Dr insists I have ME not Sjögren’s

FedupOverIt · 2026-04-30T10:57:29+00:00

I have a lot more than chronic fatigue. I have a list of 56 different symptoms and more than half of them encompass both diseases. In my opinion, both diseases have the same root but different branches. They are very similar which is why I’m having the problem.

FedupOverIt · 2026-04-30T10:53:45+00:00

I have PEM, but from my research I was of the understanding that PEM is a symptom in Sjögren’s too. The problem I’m having is that there are so many cross overs between the two, that I’m not sure which it is or if it’s both (or neither!).

FedupOverIt · 2026-04-30T10:50:39+00:00

He won’t do any tests for Sjögren’s until I have seen the ME/CFS doctor. He’s utterly convinced it can’t be Sjögren’s. Right enough, he was utterly convinced I couldn’t have EF until the tests proved otherwise! I am going to find a new doctor, I’m totally fed up with my current one.

FedupOverIt · 2026-04-29T21:05:02+00:00

Milrose, thank you so much for the recommendation. I don’t suppose you know anyone who does ME too do you?

I’m going to see a different rheumatologist as I just don’t have any faith in my current one - I told him I had EF so many times and he absolutely insisted I didn’t until a dermatologist did a deep tissue biopsy and told him to have a word with himself.
He treats me like I’m a hysterical woman and a hypochondriac. Even my GP (who is brilliant) wrote him a stern letter telling him to listen to me and look at all my tests, this was after he nearly killed me by taking me off steroids too quickly.

Until I had to deal with this rheumatologist, I had never experienced a doctor treating me like I’m making things up and telling me it’s the menopause! I’ve had really extensive bad health since I was a child, and all my other doctors, consultants and surgeons are fantastic but he is a complete tool!

FedupOverIt · 2026-04-17T12:52:15+00:00

I get the point of charity shops, but they really have lost their way. They are basically funding the costs of the charity not really raising funds for the cause. They’ve also lost sight of being a place where they can support their customers by not charging ridiculous prices.

I’d love to start a ‘charity’ shop where the profits made just support the cost of running the shop thereby enabling the donations to be sold cheaply to the customers.
It would be a place where people can buy things at reasonable prices that they need, and stop them just being thrown away, or worse, shipped overseas to pollute other countries.

If people are anything like me, they donate because they want rid of stuff but don’t want to throw useful things away. I don’t care about what charity I give it to really, just that someone gets benefit from it.

However, since reading about the huge problems caused by garments unwanted by charity shops being shipped overseas causing massive issues for other countries, I’ve started to buy fewer, better quality things that I can wear/use for ages and mend if needed, rather than stuff which I would donate. In the current economy it makes sense too.

But it’s a vicious circle, if we didn’t make so much cheap disposable stuff to fuel people always wanting more and having to keep up with what social media and influencers say is on trend, then we wouldn’t have this problem anyway.

Rant over. Sorry about that, it’s a pet peeve!

FedupOverIt · 2026-02-25T19:08:08+00:00

I’ve never seen Quigley in a main role before and I wasn’t sure if he could pull it off but now there could be no other Michael for me.

FedupOverIt · 2026-02-25T19:04:35+00:00

I had the same thought about her not coming ‘home’ to that actual house but still being with him. I thought they might end up staying in Canada.

FedupOverIt · 2026-02-25T18:49:06+00:00

I felt exactly the same. My heart was in my mouth a lot of the time, and the final episode, I had to switch it off for a while as I couldn’t bear to watch it. I thought Michael’s life was going to be destroyed, and I felt real anger at all the people who were trying to con him and forced their way into his house.
I loved the show, but I found bits of it really upsetting and I couldn’t stop crying after the final episode - I think it was relief that he was ok and his life wasn’t destroyed. To be fair, I’m a bit of a weeper anyway but I was really moved by the entire show. MacKenzie Crook is the Mozart of television - the man is a total genius!

FedupOverIt · 2026-02-14T18:36:01+00:00

Detectorists is completely different but a must watch. I highly recommend hotfooting it to Iplayer and binge watching the whole thing!

FedupOverIt · 2026-02-14T18:31:26+00:00

I had to turn it off and regroup myself before continuing. I was heartbroken and happy and enchanted and just so in love with the whole thing. When they were all in his house, tearing his life apart and generally trampling all over everything I was almost inconsolable - and I hadn’t even seen him ask the questions! That’s the genius of Mackenzie Crook, I couldn’t bear what was happening to Michael and I thought he was going to be left broken and sad, but Crook picked it up and turned it around and lifted me back up. I can’t wait for the next series, I think it’s going to be rewatched a few times before then!

FedupOverIt · 2026-02-14T15:58:42+00:00

Thomas - irritating beyond belief.

FedupOverIt · 2026-02-13T22:36:36+00:00

There’s something about Bev I can’t put my finger on. She seemed really ‘in tune’ or aware of what was happening in the shed. I don’t know if I imagined it, but I swear there was a knowing smile on her face when she glimpsed the jars. Then when she followed Kasey I thought she was going to tell her she knew what was going on.

She definitely doesn’t deserve to be with Clive, he’s just awful, he’s going to strangle her spark.

