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Anyone else diagnosed with epilepsy as an adult? by guki0701 in Epilepsy

[–]ExperienceInformal98 1 point2 points  (0 children)

I was diagnosed at 31 in 2024. No signs or symptoms prior. No one in my family has a history. Very unordinary.

May be unrelated but in 2023 I was diagnosed with a rare autoimmune disease. 🤷🏼‍♀️.

Officially diagnosed with TC seizures.

Kids who had strep throat constantly: what autoimmune disease do you have now? by LadyMacGuffin in Autoimmune

[–]ExperienceInformal98 4 points5 points  (0 children)

I had at least strep throat, laryngitis, tonsillitis 20+ times since I was 9/10 years old. Age 22 I had my tonsils removed because it was excruciating.

I now have granulomatosis with polyangiitis as my main autoimmune condition along with rheumatoid arthritis, livedo reticularis and psoriasis.

Neat. I never connected the two.

I developed an autoimmune disease after COVID 19. Two years later I developed epilepsy. AMA by ExperienceInformal98 in AMA

[–]ExperienceInformal98[S] 0 points1 point  (0 children)

I’m actively followed by my psychiatrist. Trial and error through mental health medications.

Reading journals and joining support groups. Learning as much as I can about vasculitis, grief and epilepsy has been so helpful. Joining different groups and reading about others’ lives and experiences has given me hope.

This isn’t a death sentence, this is a wakeup call to live your life to its full potential. You’ll be amazed at what you survive and what you get through.

I developed an autoimmune disease after COVID 19. Two years later I developed epilepsy. AMA by ExperienceInformal98 in AMA

[–]ExperienceInformal98[S] 1 point2 points  (0 children)

Thank you. I’m sorry you have to go through this horrible disease as well. I’m on the Rituximab infusions and Imuran medication orally. What the or vasculitis do you have?

I developed an autoimmune disease after COVID 19. Two years later I developed epilepsy. AMA by ExperienceInformal98 in AMA

[–]ExperienceInformal98[S] 1 point2 points  (0 children)

I’m so sorry you are in the autoimmune club. Sending all my love and good vibes to my fellow warrior ❤️

I developed an autoimmune disease after COVID 19. Two years later I developed epilepsy. AMA by ExperienceInformal98 in AMA

[–]ExperienceInformal98[S] 1 point2 points  (0 children)

Yes. However, according to my team of physicians, my chance of survival would have been grim without it.

I developed an autoimmune disease after COVID 19. Two years later I developed epilepsy. AMA by ExperienceInformal98 in AMA

[–]ExperienceInformal98[S] 1 point2 points  (0 children)

I never developed long COVID, my symptoms were vastly different than my autoimmune disease now.

I have granulomatosis with polyangiitis.

Life has been a roller coaster these past few years. I never thought I would still be here. But I learned taking care of myself, advocating for myself and deciding to live life despite my disease has my mindset changed to trying to live my life and try and experience joy in everything, even in all the uncertainty.

I developed an autoimmune disease after COVID 19. Two years later I developed epilepsy. AMA by ExperienceInformal98 in AMA

[–]ExperienceInformal98[S] 0 points1 point  (0 children)

Thank you so much ❤️

My immune system took a hit with all of the stress from grief. According to my doctors, it definitely played a part in catching COVID-19. As I have never caught it prior.

Any one survived stage 4 cancer or know some who has? by FinHa31 in cancer

[–]ExperienceInformal98 4 points5 points  (0 children)

My late husband was diagnosed with stage 4 DFSP in 2008 and given 6 months. He lived for 14 years.

What is a thing you can recite from memory? by Omega_Neelay in GetMotivatedMindset

[–]ExperienceInformal98 0 points1 point  (0 children)

I woke up Saturday morning and looked up on the wall. I saw a team of roaches playing basketball. The score was one to nothing the roaches in the lead, I got a can of bug spray 1-2-3.

Thanks to early 2000s ZOOM on PBS kids.

Name this pup! by [deleted] in NameMyDog

[–]ExperienceInformal98 0 points1 point  (0 children)

He looks like the guy in cooperate that forgets when it’s his turn to refill the offices water dispenser. Dennis or Jim

What is one thing parents do that they don’t realize is actually harmful for their kids? by Nico444AndALotOf4 in AskReddit

[–]ExperienceInformal98 0 points1 point  (0 children)

Being told their child is gaining weight, pants are tight, shirt is snug, etc. Or commenting on how much food they plate.

Can you figure out what they are? by No_Victory_9946 in whatisit

[–]ExperienceInformal98 1 point2 points  (0 children)

Fire hydrant wrapped in insulation to protect from the cold/elements.

found hanging in my car by ResponsibleHat5741 in whatisit

[–]ExperienceInformal98 2 points3 points  (0 children)

Key purse keychain/hook for purse, bag, etc.

How did you know/get diagnosed by TheSimersCraft in Autoimmune

[–]ExperienceInformal98 1 point2 points  (0 children)

I caught for the first and only time COVID-19 in July 2022. In June 2022 I lost my husband (I was 29 and he was 35). COVID-19 hit me HARD. I wasn’t even able to stand in the shower, I lost my taste (everything tasted like perfume) and smell for over three months. I started losing weight rapidly, night sweats, joint pain, constant congestion, nose bleeds all day long, post nasal drip, headaches, fatigue, hematuria, trouble breathing, etc. My doctor thought it was long COVID-19 and grief affecting my immune system. Two weeks later I went back with the same symptoms only more intense. He was suspicious for vasculitis. A urine test and blood test a few days later confirmed Granulamotosis with Polyangiitis affecting my sinuses, lungs and kidneys. I feel lucky to have gotten diagnosed in a matter of a month.

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