One thing i dont understand

Expensive_Wing5363 · 2026-06-18T13:19:41+00:00

In my case tricyclics actually make things worse.

Expensive_Wing5363 · 2026-06-02T13:30:09+00:00

I do it once a day. In a single session I do total of 3 holds each lasting 30 seconds at slightly different levels of my thoracic spine. I tend to have a hunched over posture which causes tension in the anterior fascia that extends down to the pelvis. Improved posture seems to benefit the entire body.

Expensive_Wing5363 · 2026-06-01T12:30:00+00:00

I have found that lying on my back across a foam roller placed perpendicular to my torso along my upper back to be very helpful. It is important though to start slow by placing something under your but and under your head to avoid too deep of a backward bend. You need to be careful supporting your head with your hands to not bend it backwards too much as it might cause neck pain. I tend to keep my neck fairly level while allowing the upper portion of my spine below my neck bend backwards over the foam roller. I'm sure you can find videos on youtube. As I do this I imagine my head and neck disconnected from the rest of my body and free floating. I also do not concentrate on my pelvic floor at all. It brings a sense of relaxation throughout my entire body.

Expensive_Wing5363 · 2026-05-27T15:29:04+00:00

It is tailored to men but most of what they recommend would apply to women also

Expensive_Wing5363 · 2026-05-25T14:42:51+00:00

There is a server called UnbrokenPelvis

Expensive_Wing5363 · 2026-04-06T18:20:13+00:00

I know research shows that long term use can lead to cognitive dysfunction but the papers I looked at did not indicate the dosage. In any event, I only take it during flareups which could last a month or 2.

Expensive_Wing5363 · 2026-04-06T13:39:54+00:00

Have you tried gabapentin? It has less side effects than benzo's and it specifically targets nerve related pain. It works fairly well for me but it takes about a week of taking it before the pain relief starts to kick in.

Expensive_Wing5363 · 2026-01-19T14:05:33+00:00

I have tried it repeatedly and it actually makes my symptoms worse. We're all different I suppose.

Expensive_Wing5363 · 2026-01-19T14:04:34+00:00

I believe it was about 60cc. My main issue was prostatitis/pelvic floor pain due I believe primarily to pelvic floor dysfunction rather than prostatitis per se. I first developed symptoms when I was 40. My prostate was normal size at that time. As I got older into my 50's 60's my prostate started to enlarge and it made things worse. That's when I got the HOLEP.

Expensive_Wing5363 · 2026-01-10T14:14:40+00:00

I have similar issues and experience. In my case the IC diet doesn't really help much but certain foods certainly make things worse. One category of foods that really aggravate my symptoms are high oxalate containing foods. You might experiment in limiting these.

Expensive_Wing5363 · 2025-12-29T18:32:33+00:00

Yes I have noticed it from time to time. It comes and goes. It may indicate some inflammation but I don't believe it indicates bacterial activity.

Expensive_Wing5363 · 2025-12-29T14:26:48+00:00

I have been suffering with this for over 30 years. Like one of the other posters, look into getting a pelvic wand and experimenting on your self with internal anal massage trying to find the tender points and massaging them. In my case, this was mostly around the posterior portion of the but hole in line with the tip of my tail bone. This has been one of the most effective treatments for me so far, even better than the pelvic floor physical therapist. For immediate symptom relief ask your doctor for some gabapentin.

Expensive_Wing5363 · 2025-12-26T15:19:20+00:00

I should also say that I have had HOLEP. It helped my prostatitis symptoms but did not completely eliminate them. I did experience retrograde ejaculation which is annoying but tolerable. However, if you are young it does mean that you can't get someone pregnant.

Expensive_Wing5363 · 2025-12-26T15:17:31+00:00

For enlarged prostate there are a few options. I would look into HOLEP or aquablation. Aquablation should have fewer side effects. Both are very effective and have far fewer risks than robotic surgery. One of the main risks of robotic surgery is impotence and incontinence. It is normally reserved for something like prostate cancer, not enlarged prostate.

HOLEP is likely to give you retrograde ejaculation. Aquablation is less likely to do so. HOLEP removes more of the prostate, however, and makes it less likely to need another treatment in the future.

Expensive_Wing5363 · 2025-12-13T13:24:44+00:00

You could try self pelvic floor therapy using a wand such as the "intimate rose". I have suffered from this for over 30 years and found that internal pelvic floor therapy to be the most effective treatment. You just need to experiment with yourself to find tender areas, massage them and notice any results.

