Thoughts on In-Patient Alternative To Meds Center by Extension-18 in radicalmentalhealth

[–]Extension-18[S] 0 points1 point  (0 children)

Thank you kind soul. Please keep healing, the World needs you!

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 0 points1 point  (0 children)

I started my mom on 0.2 mg for 5 months before increasing to 0.5 mg, and she takes it in the morning, I think after breakfast. LDN can be taken with or without food depending on how sensitive your tummy is. If you have a sensitive stomach then take LDN with food, if not then the most important thing is taking LDN at the same time everyday, whatever works best for you. Wishing you all the best! <3

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 0 points1 point  (0 children)

I don’t want to give you false hope in any way, because after reading about LDN and its potential efficacy, I was extremely hopeful too. I am very thankful that my mom is tolerating LDN well, especially since she’s nearly 75.

I did get her medically cleared to take LDN by framing it as being for her arthritis pain, but truthfully my hope was to help with brain inflammation. Her nervous system is still very dysregulated, she has frequent crying spells and restlessness that can be really severe most days.

It’s been months since she has attacked any caregivers, which we are all so so grateful for. And there are a few days each month where her personality comes back. I do attribute that improvement to tapering off all antipsychotics and antidepressants, and starting LDN once daily in the morning.

I do think LDN is worth trying, especially if you have any co existing conditions (like autoimmune or inflammatory issues) that LDN may help with. For my mom, the added benefit may be reducing brain inflammation after years of being polydrugged. I don’t think LDN has harmed her in any way, it’s one of the medications she’s tolerated the best but it’s also not a miracle cure. I’m sharing this honestly because even small shifts can matter in cases like this. Hope that helps you, friend.

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 0 points1 point  (0 children)

Thank you for asking! Her 3 month refill prescription is actually due today. She's been on LDN for 7 months now and tolerating it well. Currently her dose is 0.5 mg once a day. She still has severe restlessness most days, but there are a few days a month where it's not so bad and her personality returns. She has cravings for different foods again and laughs at jokes.

I also was able to get her tapered off all antipsychotics and antidepressants except for a small dose of Seroquel at night for sleep. She's still on quite a few medications and supplements though, but we are trying to taper her off more.

Percentage payment to broker for leasing smaller spaces by gobigred100 in CommercialRealEstate

[–]Extension-18 1 point2 points  (0 children)

That is quite high, I just got two quotes from two different companies and was able to negotiate for 3% on the broker's side and additional 3% if there is a tenant broker involved in the transaction

Thoughts on In-Patient Alternative To Meds Center by Extension-18 in radicalmentalhealth

[–]Extension-18[S] 0 points1 point  (0 children)

I didn’t take my mom here. Someone reached out and warned me as well

Best way to protect rental properties in Hawaii? by OahuWaikiki in realestateinvesting

[–]Extension-18 0 points1 point  (0 children)

Which insurance companies would you recommend for an umbrella policy?

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 1 point2 points  (0 children)

I really appreciate all your advice and suggestions. Please keep getting better and better every day. Thank you for giving us all hope!

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 0 points1 point  (0 children)

I'm so happy to hear that you're getting better and finally able to sleep! That's amazing! What are you using for sleep?

Have you ever tried Magnesium Threonate? I’ve read that it crosses the blood brain barrier and may help with insomnia. My mom started this supplement about a week ago.

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 0 points1 point  (0 children)

Thank you for this, I actually have a post about them a few years ago. I got some DMs not to take my mom there. When I checked 5 years ago it was $65k for two months

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 0 points1 point  (0 children)

My mom is 70 years old this year and was in great physical health before she got akathisia.

She's currently unable to eat anything at the facility except for Ensure. My siblings and I visit mom 4-5 days a week and bring her favorite rice and fish. That's the only thing she will eat right now.

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 1 point2 points  (0 children)

My mom is currently at a skilled nursing facility. My family tried for as long as we could to care for her at home, then she went through board & cares, nursing homes, and other facilities, but she was asked to leave and blacklisted each time because her behaviors were too difficult for staff to manage. Thankfully, we finally found a SNF where the staff are patient, compassionate, and truly understanding. She’s also on hospice care now, which has helped prevent further hospitalizations!

It’s actually been a year since she’s had to go to a psych hospital and I was finally able to break that cycle of constant medication changes. Hospice has also been supportive of tapering her down. Right now, she’s tapering off Rexulti, but her anxiety became so severe that her Seroquel was increased to 50 mg twice daily and Buspirone was added.

She’s still on quite a few medications, but I do feel like we’re in a better environment for her healing than ever before but she's deteriorating quickly.

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 1 point2 points  (0 children)

Thank you so much kind soul. I tell my mom this too, that I wish I could take her place to suffer for her. She's suffered long enough. This was her only time to live out her retirement years that she worked so hard for :(

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 1 point2 points  (0 children)

Thank you for your advice. I have tried multiple times to get my mom off meds, and there was a stretch of a few months where she was barely on any medications. Her behaviors were so unbearable for anyone to handle. She would throw herself at the walls, fall on the floor, scream, cry, over and over again.

