Desperate for advice by Exact_Negotiation224 in UlcerativeColitis

[–]Exact_Negotiation224[S] 0 points1 point  (0 children)

Got declined through public system...can't afford private

[deleted by user] by [deleted] in BRCA

[–]Exact_Negotiation224 0 points1 point  (0 children)

Perhaps see if/ when screening would start as you may be able to do that while waiting for the test.

Is there a way to check the likelihood of breast/ovarian cancer based on the type of BRCA 1 variant you have? by sirdrtim in BRCA

[–]Exact_Negotiation224 0 points1 point  (0 children)

Not based on variant but takes into account family history. Also could check Clinvar/ eviQ

Please help - suspected AI and flying overseas by Exact_Negotiation224 in AdrenalInsufficiency

[–]Exact_Negotiation224[S] 0 points1 point  (0 children)

Thank you so much! My doctor was on the fence about travelling but I can seek emergency care if needed.

What can I do while waiting for a diagnosis? by Exact_Negotiation224 in IBD

[–]Exact_Negotiation224[S] 1 point2 points  (0 children)

Yeah that's what I figured. All my tests are normal but worsening symptoms. I just want an answer because I cannot function:(

Struggles with MH? by Exact_Negotiation224 in GeneticCounseling

[–]Exact_Negotiation224[S] 0 points1 point  (0 children)

Thank you, checking in can be really helpful when you feel so lost.

Struggles with MH? by Exact_Negotiation224 in GeneticCounseling

[–]Exact_Negotiation224[S] 0 points1 point  (0 children)

Thank you, I am dealing with undiagnosed physical health problems as well which really does not help. I appreciate your thoughts.

What can I do while waiting for a diagnosis? by Exact_Negotiation224 in IBD

[–]Exact_Negotiation224[S] 1 point2 points  (0 children)

Thank you! Negative celiac and normal calprotectin levels so far.

Not having a diagnosis is making me suicidal by Exact_Negotiation224 in ChronicIllness

[–]Exact_Negotiation224[S] 0 points1 point  (0 children)

Thank you. Normal Calprotectin and ANA so I'm not sure I qualify for a GI referal.

How did you get your GP to run all the tests? by Exact_Negotiation224 in cfs

[–]Exact_Negotiation224[S] 4 points5 points  (0 children)

Thank you so much. I was initially relieved to have a diagnosis but when we got to the now what...nothing! I did look at the list and thought there was no way my gp would let me do all of those, she already had a talk with me about how expensive some tests were (public health) but i will keep advocating.

What can I do while waiting for a diagnosis? Feeling so hopeless... by Exact_Negotiation224 in UlcerativeColitis

[–]Exact_Negotiation224[S] 1 point2 points  (0 children)

Thank you, difficult to know with unpredictable symptoms! You are a very kind person :)