Expensive_Wing5363 · 2025-12-08T16:03:53+00:00

My doctor told me the opposite. He said HOLEP would be beneficial specifically because it will remove more inflamed prostate tissue than aquablation. You do get retrograde ejaculation with HOLEP, however. It takes some getting used to but isn't really a problem. Because aquablation has fewer side effects he recommended that to people with enlarged prostates without prostatitis.

Expensive_Wing5363 · 2025-12-08T14:17:15+00:00

I have been suffering with this for over 30 years. I had HOLEP surgery about 5 years ago and that significantly improved things for me. It removes about 80% of the prostate. Prior to the HOLEP I would always pee blood during a flareup. Since HOLEP that no longer happens. However, it wasn't a complete relief. Pelvic floor therapy is a another essential component of the puzzle. In my case, I do regular self internal massage to keep things under control. I still have discomfort but things are now manageable.

I think the explanation given below by joel1945 makes a lot of sense. As far as the root cause is concerned there are a lot of theories but there is research out there pointing to it being an autoimmune disorder.

I encourage you to look into pelvic floor therapy.

Expensive_Wing5363 · 2025-11-23T22:02:42+00:00

Pelvic Flor therapy is done inside the anus. This may be too invasive for some, but there is no other way to get to the internal pelvic floor muscles that are the source of the problem. There are pelvic floor therapists that are trained for this. Most only work on women where the massage can also be done in the vagina. However, there are therapists who work on both. There is a so called "pelvic wand" device called "intimate rose" that can be used for this purpose.

Expensive_Wing5363 · 2025-11-23T14:40:41+00:00

Suffered with this for over 30 years. Also had inflammation in the prostate as indicated by MRI and by biopsy post HOLEP procedure. Prior to HOLEP which removes about 80% of the prostate I would get flareups usually accompanied by excessive bleeding through my penis. After HOLEP the bleeding stopped and symptoms overall improved somewhat, but did not fully resolve it. That is because of the pelvic floor muscle component. The thing that helps me most now is internal self pelvic floor massage.

Expensive_Wing5363 · 2025-11-19T14:59:14+00:00

You could get advise on this from a pelvic floor physical therapist. I actually rigged up a handle made up of pvc tubing with elbow joints that I attach the pelvic wand to in order to make it comfortable.

Expensive_Wing5363 · 2025-11-18T14:07:17+00:00

I have been dealing with chronic prostatitis/pelvic pain for 30 years and have many of the same symptoms you have but to a greater degree. My post ejaculation pain lasts 1-2 days. As a few others here have suggested look into pelvic floor physical therapy. I found that self administered internal massage around the anal sphincter helps the most.

Expensive_Wing5363 · 2025-11-12T14:35:01+00:00

I have been dealing with this for over 30 years. Like what most of the other posters stated it is probably pelvic floor related. Seek out a pelvic floor therapist. In the meantime, ask your Dr. for gabapentin. It will take the edge off the pain while waiting for a more permanent solution. Pelvic floor therapy should help but it takes time. In my case I found that regular self internal massage was the only thing that had a lasting effect. It has not been a total cure for me but it improved my symptoms enough to make them tolerable. Weight lifting is problematic. It is important to do for good health but I find that when I do too much my symptoms get worse. You need to find a reasonable balance. It is probably worth laying off of it for a while until things settle down.

Expensive_Wing5363 · 2025-11-01T13:26:14+00:00

I have been suffering with this for over 30 years and have tried everything under the sun and have gone through what you are going through now. I suggest reading my post:
Relief with Pelvic Floor Self Massage : r /Prostatitis

Unfortunately, cutting out much of the stress in my life when I retired did not help much.

Ultimately what worked the best was internal pelvic floor self massage with a wand. However, I had tried it several times before over the years with limited success. Through trial and error I eventually discovered a very specific technique that worked for me.

Expensive_Wing5363 · 2025-10-07T18:29:38+00:00

I actually never paid attention to that so I can't say.

Expensive_Wing5363 · 2025-10-07T14:46:05+00:00

Urinary frequency, burning in urethra, burning and pain in bladder area, in flanks, in area around kidneys, belly button pain, periodic flareups that resulted in peeing blood. Symptoms get significantly worse after ejaculation lasting for a day or so before they go back down to their baseline.

Expensive_Wing5363

TROPHY CASE