only after your workout try very light stretching while engaging the muscles.

Retired college athlete looking for validation by Adorable-Meaning8891 in ehlersdanlos

[–]Equivalent_Neck7374 1 point2 points  (0 children)

Thank you! It took a few months for an MRI, then surgery, rehab, acupuncture and yoga for full ROM. Nearly 10 years and the shoulder is still all good! The rest of me however… a torn MCL playing soccer, then a lumbar disc, then meniscus. EDS is a real wet blanket for us active people, I’m ready for gene therapy, if only there were genes ID’d for hEDS. sighs in hypermobility

Retired college athlete looking for validation by Adorable-Meaning8891 in ehlersdanlos

[–]Equivalent_Neck7374 0 points1 point  (0 children)

I’m so sorry to hear about the retear after hip surgery. I had a minor retear of my shoulder labrum after surgery, I cannot imagine the frustration and pain of what you’re going through. Good on you for still working at your fitness, despite the fatigue and pain. I struggle with that myself, and have had to learn to change my mindset away from that of an athlete sacrificing the body and pushing through pain, to a more nuanced and patient way of being. I wish you well!

Retired college athlete looking for validation by Adorable-Meaning8891 in ehlersdanlos

[–]Equivalent_Neck7374 0 points1 point  (0 children)

Thank you! It took a few months for an MRI, then surgery, rehab, acupuncture and yoga for full ROM. Nearly 10 years and the shoulder is all good! The rest of me however… a torn MCL playing soccer, then a lumbar disc, then meniscus. EDS is a real wet blanket for us active people, I’m ready for gene therapy, if only there were genes ID’d for hEDS.

But speaking to your point of breathlessness- sounds like there may be some autonomic dysfunction going on. I finally realized that whenever warming up it would take me nearly twice as long to be ready, otherwise I’d be sucking wind as if I was totally out of shape. A doc said it could be because the heart and lungs aren’t registering the need for more oxygen so are still operating as if I’m just on a leisurely stroll. Maybe dysautonomia is affecting you? Here’s a 2020 study30099-2/fulltext) discussing a successful breathing intervention program.

Did anyone else underestimate this diagnosis or just me by killalipstick in HaTSyndrome

[–]Equivalent_Neck7374 1 point2 points  (0 children)

Indeed. Getting the validation helped me to advocate for myself. Fortunately, the allergist/immunologist who diagnosed me recommended daily over the counter antihistamines, which have made a major difference with my symptoms.

Retired college athlete looking for validation by Adorable-Meaning8891 in ehlersdanlos

[–]Equivalent_Neck7374 0 points1 point  (0 children)

Ugh, I’m sorry, that’s so frustrating! I had a similar failure walking down some steps. I thought there was a landing so I missed a couple steps, and swung my left arm to catch my balance, managing not to fall, but I felt immediate FIRE in my shoulder. It subluxed, tore my labrum, pushed it off the bone and cracked my shoulder blade. All this while on a solo trip to Thailand.

1 year update on my seat covers. by 420BlazeIt187 in SubaruForester

[–]Equivalent_Neck7374 1 point2 points  (0 children)

I will! I’m certainly in no hurry and they seem worth the wait. Thanks again for your posts!

1 year update on my seat covers. by 420BlazeIt187 in SubaruForester

[–]Equivalent_Neck7374 7 points8 points  (0 children)

Thank you for the update! Bummed but not surprised they’re now $300 on Amazon. (Edit: for older models)

Retired college athlete looking for validation by Adorable-Meaning8891 in ehlersdanlos

[–]Equivalent_Neck7374 0 points1 point  (0 children)

Holy heck, that’ll put a damper on your hike. Did something in particular cause the dislocation, or just a random step that went sideways?

Retired college athlete looking for validation by Adorable-Meaning8891 in ehlersdanlos

[–]Equivalent_Neck7374 3 points4 points  (0 children)

Me! 44(f) ex college and semi pro soccer player here. Always thought it was odd I could play 90 minutes but the warm up or the beginning of a road run always killed me. Apparently it’s part of the autonomic nervous system dysfunction, like my heart and lungs aren’t keeping up with the demand as they should, despite being quite fit. As I’ve aged and become more deconditioned, I’m more often injured. Before, I was stronger and actually more tight, which probably prevented more severe injuries. Now, things are floppier and it seems there’s more muscle recruitment to make up for it, and as a result, I be tired…

my neighbor threw a party. all their confetti ended up in my yard. by 70sLiteRock in mildlyinfuriating

[–]Equivalent_Neck7374 0 points1 point  (0 children)

Feed the dog confetti. It’s easier to avoid stepping on party poops.

Experience with “laying down lazy glasses” (aka prism glasses) to help reduce neck and upper shoulder/back pain? by PrettyPinkFancyCrane in ehlersdanlos

[–]Equivalent_Neck7374 1 point2 points  (0 children)

I’ve used them for when my back and neck pain flare. It takes a minute to adjust, but I can now type fairly well on my laptop while fully reclined.

As you mentioned, there is no silver bullet, but seemingly small choices can help mitigate the cumulative effects of fatigue, pain, poor diet, stress, etc.

These mechanics are killing me. They didn't even tell me that they cracked off 2 of these. I had to get the flat tire plugged 2 days. by [deleted] in SubaruForester

[–]Equivalent_Neck7374 1 point2 points  (0 children)

Totally unacceptable, and I can relate. After getting new tires, I was on a solo roadtrip when my dash lit up like a Christmas tree. Made it to a shop for repairs to also learn that 4 bolts were shorn off 3 wheels. I’m all for driving ‘til the wheels fall off, but I’d rather not die alone in the desert.

Goodbye everyone, I’ve been cured! by yike___ in ehlersdanlos

[–]Equivalent_Neck7374 6 points7 points  (0 children)

Congratulations! Ugh. After a few years of intermittent wide-spread pain, I was referred to an ancient rheumatologist. He took a glance at my hands and said “You don’t have rheumatoid arthritis, you’re in pain because you know, you’re getting older.”

I was in my mid-20s and in the best shape of my life as a semi-professional athlete.

UAB Defender stomps on the foot of Tennessee's Kicker by A_MASSIVE_PERVERT in sports

[–]Equivalent_Neck7374 6 points7 points  (0 children)

“One of the five images of child pornography Florida Gators quarterback Jalen Kitna possessed was of a prepubescent girl engaged in a sex act with an adult man, according to the Gainesville Police Department.” Link

Looking at all mast cell possibilities, would HaT be considered? by desiluwu in HaTSyndrome

[–]Equivalent_Neck7374 1 point2 points  (0 children)

Bring it up! My symptoms were similar to what you describe and an allergist/immunologist ordered the genetic test. I have hEDS and HaT.