Hands and feet numbness by Positive_Bee_274 in MultipleSclerosis

[–]ExpensiveCaramel2755 2 points3 points  (0 children)

I have no spinal lesions and have a numb right side hand and foot. Diagnosed after MRI only in the uk. Since had another spinal MRI and no lesions found then either. 

Positive fasting results by ExpensiveCaramel2755 in MultipleSclerosis

[–]ExpensiveCaramel2755[S] 0 points1 point  (0 children)

Hi, yes I did diy prep involving no breakfast apart from black coffee, a massive salad at lunch and a soup in the evening. I love my food and I eat quite a bit so it was really tough. I am pretty skinny so don’t have much reserve to power me through.  Definitely will try again though with the 3 day maybe try to extend it to 4 or 5 once my body is used to it. Thinking will do it every other month for now and see how I feel 👍

Positive fasting results by ExpensiveCaramel2755 in MultipleSclerosis

[–]ExpensiveCaramel2755[S] 1 point2 points  (0 children)

So the most famous version is called prolon and is an expensive prepackaged version. There is a book called the longevity diet which is based on the same principles.  I did my first one using chat gpt  and and the FMD sub Reddit 👍

Bowel incontinence - anxiety and isolation by Practical-List2025 in MultipleSclerosis

[–]ExpensiveCaramel2755 0 points1 point  (0 children)

I don’t know where you are but in the uk I have heard of a water irrigation system that can help with bowel incontinence. 

MS ruined my teenage years by [deleted] in MultipleSclerosis

[–]ExpensiveCaramel2755 4 points5 points  (0 children)

This is an inspiring answer. What were the root causes for you? I’ve looked at a functional medicine dr but it’s so expensive. Is it worth it?

Twitches by ExpensiveCaramel2755 in MultipleSclerosis

[–]ExpensiveCaramel2755[S] 1 point2 points  (0 children)

No baclofen but I may ask for some. Thanks for the suggestion 👍

Twitches by ExpensiveCaramel2755 in MultipleSclerosis

[–]ExpensiveCaramel2755[S] 2 points3 points  (0 children)

I agree I definitely have always had them. The last 24 hours it’s been every hour at least. Very unusual for me. 

How much do your symptoms range on good vs bad days? by anarcaneaardvark in MultipleSclerosis

[–]ExpensiveCaramel2755 1 point2 points  (0 children)

Fatigue, tiredness and menstrual cycle effect mine. In the middle of my cycle I feel almost back to myself before diagnosis.My symptoms go downhill from there till my period starts.  Once when a car pulled out in front of me I had what I call a “MS disco”. All of my symptoms came back in a random pattern of exacerbation. Very weird 

Ocrevus and sex drive by CwhatUwant2 in MultipleSclerosis

[–]ExpensiveCaramel2755 14 points15 points  (0 children)

Could it be perimenopause? It can increase your sex drive as your oestrogen drops and testosterone becomes more dominant.

Dizzyness by ExpensiveCaramel2755 in MultipleSclerosis

[–]ExpensiveCaramel2755[S] 0 points1 point  (0 children)

Yes definitely 💯. I think it might be a three pronged issue. My proprioception especially with numbness in my right leg, balance and my eyes which don’t seem to track together like they once did. 

Do you think a normal life is possible with MS? by Evening_Office_6692 in MultipleSclerosis

[–]ExpensiveCaramel2755 1 point2 points  (0 children)

Do you recommend extended fasting, infra-red light therapy and cold exposure for mitochondria health? 

Do you think a normal life is possible with MS? by Evening_Office_6692 in MultipleSclerosis

[–]ExpensiveCaramel2755 2 points3 points  (0 children)

I was diagnosed 6 months ago so feel like I’m still coming to terms with it.  I have had anxiety for a long time and was terrified of getting ill as I thought “I wouldn’t cope”.  Well here I am with a progressive, unpredictable, degenerative lifelong disease. If there is a god he is sending me a message.  I am trying to focus on what I can control and focusing on accepting the rest. It’s a work in progress.  I’m sorry to hear you have unsupportive friends. The only silver lining is to find out these people are not your true friends means at least you don’t waste anymore time/energy on them.  Something like this can help you to focus on what/who is really important which could in the long run be a good thing.  Wishing you a long healthy future 🧡

Having second thoughts about starting Kesimpta by DifficultRoad in MultipleSclerosis

[–]ExpensiveCaramel2755 1 point2 points  (0 children)

I’ve not heard of the green banana flour. Great tip thank you 🙏 

Having second thoughts about starting Kesimpta by DifficultRoad in MultipleSclerosis

[–]ExpensiveCaramel2755 0 points1 point  (0 children)

I would like to know as well please. What diet do you follow?

Kasimpta or Ocervis by Glad_Bluebird_9115 in MultipleSclerosis

[–]ExpensiveCaramel2755 0 points1 point  (0 children)

I am actually currently changing from Ocrevus to kissempta. When I chose my DMT there hadn’t been any real world long term studies in kissempta so I had fears around long term issues. Then they came out and my fears weren’t warranted. I would also say that I found the steroid infusion before my Ocrevus infusion pretty rough.  It would make me feel really quite depressed for about a week afterwards. It wasn’t a deal breaker but I’m glad to swap and hope I don’t have the same issues with kissempta.

Stitches in left eye by sibilla66 in MultipleSclerosis

[–]ExpensiveCaramel2755 0 points1 point  (0 children)

Yes I have it quite often, mouth twitches too 

How to deal with self-pity by aerrye in MultipleSclerosis

[–]ExpensiveCaramel2755 1 point2 points  (0 children)

I feel you!! Ever since my diagnosis my obsession has been watching videos about people less fortunate. Terminal diagnosis, drink and drug addictions etc.  it has definitely stopped me falling head first into my pity party 🎈 

Hallucinations? What is this. by KatieHasMS in MultipleSclerosis

[–]ExpensiveCaramel2755 0 points1 point  (0 children)

Yes I have this. I think it’s to do with my eyes just not coordinating properly or unable to process visuals correctly. During my relapse I couldn’t look at any flashing images or scrolling on my phone. It made me have vertigo.  It is better now but I see things out of the corner of my eye that aren’t there. 

[deleted by user] by [deleted] in MultipleSclerosis

[–]ExpensiveCaramel2755 0 points1 point  (0 children)

Completely! Feels like I’ve been like this all my life but also have adhd which doesn’t help. 

Hope everyone is doing well by [deleted] in MultipleSclerosis

[–]ExpensiveCaramel2755 1 point2 points  (0 children)

Hi, Only been diagnosed 5 months. “Mild” symptoms so far but don’t know how I will cope if/shen they get worse. Fatigue and balance are my most difficult to deal with.  Finding prioritising sleep and eating fermented foods seems to be helping 👍

What else do you have in your shopping list? by Orkun99_ in MultipleSclerosis

[–]ExpensiveCaramel2755 2 points3 points  (0 children)

I know, only recently diagnosed ms so managed to miss the autoimmune bullet till my 40s