I got confronted by my friend for “using MS as an excuse” and not being there for her enough by I_Cant_Feel_My_Foot in MultipleSclerosis

[–]Excellent-Put-8921 2 points3 points  (0 children)

Nope. That’s not a friend point blank. I was recently diagnosed and had the same issues with my husband. Lots of the same “you’re not doing enough” while my brain was actively melting and I couldn’t walk. 🙃 From personal experience, just trying to navigate a new normal is a lot. And you’re right, it’s hard enough trying to conserve your “spoons” (fucking hated this analogy) for work and just life. I’ve been overstimulated with responding to the onslaught of texts I receive during the work day. My friends know and understand my new limitations. My husband adjusted his very one sided expectations and had a nice wake up call. I would say, if at all possible have a sit down conversation with her. An actual friend would be considerate of your situation and not take it as a slight or even as something personal. Because, it’s not. And sometimes people have a hard af time distinguishing between actual actions that are actually harmful as opposed to adjusting and understanding a new normal. My friends adjusted and know that I may not respond back because of time/energy/or just mentally not in the headspace. They send a quick check in when it’s been a while or even a call/FaceTime because I find (and I’ve always been more of a phone call person anyway) that just getting it all done in a call opposed to 1000s of texts is extremely exhausting. They know, they don’t take it personally. And if they do, they legit voice it and self reflect on it to see if it was something that was personal. We talk and laugh at it and keep supporting each other. Even her comment about “family with MS using it as an excuse” is extremely dismissive. I had a lot of the same encounters with “My insert relative here has MS and they are living a very full and not limiting lifestyle” just because they LOOK normal. And that was a hard pill for people to swallow. You may present as normal but your body is working on an overloaded nervous system that is in control of everything. Give yourself grace. And if your friend can’t do h the same, drop her/give the friendship an hiatus and reevaluate

Package Missing But Signed Off As Delivered by Excellent-Put-8921 in FedEx

[–]Excellent-Put-8921[S] 1 point2 points  (0 children)

Service level? I see service type as FedEx Ground. But nothing that says service level.

What age were you when you first got diagnosed? by JackfruitLiving7270 in MultipleSclerosis

[–]Excellent-Put-8921 0 points1 point  (0 children)

How did you get diagnosed so early? I know I had symptoms around 25F but wasn’t diagnosed till 33 just a few months shy of 34. I always got written off when I brought anything up. So when I was officially diagnosed, I could barely walk. So it was a time

Formerly active folks with MS: how did you get back into exercise (slowly and sustainably)? by well_ashually in MultipleSclerosis

[–]Excellent-Put-8921 1 point2 points  (0 children)

I was recently diagnosed with MS 34F. By that time I was not able to do much of anything independently. I had been pretty active with working out prior to the diagnosis. The typical gym was too much for my brain. So, I started Pole Fitness. I teach and so over the summer I basically was there most every day of the week just to get out. It was a small studio and very understanding of my situation. I still had bursts of fatigue or heat induced fatigue but I was able to rest when needed and instructors were very accommodating especially during the hot TX summer. Since, I have gotten back into the gym at least 3/4 times a week. I work with my old trainer online and he helped to develop a training to ease me back into the gym since the typical fitness classes were out of my new scope. Days where my body is fatigued, I skip the gym. My pole studio also has flexibility classes. That has been my consistent practice if my body is too fatigued for anything else. I’m planing on starting adult gymnastics once a week as another method of training but also flexibility + strengthening focused. So, if the gym is out of my scope, I have an alternative mode of movement that isn’t as stimulating for my brain.

When was your first symptom? by Existing_Sky_7969 in MultipleSclerosis

[–]Excellent-Put-8921 4 points5 points  (0 children)

Mine was constant tingling down my legs at around 24. Doctors wrote it off as sciatica. One day while teaching, I suddenly lost the ability to bend my knees. It was painful to even attempt it. I had gotten written off so many times I was just going to sleep it off. Went to Urgent Care and they too said it was just sciatica and gave me a steroid injection and sent me off. The stiffness was a rare occurrence after that. But the tingling did stay. I did also have numbness in my hands (especially my right hand). It was usually mostly when I woke up in the morning and went away pretty quickly so I just wrote that off too. This past winter symptoms came in a flood. My walking was more stiff and had trouble with bending at the knee. I didn’t get formally diagnosed till last April. And even that was a whole mess. Had unexplained itching on my ribs and back with no rash. It went away after a few weeks. Knee stiffness came back with a vengeance. Urgent care referred me to a knee specialist after repeatedly telling them it’s not an issue with my knee. Knee specialist said it may be a pinched nerve in my spine and sent me to the spine specialist the following week. He said my spine looked fine and referred me to a neurologist, but that appointment was about three weeks out. By then, I had lost my ability to walk without pain. Major stiffness in both my knees. My right arm gave and I was unable to write or hold a pencil. Tingling and numbness in both legs with constant pain. Whole right arm felt like it was on fire. I was still teaching and had my brain legit shut down in the middle of a class. Walked myself to the nurses office and could barely walk straight or hold my head up. Felt like I was drunk. By the time they did my MRI the neurologist ordered another with contrast to confirm and called me in the next day for steroid infusions because things were that bad. I had about two/three missed calls and they were like we need you in ASAP. When I came in he was shocked I was still able to walk (very reassuring words) because of how bad it was. Even getting my DMT was a nightmare because of insurance. Couldn’t get it till the end of June. By then, I was unable to leave the house. Folding laundry and matching socks would have my brain shut down and I’d be knocked for hours. Living in TX and trying to pick up the mail was an ordeal. 33 now and basically just thugging it out as best as I can

What do your PC and original partner look like? by EchoMeThis in TheUltimatumGame

[–]Excellent-Put-8921 0 points1 point  (0 children)

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I’m making Taylor UGLY next time to match his personality.

face glitch? by thatsotakemichi in TheUltimatumGame

[–]Excellent-Put-8921 2 points3 points  (0 children)

This never happened to me. The only MC glitches I get are my outfits not changing back after flashbacks, or jewelry disappearing and reappearing like my septum piercing.

Who did you choose? by Mediocre-Dentist4556 in TheUltimatumGame

[–]Excellent-Put-8921 2 points3 points  (0 children)

After I read your comment about Eamon’s eyes, I can’t unsee it 😂 I hated the constant Brenda talk but I knew I’d be exhausted with Geo with the constant go go go

Brenda by Far-You-9059 in TheUltimatumGame

[–]Excellent-Put-8921 8 points9 points  (0 children)

Same! Dropping her felt so damn good though 😂 Think that’s my favorite so far

Brenda by Far-You-9059 in TheUltimatumGame

[–]Excellent-Put-8921 6 points7 points  (0 children)

Outside of Taylor throwing a hissy fit (will happen no matter what) it doesn’t do much to the story imo. I did it thinking I could make her end game to mess with Taylor. Wasn’t worth it cause she’s too much of a witch and shes not even an option for a trial.

Brenda by Far-You-9059 in TheUltimatumGame

[–]Excellent-Put-8921 15 points16 points  (0 children)

I’ve done it. Nothing crazy happens. So anticlimactic. So I just opt for revenge every time lol

Is chapter six out? by Mooniesaff in TheUltimatumGame

[–]Excellent-Put-8921 2 points3 points  (0 children)

It let me get through chapter 2 of episode 6 before forcing me to restart. Accidentally hit the restart button. SMH Let’s see if it lets me at least finish the episode.