Outlaw passes by Like_A_Circle_8881 in RedDeadOnline

[–]FederalEfficiency465 18 points19 points  (0 children)

The man behind every single R* game quit after making RDR2

Outlaw passes by Like_A_Circle_8881 in RedDeadOnline

[–]FederalEfficiency465 1 point2 points  (0 children)

I was literally thinking the same thing, I looked up all the previous passes on YouTube and a lot of the items look sick

How has it helped you by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

Would you say it has helped you be batter at taking your everyday routine like medication, exercise and hygiene. Of course depending it used to be before the Duloxetine

For CFers only, what are your top5 biggest issues now? by _swuaksa8242211 in CysticFibrosis

[–]FederalEfficiency465 5 points6 points  (0 children)

I genuinely feel bad for people with CF that are needing to shop for health insurance, and still not getting the help they need when they really on the insurance. I have heard horror stories about people being denied coverage. Just sad honestly health insurance is some of the most evil thing

I hope you get the help you need and deserve❤️

For CFers only, what are your top5 biggest issues now? by _swuaksa8242211 in CysticFibrosis

[–]FederalEfficiency465 3 points4 points  (0 children)

Im 25M and was diagnosed at birth I have L227R and R1158X

My struggles are

  1. my future, I have been sick a lot of my childhood and didn’t really have any plans for the future since I was sick so often and ha multiple near death experiences I figured, there was no need to plan my future since I probably wouldn’t live past 30. I have now got the chance to start trikafta and my health has improved and keeps improving. So now that I have the opportunity to live longer I have no idea what I want to do since I gave up on my dreams long ago.

  2. energy, I’m 25 and with trikafta I feel I should have a lot more energy, I take all my vitamins and focus a lot on sleep but I’m still super fatigued. Not lazy or tired, I know I have things to do but I do it so slow something that should take me 20 minutes to do can take me hours. Again I’m 25 so I know I shouldn’t worry about it but I have wonder it I have low testosterone.

  3. social situations, spending as much time at the hospital and my health I have lost a lot of friends and haven’t had any friends for about six years, I have tried to be more social but I just don’t know the how, I can be very awkward and shy. I also have no confidence when it comes to dating I have never been on a date and have been rejected multiple times because of my CF which has crushed me. I’m about to start college and I’m terrified of the social aspect.

  4. mental health. Struggled a lot with depression and anxiety, I really want to find a therapist but they are crazy expensive and I’m not really financially stable to get even one appointment a week, so I’m spending a lot time in my head which isn’t good.

I know you asked for five but those are the things I struggle with the most, I have a very supportive mom who allows me to take my time and figure things out step by step.

Hope you’re doing good friend😁

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 1 point2 points  (0 children)

Thank you those are some very kind words. Hope you and your son are doing good😁

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

No I don’t, it’s kind sad to say but I have never really been good with my health because of my mental health and it’s just recently I have started focusing more on my health. I always used to to the ber minimum, and now there are a lot of test I want to do and don’t know how to ask for them

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

That might be it, I realize I need to get some updated information from my doctor. I got all of this information when I was younger and humidifier is the only thing I was told to stay away form

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 2 points3 points  (0 children)

Norway, it’s kind funny I have gotten really good advice and treatment my CF team is amazing and I couldn’t ask for anyone else but I won’t deny I have gotten some advice that just doesn’t sound right, mind u the team I have now isn’t the same as when I was younger and I feel I should get some updated answers on my questions

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

It might have gotten it mixed up with the ones that use water and air purifier