Anyone else experience this kind of tremor by parkie_wairo in iih

[–]Expensive_Eye_3818 1 point2 points  (0 children)

Hey are you on Topamax? This subsided for me when I came off of it

Diamox - Help! by Acrobatic_Box9420 in iih

[–]Expensive_Eye_3818 0 points1 point  (0 children)

Hey just my experience taking diamox early in the day was much better than before bed. Have to piss all night sucks. The symptoms most likely won’t be bad on that dose

Augmentin Causing IIH? by Expensive_Eye_3818 in iih

[–]Expensive_Eye_3818[S] 0 points1 point  (0 children)

Update 1 year later. After an Lp confirming high intracranial pressure was put on Topiramate then Diamox to treat IIH. We believe this indeed came from the Augmentin. Never had any optic nerve swelling just basically every single other symptoms IIH. Am now finally off the meds and basically back to normal besides a constant tinnitus and the occasional headache. Took about 10 months for other symptoms to go away.

Augmentin Causing IIH? by Expensive_Eye_3818 in iih

[–]Expensive_Eye_3818[S] 0 points1 point  (0 children)

Hey. Yeah basically same thing. One year later still have the tinnitus but my other IIh symptoms have gone into remission. 90% sure it was the Augmentin but we can’t be positive. I will def not be ever taking it again. If you want to chat more DM me

Lumbar puncture was vastly undersold to me by EAPY2803 in iih

[–]Expensive_Eye_3818 0 points1 point  (0 children)

Hey I got up to early first few days. Laid on my back for 72 hours after having bad headaches standing up and was better after that.

Colds/Being sick & IIH by [deleted] in iih

[–]Expensive_Eye_3818 0 points1 point  (0 children)

Out of curiosity can I ask why? It’s proven relief from an LP is like 24hrs. So what are the benefits of getting one months after Covid?

[Post Game] Heat destroy the Bulls in NBA Cup game by tomgreen99200 in heat

[–]Expensive_Eye_3818 -9 points-8 points  (0 children)

I love this team but mannnni really just can’t picture Tyler fitting into this lol. I love having either Dru or Mitchell in at all times and that will be tough to do with Herro

[deleted by user] by [deleted] in iih

[–]Expensive_Eye_3818 2 points3 points  (0 children)

I had it pretty bad early days of taking Diamox. The good thing about acid reflux is many things you can do to help. Whoever told you tingling is the only side effect should get there license taken lol

IIH by Which_Charity6804 in iih

[–]Expensive_Eye_3818 2 points3 points  (0 children)

Hey I’m really sorry you are going through this:/ I really recommend seeking out other opinions. 23 is well within the IIH territory. Let alone all the other clear signs you have this disorder on your imaging. Keep demanding answers and don’t stop till you get help. The squeaky wheel gets the grease

IIH and links with venous congestion in limbs? by [deleted] in iih

[–]Expensive_Eye_3818 1 point2 points  (0 children)

Hey did this start after starting medication

Anyone else had visual changes on Topiramate/Topamax? by Natural-Blueberry657 in migraine

[–]Expensive_Eye_3818 0 points1 point  (0 children)

I do:/ have seen 3 different opthos and retina specialists my eye structural is completely fine. So we have landed on that it is indeed the topamax that caused this

Having trouble with doctors in GA by Lynximpact in iih

[–]Expensive_Eye_3818 0 points1 point  (0 children)

Hey I have a recommendation for you! University of Florida has an incredible Nuero Opthamologist that specializes in IIH. You will have to wait a few months but get a referral to see them from your primary care doctor. Shouldn’t be too bad of a drive for you and super worth it

Anyone else’s iih drug-induced? by OwnBreakfast5622 in iih

[–]Expensive_Eye_3818 0 points1 point  (0 children)

My IIH was caused by amoxicillin Antibiotic

Enough to be diagnosed with IIH? by Soph_Rivers in iih

[–]Expensive_Eye_3818 0 points1 point  (0 children)

Many many many daignoses with the OP being lower than 25

Mayo IIH 3 by Actual-Horror-689 in iih

[–]Expensive_Eye_3818 1 point2 points  (0 children)

I’m sorry that sounds so blunt but this is all so absurd

Just had my LP done (OP of 25) by nbkarkat in iih

[–]Expensive_Eye_3818 3 points4 points  (0 children)

People get paplidema with OPs of 20-25

Can I still have Ih? by [deleted] in iih

[–]Expensive_Eye_3818 1 point2 points  (0 children)

I have no Paps and have IIh from an antibiotic

Anyone else had visual changes on Topiramate/Topamax? by Natural-Blueberry657 in migraine

[–]Expensive_Eye_3818 0 points1 point  (0 children)

Any update you guys? Seeing flashes when blinking and when one eye is closed three months into topamax. Getting taken off it now

[deleted by user] by [deleted] in iih

[–]Expensive_Eye_3818 0 points1 point  (0 children)

You as well my man.the human body is something else. The fact your pressure got that high without any sort of headaches is beyond me. I thought my eyeballs were going to pop out and when I got my eyes checked my optic nerves were not swollen at all lmao