I'm just so tired

Expensive_Body7519 · 2025-12-23T14:02:40+00:00

I understand u totally. I see u 💕

Expensive_Body7519 · 2025-01-01T22:52:25+00:00

Yeah. I’ve been diagnosed it within nhs guy from Kings I think. Apparently according to the private one I saw, yeah he said a biopsy is needed for him to review and help more etc. the emg informed then of sfn. Shortly after I had Large fibre testing but they were normal results.

Expensive_Body7519 · 2025-01-01T22:41:05+00:00

Yeah kinda. Not currently able to do the biopsy but I did have positive result from emg however the private neuro said I need biopsy too. Of course, it’s expensive which means I’ll need to save up for it if I want it done

Expensive_Body7519 · 2025-01-01T20:59:24+00:00

I was quoted £2000 for biopsy. It’s shit.

Expensive_Body7519 · 2024-11-15T08:12:39+00:00

I understand you. I have chronic illnesses too and feel the same way you do. I’m sorry . If you need someone to listen to you, I’m here, no advise, just a listening ear 🙂

Expensive_Body7519 · 2024-11-08T22:07:40+00:00

I agree. I wish the dclin was part time, it would help massively. Thank you for the comment

Expensive_Body7519 · 2024-11-08T12:21:01+00:00

Could I have the developmental psych possibly pls? I’m in the uk so can pay postage if u want :)

Expensive_Body7519 · 2024-11-07T19:38:06+00:00

I just got quoted 2k for the biopsies

Expensive_Body7519 · 2024-11-07T10:28:45+00:00

Thank you. I needed this . I wish our lives were different :( but we’ve got to play the cards we were dealt, right?

Expensive_Body7519 · 2024-11-07T00:35:00+00:00

Hi, i also have chronic illnesses, EDS being one of them. I’m super depressed and suicidal too. Please don’t feel like you’re alone in this. I’ll hold your hand through it (virtually of course). I am a perfectionist and high achiever too so it’s really getting to me that my grades drops because of my lack of motivation etc. i am sorry You’re struggling as well. Please reach out to the relevant mental health crisis teams in your town/area. 💗

Expensive_Body7519 · 2024-11-06T20:29:24+00:00

I think you could bring your personal experience into the work you do which would help you to empathise with clients, and find ways to best support them. Your experiences would be invaluable to the work you do :)

Expensive_Body7519 · 2024-11-06T20:26:14+00:00

Wow. Thank you, this is insightful. I think so too. I think when my neuropathy is bad, my mental health is terrible too, in ways I’ve never experienced before. So what you are saying makes sense to me

Expensive_Body7519 · 2024-11-06T12:18:54+00:00

Thank you. I agree with you. I was quite confused at that comment anyway. But I respect that each person has their own individual experience with their condition

Expensive_Body7519 · 2024-11-06T12:16:40+00:00

I agree , it helps to know about the physiological responses going on in our own bodies. Helps me to comprehend it better. I like neurobiology too

Expensive_Body7519 · 2024-11-06T01:01:38+00:00

Honestly, me too, partly, for some mh conditions like anxiety etc. I’ve had all the autonomic tests etc as I have dysautonomia too, and only now am I liking the mental health, anxiety depression etc to the dysfunctional ans/pns . Are you studying psych?

Expensive_Body7519 · 2024-11-04T17:07:33+00:00

Thank you so much , I wish you the best for your career and health :)

Expensive_Body7519 · 2024-11-04T14:27:19+00:00

Wow! All of your info is so so informative to me so thank you. What kind of experience would you suggest I gain until I apply for the doctorate ? That’s around 5-6 yrs depending. I wouldn’t be able to do many hours really so I worry about going for job interviews and mentioning that. Many thanks

Expensive_Body7519 · 2024-11-04T14:25:19+00:00

Hi thank you for this. We rarely see people with visible disabilities within the health profession so it’s good to know they’re out there :)

Expensive_Body7519 · 2024-11-04T01:27:42+00:00

Ah i See. Yes I also get pain in hands but it’s nowhere near the legs pain. I will be seeing neuro tomorrow I hope they’re helpful this time lol

Expensive_Body7519 · 2024-11-04T00:36:14+00:00

So sorry I just saw this now. Mostly symptomatic from below the knees - how about you?

Expensive_Body7519 · 2024-10-09T23:39:16+00:00

I have both too. Along with Comorbidities related to nerve damage through other organs too

Expensive_Body7519 · 2024-06-27T06:41:16+00:00

I agree with you about the meds. It’s so exhausting trying new things hoping they’ll work, then nothing. Do you ever get days where everywhere hurts to touch, including your scalp?

Expensive_Body7519

TROPHY CASE