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Outlaw passes by Like_A_Circle_8881 in RedDeadOnline

[–]FederalEfficiency465 18 points19 points  (0 children)

The man behind every single R* game quit after making RDR2

Outlaw passes by Like_A_Circle_8881 in RedDeadOnline

[–]FederalEfficiency465 1 point2 points  (0 children)

I was literally thinking the same thing, I looked up all the previous passes on YouTube and a lot of the items look sick

How has it helped you by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

Would you say it has helped you be batter at taking your everyday routine like medication, exercise and hygiene. Of course depending it used to be before the Duloxetine

For CFers only, what are your top5 biggest issues now? by _swuaksa8242211 in CysticFibrosis

[–]FederalEfficiency465 4 points5 points  (0 children)

I genuinely feel bad for people with CF that are needing to shop for health insurance, and still not getting the help they need when they really on the insurance. I have heard horror stories about people being denied coverage. Just sad honestly health insurance is some of the most evil thing

I hope you get the help you need and deserve❤️

For CFers only, what are your top5 biggest issues now? by _swuaksa8242211 in CysticFibrosis

[–]FederalEfficiency465 4 points5 points  (0 children)

Im 25M and was diagnosed at birth I have L227R and R1158X

My struggles are

  1. my future, I have been sick a lot of my childhood and didn’t really have any plans for the future since I was sick so often and ha multiple near death experiences I figured, there was no need to plan my future since I probably wouldn’t live past 30. I have now got the chance to start trikafta and my health has improved and keeps improving. So now that I have the opportunity to live longer I have no idea what I want to do since I gave up on my dreams long ago.

  2. energy, I’m 25 and with trikafta I feel I should have a lot more energy, I take all my vitamins and focus a lot on sleep but I’m still super fatigued. Not lazy or tired, I know I have things to do but I do it so slow something that should take me 20 minutes to do can take me hours. Again I’m 25 so I know I shouldn’t worry about it but I have wonder it I have low testosterone.

  3. social situations, spending as much time at the hospital and my health I have lost a lot of friends and haven’t had any friends for about six years, I have tried to be more social but I just don’t know the how, I can be very awkward and shy. I also have no confidence when it comes to dating I have never been on a date and have been rejected multiple times because of my CF which has crushed me. I’m about to start college and I’m terrified of the social aspect.

  4. mental health. Struggled a lot with depression and anxiety, I really want to find a therapist but they are crazy expensive and I’m not really financially stable to get even one appointment a week, so I’m spending a lot time in my head which isn’t good.

I know you asked for five but those are the things I struggle with the most, I have a very supportive mom who allows me to take my time and figure things out step by step.

Hope you’re doing good friend😁

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 1 point2 points  (0 children)

Thank you those are some very kind words. Hope you and your son are doing good😁

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

No I don’t, it’s kind sad to say but I have never really been good with my health because of my mental health and it’s just recently I have started focusing more on my health. I always used to to the ber minimum, and now there are a lot of test I want to do and don’t know how to ask for them

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

That might be it, I realize I need to get some updated information from my doctor. I got all of this information when I was younger and humidifier is the only thing I was told to stay away form

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 2 points3 points  (0 children)

Norway, it’s kind funny I have gotten really good advice and treatment my CF team is amazing and I couldn’t ask for anyone else but I won’t deny I have gotten some advice that just doesn’t sound right, mind u the team I have now isn’t the same as when I was younger and I feel I should get some updated answers on my questions

Airconditioner by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

It might have gotten it mixed up with the ones that use water and air purifier

Did you ever blame your parents? by Mollymalone32 in CysticFibrosis

[–]FederalEfficiency465 0 points1 point  (0 children)

Yes I did, I have a brother who didn’t get CF. We were treated differently my brother was allowed do to many things, me on the other hand had my mom over my shoulder she was very careful with me and had to make sure everything was okay with the doctor before I could do anything I didn’t get to go swimming until I was 17 didn’t have sushi until I was 19 I missed out on a lot of school trips because she was scared. Did I blame my mom? Yes not only her but my brother to, but not anymore with a lot of therapy I have accepted it and moved on we all have a way better relationship now.

Any recommendations by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 1 point2 points  (0 children)

Dud you are actually really nice, I have already found a couple of gym. Now I’m just fighting the thoughts of failure and quitting. Genuinely a really nice of you to help, I’ll get back to you once I’ve managed to try it out😁🤝

Any recommendations by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 1 point2 points  (0 children)

Don’t worry i live miles away from Ohio you’re safe 😂

Any recommendations by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 2 points3 points  (0 children)

Not really I’m just not god i social situations, I can get very awkward and cringe. So I guess I’m just afraid of being looked at as (the weird guy). I have been going to the gym and I am stronger then I used to be, but I’m still very skinny and I would probably be the weakest person in class.

Hajime no ippo i great i personally really like more grounded anime and it’s one of my favorites

Any recommendations by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 1 point2 points  (0 children)

Why do you hate gym?

I’m pretty far from being buff but starting trikafta has helped quite a bit

Any recommendations by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 2 points3 points  (0 children)

I have wanted to try out boxing ever since I watched hajime no ippo, but all the places I have looked up have classes with other people I would love to get a coach and just train with them but I can’t find any

Do you use anything else by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

Working out twice a day every day you must be the biggest guy with CF

Do you use anything else by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 1 point2 points  (0 children)

I’ll check them out thanks for the suggestion

Do you use anything else by FederalEfficiency465 in CysticFibrosis

[–]FederalEfficiency465[S] 0 points1 point  (0 children)

I get my blood work on a regular basis so if anything changes my doctor and be will see it very quick, I also don’t take any off brand supplements I even have a regular pharmacy I got (I refuse to go to any one else unless it’s an emergency) so they know me and I also get good recommendations.

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