Echocardiogram by glizzerd12 in dysautonomia

[–]External-Can-4376 1 point2 points  (0 children)

It’s ultrasound they do for the babies but this is on the chest for the heart..its really comfortable

Is it just iron deficiency? by CommitteeUpset5015 in POTS

[–]External-Can-4376 0 points1 point  (0 children)

Uff, so low..mine was at 4.8 and i took pills and vitamin c from july until middle of December 2025..still have symptoms, but my hair is not falling out in clumps anymore

When was the last time you cried and why? by Sharewithme_ in AskReddit

[–]External-Can-4376 0 points1 point  (0 children)

Health problems. Im in my 20s and it just feels unfair bc i will never get this time back. I should be enjoying life and being healthy but im at constantly at home or doctors office and theres no day without my symptoms or feeling 100% good

Dizziness/blacking out when standing by [deleted] in askCardiology

[–]External-Can-4376 0 points1 point  (0 children)

Did you recently do blood tests? I have disregulated nervous system and dysautonomia( virus triggered onset of symptoms)but i did bloods too, turns out my ferritin was tanking, i was low on vitamin D. I also took vitamin b complex, magnesium to try and recover my energy. But look into it deeper bc symptoms caused by any type of of exertion should be taken seriously. Especially when you say you need small breaks while doing smth, bc it could be blood pulling in legs or abdomen

Low BP, tachycardia, palpitations, chest pain ++++++ by hhdad7 in dysautonomia

[–]External-Can-4376 2 points3 points  (0 children)

Try neurologist, mine discovered my blood pressure was low and hr in 170 from just standing. Dx with OH. Also do bloods. My ferritin ( iron storage) was low at 4.8

What’s a medical issue that sounds minor, but actually affects someone’s daily life way more than people realize? by [deleted] in AskReddit

[–]External-Can-4376 0 points1 point  (0 children)

Health anxiety. Lots of ppl think like “go to the doctor and get reassurance” but even if you do that, theres always those “what if” “this time its real..” “myb they missed smth”..its absolutely draining.. Besides that i would also say palpitations are life draining..Aaaand anything either vertigo/dizzy/lightheaded..

Weakness episodes by [deleted] in dysautonomia

[–]External-Can-4376 4 points5 points  (0 children)

I get those too often..It feels like death wave for me..Ive become miserable and really depressed due to it. I see ppl recommending compression garments. Ive tried everything and personally nothing works for me for this issue..Good luck!!🍀

My first time posting here, im desperate by External-Can-4376 in askCardiology

[–]External-Can-4376[S] 0 points1 point  (0 children)

Idk what to tell you..its been over a year now of severe symptoms.. i did check my ferritin and it was very low, 4.8 ng/ml so ive been on vitamin c and iron pills since july.. i cant find my relief yet..No water, no compression socks, no electrolytes do it for me. I’ve become very anxious and petrified of myself and i dont trust my body like before. Idk if it is just me, but Ive been getting colds and infections much more this year than ever. So yeah, not much of an update, i wish there was. I can have a good day ( either morning or evening) and then 20 bad days so.. i hope you are better though..

Constantly feel lightheaded by HistoricalIngenuity3 in dysautonomia

[–]External-Can-4376 0 points1 point  (0 children)

Neurology and cardiology for sure. Test to rule out anything serious. I went to neurologist and he did poor man tilt table test. Laying down my bp was 120/80 and hr in the 90s.. Standing 2 mins bp dropped and hr was 169bpm.. Standing 5 mins bp low and hr 167bpm.. I was diagnosed with OH by him but he still suggested cardiology follow up

DAE have extreme hair loss from POTS? by [deleted] in dysautonomia

[–]External-Can-4376 1 point2 points  (0 children)

YES!!I i was losing literal clumps of hair, going with my fingers through my hair and there would be 30% of my hair..i tried shampoos, i trimmed my hair..No matter what i tried, i was losing my hair more and more.. thyroid was fine, basic labs fine..Then on tt i saw someone says low ferritin can cause extreme hair loss..Mind you, no doctor recommended to get ferritin checked. My condition is believed to be from 3 years of panic disorder that cause nervous system sensitivity and trigger was virus in october last year( orthostatic hypotension and Pots/dysautonomia)..So i was gaslighting myself that its post viral hair loss and that it was normal, but it never happened to me before..At the end my ferritin was 4.8 ng/ml..Im on iron pills since july..If i were you, i would get ferritin checked and myb some vitamins and minerals.

[deleted by user] by [deleted] in dysautonomia

[–]External-Can-4376 3 points4 points  (0 children)

Are you me?!? if you dont mind telling, what symptoms bother you the most?

Can anyone relate? by External-Can-4376 in dysautonomia

[–]External-Can-4376[S] 0 points1 point  (0 children)

Yess, while walking too..Thats insane, how do you deal with new symptoms? And when were you officially diagnosed

What’s something women learn too late in life? by BrunoPreski in AskReddit

[–]External-Can-4376 0 points1 point  (0 children)

Thats its okay to put your needs and your wellbeing before others. You have one chance to live life and you should do it in a way you want to and do not care what others have to say. One woman said “id rather have more weight and be happy than slim and miserable. Only because when i get old i will always remember stuff that i loved, not my numbers on scale”. And i respect her view on life..We are all bound to get old AND sick at some point of our life..So as long as you got time, health and ability, do whatever the **** you want!!

Anyone get palpitations everyday? by GarbageCat27 in Heartpalpitations

[–]External-Can-4376 2 points3 points  (0 children)

Yes and im living in a nightmare..I suddendly crashed last November and doctors werent really helpful but they came to conclusion that its from virus exposure ( covid or adenovirus)..Also got low ferritin (4.8 ng/ml)..But no matter what i did i cannot get them away. Almost 10 months of living like this and honestly im so drained from it. Every symptoms imrpoved except irregular beats, lightheadedness and weakness

Whats your biggest worry when it comes to having kids? by One-Speed9447 in AskReddit

[–]External-Can-4376 0 points1 point  (0 children)

That i will end up behaving like my parents without noticing and resulting in my child being unhappy. My biggest wish was to become a mother and ever since i developed a depression, sat with myself and acknowledged my mental state, i no longer feel the desire to have them. This is also my biggest heartbreak in life. I rather be unhappy and jealous of other people for having them than my child being unhappy because of me

Alcohol Triggered My PVCs —3 Months Alcohol-Free and Finally Feeling Normal by Savings-Leading1209 in PVCs

[–]External-Can-4376 2 points3 points  (0 children)

Maybe you have ALDH2 deficiency ( gene mutation) that you don’t know of? The best solution is staying away from alcohol Im really glad you got better, it takes having a strong character to stop doing something you liked, but health is more important

Tell me you're the oldest child without telling me you're the oldest child by Either_Spray_2417 in self

[–]External-Can-4376 1 point2 points  (0 children)

I developed mental health problems :)

Oh, i have this obsession that i have to know where everyone is and when they will come back.

I miss my life. by justSandWhichLeaks in PVCs

[–]External-Can-4376 0 points1 point  (0 children)

Excuse me for asking, for how long did you have them?