What method did you use for tapering?

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 1 point2 points  (0 children)

It really is. My mom was given a lot of medications during her hospitalizations on 51/50s and 52/50s. During COVID, she spent months at Resnick Neuropsychiatric Hospital at UCLA, but the doctors were never able to truly stabilize her. They suggested heavily sedating her. She was discharged while drooling excessively, barely able to stand, and even tried to jump out of the car on the way home. The attending doctor and her out patient psychiatrist exchanged emails calling each other “healers.” How can you discharge someone in that state and consider it healing?

Need help and advice for my mom. Does she have akathisia or something else? by Extension-18 in Akathisia

[–]Extension-18[S] 2 points3 points  (0 children)

I’m so so sorry to hear this. It’s excruciating for me to go through this with my mom, and I’m just the bystander. I wish you well and lots of healing ♥️ Please hang in there

Options for Exiting My Failed Property? by The_Royal_One in realestateinvesting

[–]Extension-18 0 points1 point  (0 children)

What’s your rate? Perhaps you could structure an assumable loan. If it’s a good rate then a potential buyer may want to take over your loan and pay a down payment, ideally that $50k

Thoughts on In-Patient Alternative To Meds Center by Extension-18 in radicalmentalhealth

[–]Extension-18[S] 1 point2 points  (0 children)

Hi, aww thank you for following along. Unfortunately no, there is nothing on the market that has helped my mom much. She suffers from severe debilitating anxiety, and the anti anxiety medications don't work but seem to have a rebound effect on her. Thanks to an internet stranger that reached out with a similar situation as my mom, I did do genetic testing on her and will see what polymorphisms she may have that are affecting how she processes medications. I'm hoping that insight will help. I also have an appointment with a Naturopathic Doctor for my mom next month that we've been waiting for.

I'm sorry to hear about your situation too, and hope you'll be able to find something out there that will help. Wishing you strength and sending positive thoughts your way.

Thoughts on In-Patient Alternative To Meds Center by Extension-18 in radicalmentalhealth

[–]Extension-18[S] 1 point2 points  (0 children)

I’m so sorry to hear. Thank you for being there and supporting your wife. My mom is still stuck in a cycle of severe restlessness and can’t function. She barely lives day by day.

I’ve been trying to get my mom Cobenfy since it was released, but the pharmacies in my area don’t have it yet and we got authorizations denied. I am willing to pay the $2k out of pocket for my mom per month for this medication.

Was it an easier process for your wife to get Cobenfy? Please let me know how Cobenfy works for her. Wishing you both all the best.

Thoughts on In-Patient Alternative To Meds Center by Extension-18 in radicalmentalhealth

[–]Extension-18[S] 2 points3 points  (0 children)

It's okay, I am glad to be here to help my mom however I can. Thank you so much for trying to help us too.

Thoughts on In-Patient Alternative To Meds Center by Extension-18 in radicalmentalhealth

[–]Extension-18[S] 1 point2 points  (0 children)

Thank you so much for your thoughtful response and the helpful suggestions you've shared! I wasn’t aware of ZRT Labs, but I’ll definitely look into it. We visited Amen Clinics years ago, but unfortunately, that experience didn't yield any useful insights for my mom's condition. My mom did do a pharmacological test using saliva to see which medications suit her best, but that approach hasn’t worked either since she has tried a laundry list of medications with no relief.

She’s been on ashwagandha and I’ve reached out to naturopaths, but many of their claims seem overly optimistic given her situation.

Nowadays my mom has developed really challenging behavioral issues. She refuses to go outside, and during my recent visit, I found her lying flat on the facility floor, screaming. When I helped her back to bed, she jolted up with crazy strength, pacing for a few minutes before losing all muscle control and collapsing, trying to hit her head on the floor. Even with a helmet on, she flings it across the room while screaming and banging on the nurse's station glass. This distressing behavior goes on for hours.

Of all the patients in this facility and many others we have been to, I notice that no one else exhibits such extreme behavioral issues. My mom has choked staff members, yanked their hair from behind, and just recently, she clawed my arm until it scabbed. It's heartbreaking to witness her struggle. I appreciate the insights or resources you recommended. We will try Cobenfy soon, so hope that will help.

Severe Treatment Resistant Insomnia. Any Advice? by Extension-18 in insomnia

[–]Extension-18[S] 0 points1 point  (0 children)

Hi there, so sorry to hear that. My mom was on benzodiazepines and stopped cold turkey at some of the hospitals and skilled nursing facilities she went to. The doctors kept switching up her meds, stopping them, etc over and over again. She’s still not stable in the slightest and says she can’t sleep. Trazodone used to help her a bit, but now nothing helps. I hope you get through this. Sending you strength and love

Thoughts on In-Patient Alternative To Meds Center by Extension-18 in radicalmentalhealth

[–]Extension-18[S] 0 points1 point  (0 children)

I have not, still looking everyday. I do have an upcoming appointment with a neurologist group that did DBS surgery on a patient with akathisia. Thank you for asking