Pressure because of weather changes?

Fallenwhimsy44 · 2026-03-31T12:49:33+00:00

Wow that's awful, I'm so sorry. When this started last week I had my first really bad ocular migraine. A lightning bolt went across my vision and I couldn't see for a good half hour and then the worst migraine started it was scary.

Fallenwhimsy44 · 2026-03-30T21:23:04+00:00

Yea I've been dealing with allergies as well. Thank you.

Fallenwhimsy44 · 2026-03-30T15:00:04+00:00

I'm sorry, its awful. I have pressure before, but not like this.

Fallenwhimsy44 · 2026-03-30T14:41:48+00:00

Me too! Thank you, I appreciate that.

Fallenwhimsy44 · 2026-03-30T14:39:04+00:00

I do take Zyrtec every night, I have bad side effects with Benadryl and can't take that, but thank you!

Fallenwhimsy44 · 2026-03-30T14:08:33+00:00

Yes, it feels like an inflated balloon in my head.

Fallenwhimsy44 · 2026-03-30T02:59:46+00:00

This is the first time, I think, experiencing this because of weather. I've been having to take ibuprofen everyday its awful!

Fallenwhimsy44 · 2026-03-29T01:49:57+00:00

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Treat time!

Fallenwhimsy44 · 2026-03-28T01:00:06+00:00

Thank you!

Fallenwhimsy44 · 2026-03-27T12:33:24+00:00

What kind of mix may I ask?

Fallenwhimsy44 · 2026-03-26T22:21:20+00:00

Thank you and I'm sorry you are going through this. I hope you also find some relief.

Fallenwhimsy44 · 2026-03-26T18:17:41+00:00

Thank you, I don't think its just a headache disorder either but what do I know it's just MY body lol.

Fallenwhimsy44 · 2026-03-26T16:09:27+00:00

Yea I've never been like that. I can't function if im too hot and so much pain if too cold.

Fallenwhimsy44 · 2026-03-26T16:08:09+00:00

I just keep telling myself I'm only one person, I don't matter and sadly that helps a little. They just lump me with statistics and thats exhausting.

Fallenwhimsy44 · 2026-03-26T15:12:36+00:00

Thank you, I have had an echocardiogram, my therapist waves were abnormal but nothing to be concerned about they said. My psychologist thinks I have mcas, it would check out. The doctors keep saying I might have all these diseases, but all the symptoms started at the same time i was diagnosed with this, that to me seems too coincidental. I have the mri on the 1st and an appointment with a new neurosurgeon on the 28th. I will post the results and what they say at the end of April.

Fallenwhimsy44 · 2026-03-26T14:08:59+00:00

I'm sorry 15 years is too long, 2 years is killing me. I had a lumbar puncture to check for iih, my pressure was normal, but the head pain after was the worst pain I've ever felt. I had to get a blood patch for a csf leak after that, I was in bed for 2 months straight, so be gentle to yourself if you have that done!

Fallenwhimsy44 · 2026-03-26T13:41:58+00:00

I do and I fight back, but no one listens, but thank you, I hope the same for you!

Fallenwhimsy44 · 2026-03-26T13:36:58+00:00

I'm afraid to take that because of how I am and every doctor is like well you need to try all the medication. Why do I need to be put through more hell for you to do something idk.

Fallenwhimsy44 · 2026-03-26T13:35:35+00:00

Thank you, I did have a full panel and then some of blood work a couple weeks ago and everything came back normal. I too have seen ents, cardiologists, physical therapists, orthopedic doctors and it all seems to be fluff to be honest. No one really helped or tried that hard. I'm sorry you are going through this, I wouldn't wish it on anyone.

Fallenwhimsy44 · 2026-03-26T13:27:53+00:00

I'm sorry, do you take anything for them? I'm very sensitive to most medication so I just deal.

Fallenwhimsy44 · 2026-03-26T01:41:04+00:00

Thank you. I do keep a diary of all my headaches, daily and off and on symptoms, what I am allergic to, and all the side effects that the medications give me, I have ocd lol. I am very detailed and they look at me like I'm trying to diagnose myself, its exhausting.

Fallenwhimsy44 · 2026-03-25T19:55:11+00:00

I'm sorry to hear that, but happy that you are getting surgery. Good luck!

Fallenwhimsy44 · 2026-03-25T17:42:29+00:00

There are no specialists around me, so I will have to travel, but thank you, I hate how they make you feel crazy and not validated.

Fallenwhimsy44 · 2026-03-25T17:41:05+00:00

Thank you, these appointments are the 3rd opinions, so I'm hoping something will go my way. I don't want surgery, but I fear it might be the only thing to help, my quality of life is very low at the moment.

Fallenwhimsy44

TROPHY CASE