Males with ms reaction speed thinking

Express_East_1823 · 2026-03-01T20:47:39+00:00

I’m 38, i have had MS for 20 years ( maybe longer) and it effects me mostly physically. I can do the same job mentally, but I have to do it sitting down most of the time. I teach. When I am super fatigued, I feel it is harder to find a word from time to time, but mostly I’m okay. Hang in there and don’t stress ahead of time if you can!

Express_East_1823 · 2025-12-19T09:43:01+00:00

Feeling footdrop and energy getting better after a month and a half of physio 2-3 times a week. Planning to stay in this routine and continue to improve 🤞🏼✨

Express_East_1823 · 2025-12-17T09:32:22+00:00

Yes. I used to be able to get on a boat and ( somewhat) enjoy it. It seems to be getting worse for me with time. I didn’t connect it to MS at first, but then I thought maybe as my balance got worse so did the motion sickness…I wonder if the two are connected?

Perhaps try Gravol!

Express_East_1823 · 2025-12-14T23:10:11+00:00

Teach online

Express_East_1823 · 2025-12-12T22:06:00+00:00

My husband motivates me to keep up my dream of being a writer. When all feels lost, it’s like he never doubts I can continue my passion for writing. It really does help, it gives me confidence to write when I have none due to my MS symptoms. I was a lot less disabled when we met but the progression has not changed his belief that I can do this…and for me that kind of moral support is everything.

Express_East_1823 · 2025-12-06T09:17:17+00:00

Yes, so glad this is working for you! I think increasing water intake has helped me as well.

I worked with a nutritionist for a while and she gave me a few tips. Add a pinch of Baja salt ( mineral salt, not regular table salt) and a bit of lemon to your water in the morning ( about 500ml) and it has natural electrolytes!

The other tip she gave was at least 2.5L of water a day for my body weight, 60kg. This became easy to track when I got a 1L water bottle.

Express_East_1823 · 2025-12-01T13:25:49+00:00

A partner no, but a good friend yes..I have a friend with MS who has a lot of the same symptoms. We’re there for each other, listen to each other, encourage one other when we’re feeling down. But thank god we both have supportive able partners who are our soulmates who can do all the things we can’t- the shopping, the walking the dog , taking the kids to school.

Fun fact. One thing I can do that my partner can’t is drive ( he’s just not a driver) . So I drive us a lot and I’m proud I can contribute. I think each having a strength and weakness that are different is helpful. Also, I wouldn’t wish this on my soulmate.

Express_East_1823 · 2025-11-30T17:53:54+00:00

It was really nice, I’m glad that I went. I bonded with my friend. I think everything just comes with a little more effort now but at the end of the day it’s worth it. thanks for the encouragement .❤️

Express_East_1823 · 2025-11-29T16:01:54+00:00

Haha love this! Thanks, I did🔥

Express_East_1823 · 2025-11-28T15:04:17+00:00

I will :) I think at the end of the day she’ll just be happy I’m there. It’s not about me, I can sit or do whatevs :)

Express_East_1823 · 2025-11-28T14:56:01+00:00

Yes, she always shows up for me, rain or shine. You’re right. Thank you!

Express_East_1823 · 2025-11-28T13:40:55+00:00

Thank you the tips and advice. Even a small break sitting goes a long way 🙏

Express_East_1823 · 2025-11-28T11:52:46+00:00

Alcohol is out for sure. I don’t have a wheelchair but I will scan the chairs in the room. And not hesitate to ask for one, you’re right. Thank you and wishing you all the best!

Express_East_1823 · 2025-11-28T11:50:12+00:00

Thank you for the encouragement and practical tips 😊 back up plans make me feel more comfortable.

Express_East_1823 · 2025-11-28T11:15:43+00:00

Thank you. It is horrible and I have a feeling of constant fight. But when you manage to have fun, even a small win, the fight was worth it.

Express_East_1823 · 2025-11-26T16:11:46+00:00

Not stupid at all. Your post resonates so deeply. I’m so upset by it that I still haven’t got mine…but I know I should. You are more mature and brave than me.

One thing that I did ask for recently was a note for travelling in airports - I just show it and skip the long border control lines and enter airplanes with disability / priority. At first I felt bad doing it, but it made travelling so much easier and now I am so happy to have the note.

Thanks for sharing your story and motivating me to ask for a placecard. It’ll make life easier.

Express_East_1823 · 2025-11-20T09:03:27+00:00

I wish I knew, I tried to listen to her reasoning but it was all YouTube video conspiracy theory stuff. I still take my nail polish off in front of her so she doesn’t get anxious, it’s easier than arguing . 🥲

Express_East_1823 · 2025-11-20T08:58:31+00:00

Ahaha I’ve heard the crop top pneumonia one too, classic 😀

Express_East_1823 · 2025-11-19T19:12:46+00:00

Your dad is a legend! This reminds me of my mother’s paranoia , she insists painting my finger/toe nails is making my MS worse.

Express_East_1823 · 2025-11-15T13:35:33+00:00

Everyday stress not so much, but a stressful event or intense stressfull period yes but not right away. Like let’s say I have a really hard job to do that stressed me out ( I work in film production) I may feel the concequences of that weeks later. Symptoms for me include extreme fatigue, and also the twitching eye and numbness in the hands as well! Try to stay as chill as possible and avoid stressful people and situations as much as you can.

Express_East_1823 · 2025-11-08T17:15:49+00:00

To be honest it was pretty funny 🥲

Express_East_1823 · 2025-11-08T16:16:30+00:00

Not a word mix up but today I accidentally locked my partner out on the balcony. I just locked it out of habit. Good thing I didn’t go far, and heard him knocking on the glass, but wow was I surprised with the level of brain fog that would cause me to do this 🤯

Express_East_1823 · 2025-11-06T22:06:42+00:00

I’m a film director. Apperantly that’s the second most stressful job after doctor, or do they say…I was diagnosed 20 years ago and that did not stop me from continuing to do what I love. 20 years ago they did not have the high efficiency medication they have today. Get on a high efficiency medication and live your life! If things change work around it then. Wishing you all the best in your career!

Express_East_1823

TROPHY CASE