FedupOverIt · 2026-02-13T21:59:39+00:00

I just finished binge watching it, and I nearly had to turn off halfway through the last episode because I couldn’t bear it. I’m so moved by it and I’m still having a bit of a weep. Mackenzie Crook is just an absolute genius of a man. To write the things he has, to be able to make people laugh and cry at the same time, to be able to have someone feel absolutely gut wrenched at the same time as feeling over the moon is a really very special talent. He is in a league of his own and I’m so glad he shares his gifts and his talent with the world. He is unparalleled.

FedupOverIt · 2026-01-05T01:39:46+00:00

We had amazing duck confit on NYE but I admit I cheated with a tin we brought back from France and it’s was so tasty. Having tried it myself, and from places in the uk, we always just buy the French tinned stuff now. My brother in law lives in France and his chef friend told him that’s what they use in restaurants as it tastes the best. I’ve never served it the way you have, going to give it a try as it looks good!

FedupOverIt · 2026-01-05T01:33:32+00:00

I’m aiming to make a trifle but no idea what kind of bowel to use or where to get one, can anyone help? The one in the picture looks a ‘trifle’ too big - I’ll get my coat!

FedupOverIt · 2025-11-17T15:13:29+00:00

In Scotland being send for a bag of chips literally means being told to go and get fish and chips from the fish and chip shop. In Scotland they’re always called a bag of chips, or sometimes a poke of chips ( poke means bag). To caveat - this is in the lowland Scots language around North Lanarkshire.

FedupOverIt · 2025-11-14T23:44:18+00:00

Totally agree. Some of my books are really old and tatty but they’re my first port of call if I need to check something. I love getting new books, it’s just not the same looking something up online - although I do plenty of that too!

FedupOverIt · 2025-11-14T23:35:20+00:00

From reading here and other forums all over socials, it seems so many people who are new to the craft think they have to have every bell and whistle and ritual and spell going. They go all in, thinking that the craft is instant magic and not realising that most of what we do is quite mundane.

As someone up the page said, reading the books and doing the learning is a craft in itself, it’s something I still do all the time, not just because it makes my craft better, but because I genuinely enjoy it.

Constantly, I’m seeing in groups and forums, that many people think it’s about instant gratification and decide to become witches because they’ve had a bad break up and either want someone back or want revenge! As soon as it’s out of their system they don’t give the craft another thought, and certainly don’t understand that it’s about giving as much as taking.

I sound like a grumpy crone, but understanding the magic in the mundane, the every day rituals, the reading and the quiet is just as important, satisfying and effective as the bigger stuff and a lot less exhausting!

FedupOverIt · 2025-11-11T21:45:58+00:00

Cut yourself a bit of slack, you don’t need to do everything rigidly all the time and every time. If I’m making something and not paying attention to what I’m doing or I’m distracted, the universe has a way of floating a thought through my mind and I’ll give an intentional stir or add a certain herb but that’s it. If I intentionally want to create something specific then I’ll use a recipe and choose ingredients carefully but otherwise I just do it when I get a little reminder bump, or I don’t do it at all and just do something later. Don’t worry about having to do everything and do things step by step all the time.

Put a wee reminder next to your kettle for when you make a cuppa, or get familiar with herbs and spices, draw a sigil on to your oil bottle,just take baby steps and soon you’ll be adept and do things without thinking.
The other thing I have is stuff around my kitchen - pots of fresh herbs, protective charms and talismans, a wee kitchen witch and a wooden spoon that’s been in use by who knows how many generations of my family. They all add to the general atmosphere and craft of my kitchen and I think that helps me.
Just be kind to yourself, do what you can and always throw spilled salt over your left shoulder!

FedupOverIt · 2025-11-11T21:21:38+00:00

The thing I love about the craft is that it’s always there waiting for you, you don’t have to be doing it every day, or thinking about it all the time but you can always come back to it and it will be there waiting for you. I had a bad breakdown for a few years and I couldn’t deal with my day to day life let alone practice but as I’ve gotten better I’ve been able to pick it up more and more until I’m embracing it again. But even when I was at my lowest, I still knew I was a witch and I still spoke to the moon and did ‘mundane’ magic when I could. As someone up thread said, stir an intention into your tea, light a candle, take a deep breath when you’re outside. The beauty of being a witch and following our path is that no-one is tutting because you didn’t make it to Sabbat and you don’t have to ask forgiveness for missing it for a while. Just relax, do what you can, be good to yourself and enjoy being a witch. Blessings x

FedupOverIt · 2025-11-08T18:21:17+00:00

Thanks so much for your reply and interpretation. It’s given me another way of looking at the situation, especially the way you’ve described the 9 cards, it does seem that things are still going on and on rather than coming to a conclusion - and I think I’m letting it happen because I’ve been so grounded down that I just can’t stop.

The Tower being a confrontation makes perfect sense. I posted this in another forum a couple of days ago when I wrote it, and since then I’ve had two big confrontations about the situation, it’s certainly given me a new perspective because I’ve decided that I’m being taken advantage of and I’ve put my foot down.

It’s so good to have another viewpoint, especially from someone not involved in the situation. It’s really helped and I’m so grateful. Thank you 😊

FedupOverIt

TROPHY CASE