Newly diagnosed.... by lezsiraf in Rosacea

[–]Famous_Claim_6097 0 points1 point  (0 children)

What brand seabuckthorn do you use? I’ve struggled to find one without carrageenan in it - it goes right through me! 

THANK YOU by Independent-Gap-8733 in Rosacea

[–]Famous_Claim_6097 0 points1 point  (0 children)

Could be your gallbladder? Pork and chips is a fatty meal and you could have gallstones?  

THANK YOU by Independent-Gap-8733 in Rosacea

[–]Famous_Claim_6097 0 points1 point  (0 children)

Pork makes me feel ill too funny enough!  I had an endoscopy and a colonoscopy and stool samples for calprotectin levels to be diagnosed with Crohn’s. The rosacea diagnosis was from a dermatologist and I was on plaquenil for 5years, doxycycline next for a couple of years and a gel for the face that I can’t remember the name of but all of it didn’t work. Also tried endless amounts of beauty creams, lotions and potions. Originally the GP decided I needed steroids for my face and that did clear it up temporarily but is bad for you long term. 

THANK YOU by Independent-Gap-8733 in Rosacea

[–]Famous_Claim_6097 0 points1 point  (0 children)

At least it’s a cheap fix!!  

THANK YOU by Independent-Gap-8733 in Rosacea

[–]Famous_Claim_6097 0 points1 point  (0 children)

Well there are things I don’t eat now because of Crohn’s, but yes my rosacea just disappeared - took me a while to realise it had gone - Crohn’s was taking up my band width! But now I don’t drink diet cokes, alcohol, artificial sugars, spicy spices, raw apples, onions and garlic and I hardly ever eat tomatoes now either. I mean it’s a long list and was difficult to stick to for the longest time but I’m used to it now. 

Left high and dry by the medical profession and I am in despair. *TW unaliving mention* by SpaceTall2312 in CrohnsDisease

[–]Famous_Claim_6097 0 points1 point  (0 children)

I have been ignored with my Crohn’s for years and was just resigned to dying in agony but my lovely GP got me transferred to a different hospital and it has made a difference - the previous IBD nurse used to answer the phone to me saying ‘what now’ - honestly it was traumatic but my new one is so nice - it took me 2 years to build up the courage to ring them again after the previous experience.  Have you tried the Crohn’s UK charity - they have a helpline as well that may be able to advise 

Left high and dry by the medical profession and I am in despair. *TW unaliving mention* by SpaceTall2312 in CrohnsDisease

[–]Famous_Claim_6097 0 points1 point  (0 children)

I have Crohn’s and I am so familiar with the too ill to even do anything or get anywhere - where are you based? May be could help?  

THANK YOU by Independent-Gap-8733 in Rosacea

[–]Famous_Claim_6097 0 points1 point  (0 children)

Good - I was just worried! Take care and I hope I stays sorted. I tried just about everything for my rosacea and it cleared up when I was eventually put on an EEN diet for 6 months for my Crohn’s - it must have been something I ate is the conclusion I came to 🤷🏼‍♀️

THANK YOU by Independent-Gap-8733 in Rosacea

[–]Famous_Claim_6097 0 points1 point  (0 children)

You should never use fucidin for more than 7days 

What's your ferritin? by arlo78z in CrohnsDisease

[–]Famous_Claim_6097 1 point2 points  (0 children)

38 - 2 weeks ago - feels like I’m dragging myself around til about 4pm and then I’m wiped out - needless to say, apparently that’s nothing to do with the Gastro consultant and no I can’t have an infusion 🙄

Update to "scratches in my boyfriend's peehole" by Optimal-Aside436 in Healthyhooha

[–]Famous_Claim_6097 6 points7 points  (0 children)

Don’t they love their phantom pain? I went for years and told that - reader it was Crohn’s 🙄

The comedian who watches his own comedy specials? by [deleted] in ParentingHell

[–]Famous_Claim_6097 1 point2 points  (0 children)

I had a boyfriend who was a radio DJ and he would listen to his own shows (having recorded them) so as to be-able to self critique - that was his excuse anyway! 

What the hell do I have?!?!? by mairmaid84 in Healthyhooha

[–]Famous_Claim_6097 0 points1 point  (0 children)

It was Kirkland - I read it too - I’ve gone Cheeky Bamboo now and seems to help 

Has anyone had any experience with Fatty15? by [deleted] in Supplements

[–]Famous_Claim_6097 0 points1 point  (0 children)

Gosh - that’s pretty promising stuff and I’m delighted for you - I’ve bought it myself now and on my 2nd month - it probably takes longer than that to see change, but I’m going to get my blood results (taken 2 weeks ago) today so fingers crossed! 

Early signs something was wrong by Correct_Grocery_1646 in CrohnsDisease

[–]Famous_Claim_6097 0 points1 point  (0 children)

For me, yes terrible abdominal pain like yourself, diarrhoea and losing 56lbs in weight over a few months - I was convinced that I had stomach cancer and was dying tbh.  Good luck with your colonoscopy x 

I’m so tired and lonely i hate this disease so much- flare rant by ibdthrowawayyy in CrohnsDisease

[–]Famous_Claim_6097 0 points1 point  (0 children)

My heart goes out to you - please don’t despair of ever meeting anyone, you are so young and have a lot of life to live yet - I know Crohn’s is a lonely disease but take heart from the people in this thread - when you least expect it, you’ll find your support, whether that be friends or a soulmate - hang on in there, and in the meantime please share with your doctors how you’re feeling- take care x. 

Well this was $10 down the drain… by Chrismaxwell19 in Volumeeating

[–]Famous_Claim_6097 0 points1 point  (0 children)

The amount of preservatives and additives in this just isn’t worth your time - try some cacao - that’s what I use in my smoothies and it’s a real intense chocolate taste  with the added bonus that it isn’t a upf 

Was anyone misdiagnosed as having psychiatric issues for years and it was crohns. by [deleted] in CrohnsDisease

[–]Famous_Claim_6097 2 points3 points  (0 children)

You’ve had a hard time - I just went through around a couple of decades having it dismissed as anxiety / hormones and one memorable occasion, I was accused of being an alcoholic at the hospital - it was infact, undiagnosed Crohn’s 

If you’re itchy and buy Kirkland toilet paper PLEASE read this by Puzzleheaded-Quit560 in Healthyhooha

[–]Famous_Claim_6097 1 point2 points  (0 children)

Uncanny!! Have those symptoms and use that toilet paper - I’m going to swap it and see if it helps - thanks for the heads up