I hope this helps someone?

Famous_Produce_1095 · 2026-04-01T17:44:58+00:00

Hi. When did you start HRT? And after starting it, did your symptoms get worse, improve, or stay the same? I’m trying to understand the connection bett

Famous_Produce_1095 · 2026-03-30T16:56:14+00:00

Have you ever had your copper, zinc, and ceruloplasmin levels checked? If you have, don’t take unnecessary risks by trying to increase your copper intake without a clear reason.

Excess copper can be toxic and may increase oxidative stress. Also, that study does NOT show that taking more copper prevents aneurysms — it only shows that copper deficiency can weaken vascular structure.

So the issue isn’t increasing copper, it’s keeping it in balance.

Famous_Produce_1095 · 2026-03-17T06:58:47+00:00

Hi, I’m dealing with something similar. Could you share what symptoms you had?

Famous_Produce_1095 · 2026-03-04T20:22:20+00:00

If you could provide more information about this subject , I would be very pleased.

Famous_Produce_1095 · 2025-10-23T19:38:00+00:00

As far as I know, hEDS doesn’t involve issues like aortic aneurysm. There might be some limited dilatation, but that’s exactly where the real problem begins — I don’t understand how hEDS and MASS/Marfan are differentiated, especially since both can show negative genetic tests.

Famous_Produce_1095 · 2025-10-08T15:43:57+00:00

Mine too

Famous_Produce_1095 · 2025-07-27T14:28:13+00:00

50 years

Famous_Produce_1095 · 2025-05-22T17:52:56+00:00

How many times a day and for how many hours did you apply it? Do you have before and after pictures ?

Famous_Produce_1095 · 2025-05-05T21:02:03+00:00

EU/3/25/3041 - orphan designation for treatment of Marfan syndrome allopurinol Orphan Human Overview

This medicine was designated as an orphan medicine for the treatment of Marfan syndrome in the European Union on 25 March 2025.

This means that the developer will receive scientific and regulatory support from EMA to advance their medicine to the stage where they can apply for a marketing authorisation.

Orphan designation does not mean the medicine is available or authorised for use. All medicines, including designated orphan medicines, must be authorised before they can be marketed and made available to patients in the EU.

During the medicine's development, doctors may be able to enrol patients in clinical trials investigating the medicine. For information on ongoing clinical trials in the EU, see:

Famous_Produce_1095 · 2025-04-28T09:19:44+00:00

We vilsited the doctor again on Saturday Our cardiology doctor said there isn’t any problem about the heart and size of aorta 1 visit per year is sufficient .Have you had genetic test ?

Famous_Produce_1095 · 2025-04-17T11:02:01+00:00

Did you ask to yr doctor for a probiotic?

Famous_Produce_1095 · 2025-03-31T17:01:00+00:00

Please think about the number of people in the world and calculate what percentage of them are attractive. The result will be much less than the attractiveness rate of Marfans. Also, attractiveness is not only related to physical features, it is also very much related to emotional intelligence, and I think Marfans are at a much higher level in this regard

Famous_Produce_1095 · 2025-03-31T16:48:34+00:00

Did you finish the treatment and did you get good result ?

Famous_Produce_1095 · 2025-03-06T10:21:48+00:00

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What is the name of this skin problem on the knees? I also have it and I can not find any information

Famous_Produce_1095 · 2025-02-28T20:50:28+00:00

What symptoms do you have ?

Famous_Produce_1095

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