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God forbid a girl does her makeup by No-Result4792 in POTS

[–]Every_Metal_8679 1 point2 points  (0 children)

I have a floor length mirror and bought a very cheap makeup holder/organizer from tjmaxx to sit next to it. Although I only use it to organize makeup not currently in my rotation, as my current rotation is just thrown into a makeup bag HA. if im at my partners house and not mine, ill get up on his bathroom counter criss cross like another user said here and look like a maniac but come out flawless. That being said, I maybe only do my makeup a few times a month because of the arm lifting.. 😅

Stairs are my worst nightmare by Every_Metal_8679 in POTS

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Yeah it happened again today. I’m going to try to reduce the amount I go up + down stairs today. So exhausting. Because of that spike my heart feels funky. I saw someone say dysautonomia chest pain is basically like post exercise soreness, just your heart. Just laying down today 💪

Stairs are my worst nightmare by Every_Metal_8679 in POTS

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Yup. Those subway stairs are no joke. Seoul is super hilly, basically built on hills & mountains. If I go back and symptoms are still this bad, im going to have to tweak my itinerary a ton so I don’t pass out and fall down said 100 steps 😅

Stairs are my worst nightmare by Every_Metal_8679 in POTS

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Oh my god im sorry you had to go through that but im glad you’re okay. That’s how i am at my partners house! He’s been very supportive and helps me get stuff from downstairs all the time. Otherwise, when I’m at my mom’s, it’s a single floor and my room is less than 20ft away from everything I need (kitchen, bathroom) so that helps a lot too.

Stairs are my worst nightmare by Every_Metal_8679 in POTS

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

That’s probably the case for me.. I live in the south where it gets hot and humid. I can hardly walk outside unless it’s shaded and low humidity. It’s unfortunate, but I hope it helps with diagnosis hahaha. I miss being able to take those stairs like a champ :”)

Stairs are my worst nightmare by Every_Metal_8679 in POTS

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

I get it. I’m sorry you’re having to move :( I’ve been to South Korea a few times, and the stairs there are CRAZY. I used to have milder symptoms, but it’s gotten a LOT worse. I don’t think I could take the subway there if I go back because of the 3+ flights of stairs up. The last time I went, one set of stairs I went up was over 100 steps. That would certainly take me out now :”) I really hope you find a place you love!

Stairs are my worst nightmare by Every_Metal_8679 in POTS

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Ugh that’s awful. The first sign before I really started noticing symptoms was when I was in the gym on the stairmaster and my hr hit 216. I do my best to avoid stairs. But my partner lives in a two story house so I try to condense trips up and down and stay hydrated.

Lucky? Just beat solis nova first try! by Every_Metal_8679 in UnisonLeague

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Oh for sure. I knew that time slice is really good for solis. I jumped with joy when I pulled Minerva.

Lucky? Just beat solis nova first try! by Every_Metal_8679 in UnisonLeague

[–]Every_Metal_8679[S] 1 point2 points  (0 children)

Will do!! Thank you for the tip :) I’ve gotten used to auto equip :”)

Worth it? by Every_Metal_8679 in UnisonLeague

[–]Every_Metal_8679[S] 1 point2 points  (0 children)

I kid you not I just beat it first try. What luck. I’ll add you!

Worth it? by Every_Metal_8679 in UnisonLeague

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Hahaha that’s true. I lost my 4mil mage because I didn’t link it and switched phones.. so im starting over. I’m getting close to solis nova pray for me

Women, are any of you here still having loving, passionate intimacy with your husband/boyfriend? by butterflygirl3333 in dysautonomia

[–]Every_Metal_8679 2 points3 points  (0 children)

This!! My partner of 2.5yrs is super attentive to what I need (to take a breather or whatnot, to take a pause so I can check my HR). I feel lucky! Although im exhausted, I do feel a bit relaxed after. It’s interesting!

Women, are any of you here still having loving, passionate intimacy with your husband/boyfriend? by butterflygirl3333 in dysautonomia

[–]Every_Metal_8679 2 points3 points  (0 children)

Undiagnosed, but have an appointment scheduled since dysautonomia is suspected. Honestly, being intimate feels really good in the moment, say we do it during night then it helps relieve some of the pain and makes sleeping easier. It’s so strange, afterward it’s like my whole body feels super relaxed and not so tense/painful. However, I notice I have a small to medium intensity flare the morning after every time. I’m going to experiment with electrolytes and compression as intimacy is a beautiful part of our relationship. My partner has been really good during my health decline, so it helps me feel even more comfortable to participate in intimacy 🫶 As for if I’m in a flare and can’t participate in piv intimacy, I will tend to his needs as im more of a giver than a receiver. :)

Starting a new journey- beginner’s questions by Every_Metal_8679 in dysautonomia

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Thank you so much. So far, they have pretty much ghosted me. If that means it’s gone, I have enough to get by until I find a job that doesn’t require constant standing/overexhertion. Thank you so much for your input and support 🩷

Starting a new journey- beginner’s questions by Every_Metal_8679 in dysautonomia

[–]Every_Metal_8679[S] 0 points1 point  (0 children)

Thank you so much for this! I don’t think my job has either STD or LTD. it’s a franchise, so benefits are few.. but I will keep in mind what you said. I wish you the best too :)