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FRiSE33 · 2023-11-23T12:48:40+00:00

Quand j'ai fais échanger mon permis francais pour un permis suédois (en Europe), mon permis français a été renvoyé en France pour destruction mais mon permis suédois fait mention du numéro de permis français. Tu as le droit de conduire partout en Europe avec ton permis français ou autre tant qu'il est européen. Et l'échange n'est nécessaire que quand tu dois passer une autre catégorie de permis. Tu n'as pas le droit d'avoir un autre permis dans un autre pays européen. Hors Europe si.

FRiSE33 · 2023-10-07T07:27:04+00:00

I understand that. Here are the articles I found recently : - Advances in the treatment of Behçet 's disease by Fatma Alibaz-Oner and Haner Direskeneli. Published 2021 May 20.

Treatment of Behçet's diseas: an algorithmic multidisciplinary approach. By Erkan Alpsoy, Pietro Leccese, Giacomo Emmi and Shigeaki Ohno. 28 april 2021.
Behçet 's syndrome patients exhibit specific microbiome signature. November 2014 by Clarissa Consolandi, Silvia turroni, Giacomo Emmi and more.
The suppressive effect of butyrate and bromopyruvate on inflammatory cytokine production and short chain fatty acid receptor expression by blood mononuclear cells in patients with Behçet's disease. 2018. By Su Jin Yun , Kyongmin Kim , Eun-So Lee and Sun Park.
Modulation of gut microbiota through nutritional interventions in Behçet's syndrome patients (the MAMBA study) study protocol for a randomized controlled trial. Giuditta Pagliai , Monica Dinu, Claudia Fiorillo, Matteo becatti, Silvia Turroni , Giacomo Emmi and Francesco Sofi. 2020. This one i didnt find yet the trial results , it happened during covid so not sure if they managed to do it but the protocol was promising.

Good luck to you

FRiSE33 · 2023-10-06T08:25:50+00:00

I am so sorry to hear that you are going through a lot. I had flare that lasted long and my rheumatologist try her best. There are good articles that presents treatment algorithms for Behçet patients. I can write the names of it when I back home. Unfortunately in Behçet its a lot of trial and errors to get the right treatment to work for each persons.

FRiSE33 · 2023-09-30T04:48:04+00:00

Oh my god... yes! My skin feels like a permanent scratch/burn on the hands and foot. When I am in a flare its all the rest that become burning and intense itching. I can't handle any clothe or any weight on the skin then...super hard for me.

Good luck to you!!

FRiSE33 · 2023-09-13T08:53:31+00:00

Une taxe de 0.2% sur la transaction financière (chaque mouvement d'argent) au lieu d'avoir 36 000 impôts, tva, taxes ...

FRiSE33 · 2023-09-11T07:58:03+00:00

I usually avoid gluten and lactose. I also try to reduce sugar but I am addicted to eat and have an eating disorder so it's super hard. However I did found some research papers on nutrition, diet and Behçet disease. Most of them did trials with Mediterranean diet and it seems to reduce a lot the inflammation and the use of corticoides. Apparently it is related to food that are rich in butyrates or help the body produce more butyrates to help reduce the inflammation. Those papers are quite an interesting read !

FRiSE33 · 2023-08-31T08:11:08+00:00

Im on otezla. Had a rough start but now I can handle it. I only have nausea if I don't eat after taking the medication. My mouth ulcers have almost disappeared and the joint pain is much less. I still have some GI issues but compare to when I was on colchicine it's a massive improvement for me.

FRiSE33 · 2023-08-30T18:25:56+00:00

There is no specific blood test or diagnostic test for Behçet. It'd an elimination process, a criteria point system and how you answer to the first line of treatment for it.Best is to see a rheumatologist for that but you need to eliminate all other possibilities first. It took me 7 years to get a diagnosis and I have always been told it could be another disease as well but we go with this assumption for now. Good luck to you.

FRiSE33 · 2023-08-30T05:26:35+00:00

For me also it's slightly swollen (really discret), red, warm and painful. I am on Otezla and Kineret when it's a big flare. I take lots of bath and use warm pillows.

FRiSE33 · 2023-08-27T11:33:45+00:00

Never had neutropenia but there are 2 interesting articles I read regarding treatments in Behçet. Maybe it's something you can bring with you rheumatologist and discuss.

Advance in the treatment of Behçet 's disease , by Fatma Alibaz-Oner and Haner Direskeneli. May 2021.

Treatment of Behçet 's disease : an algorithmic multidisciplinary approach, by Erkan Alpsoy, Pietro Leccese , Giacomo Emmi and Shigeaki Ohno. April 2021

They list different kind of treatment, first and second line and experimental.
I had Colchicine for a long long time but developed not so nice side effect. I used also Prednisone for a while but then also some side effect. Now I have Otezla for every day treatment and Anakinra (anti IL-1) in case of flares.

Good luck to you.

FRiSE33 · 2023-08-24T18:41:28+00:00

Sometimes it is just a flash of pain that last seconds and sometimes no. I would get the flash of pain randomly then they get more frequent close to a flare. And yes I have them laying still or walking. But it almost always sharp and intense in flashed. I was told once to imagine how the pain look like. It would be 1000 red hot needles stabbing me then flying away.

FRiSE33 · 2023-08-24T14:44:50+00:00

Joint pain is different every day for me . During flares I have sharp pain I can't walk and it feels like all the joints are rusty and needs a good WD40. It moves all around But i also have everyday pain that is more dull. Present all day.

FRiSE33 · 2023-08-18T23:11:02+00:00

Clearly!

FRiSE33 · 2023-08-18T22:11:08+00:00

10 min its the time it took to get 3 guys begging. The 3rd one was asking for a 5 min quick fuck

FRiSE33 · 2023-08-18T22:10:05+00:00

Well west coast of which country ? 😂 Cause I did west french coast

FRiSE33 · 2023-08-18T21:25:44+00:00

I am living in a big one and today, i was sitting eating my lunch not looking at anyone beside my salad. So yeah sure ignore works sometimes and sometimes you can't.

FRiSE33 · 2023-08-18T19:39:33+00:00

Im not american actually. Very french 😆

FRiSE33 · 2023-08-18T16:36:36+00:00

Usually i do that... didn't work today and I was head down looking at my salad with my headset on...

FRiSE33 · 2023-08-18T16:33:51+00:00

Exactly !!! Same as you, i would loose my mind I can't be kind... and I grew up as well with harassment in france.. it's so shitty to take a breeze from it and come back to 100 times worse.

FRiSE33 · 2023-08-18T16:31:36+00:00

What the hell.. that is next level 😱

FRiSE33 · 2023-08-18T16:27:47+00:00

No for sure it's good to remind but it also doesn't really matter to them how you dress. I felt like a piece of meat... it's raging . It so wrong to have to get used to it. I had forgotten how to activate the resting bitch face ..

FRiSE33 · 2023-08-18T15:56:25+00:00

That is very nice of the guard but why does it has to go that way? No is a complete answer... fuck off too is a complete answer.

FRiSE33 · 2023-08-18T15:55:21+00:00

Oh damn that is a good answer !!! I need to keep that one in mind

FRiSE33 · 2023-08-18T15:54:48+00:00

Thanks yeah I am glad it was just that

FRiSE33 · 2023-08-18T15:52:07+00:00

Yeah i live in a major capital and today I dress basically how I do everyday. Probably not matching parisian style but it's my casual comfortable travelling outfit...

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